I haven't posted on here in forever. After I was done pushing lyme disease into remission, I ended up getting the back of my head injured and ended up with trigeminal neuralgia. yes I know lyme can cause that, but mine was actually due from blunt trauma to the head. . I lived in intense pain for YEARS and finally decided to undergo microvascular decompression surgery for it (brain surgery) last year. I had a stroke during surgery and the whole thing just went haywire leaving me in CONSTANT severe pain in my mouth ( right sided).
The neurosurgeon swears he didnt hit my trigeminal nerve that hard to cause such intense pain and couldnt diagnose it; so he blamed it on the anesthisiologist saying they probably severed my lingual nerve while intubating me for surgery. In any event, I was close with a titanium plate for that surgery.
One of the titanium plate screws literally dislodged itself and got lodged behind my ear causing me even more pain. I went back into surgery just this October 31st to have the plate and screws removed. The neurosurgeon noted TONS of inflammation.
I didnt bounce back from the second surgery at all. I started sweating under my underarms profusely again ( classic bartonella for me) and my feet, legs and ankles are just killing me. I noticed insomnia despite being severely exhausted but then the kicker came- my mood started to change. People were just getting on my nerves and still are, left and right. I have been snapping at everyone. When I caught myself busting out in tears for absolutely no reason whatsoever, I knew I was in trouble.
So, it is back into treatment for me. I am REALLY impressed though that the lyme didnt come back when I had the brain surgery last year; but I think it was the cause of why the back of my head at the incision site was ALWAYS swelling up. Lyme loves injury. And who knows, it MAY be the cause of my constant mouth pain ( but that was more likely surgical error)
Im looking forward to pushing this back into remission but NOT looking forward to the herx storm I know is coming. I should have seen it coming, really. When they put me on antibiotics after this surgery I felt mean, just not me. I was herxing and kept disbelieving that I was. Doy!
Guess I am back here for a while. Hello AGAIN. LOL
Posted by just don (Member # 1129) on :
Yikes you have been to heck and back.
Glad your on the semi mend at least. Stick with it and we will get you better.
MY question is who hit you on the head????
Ever so glad to see you again,,,,little birdie sez """You got mail"""
Posted by Lymetoo (Member # 743) on :
UGH!! So sorry to hear that you are in PAIN!!! I do hope you found a good dr to treat you and get you back to feeling human again.
We missed you!!
Posted by linky123 (Member # 19974) on :
Wow, sounds like you've had more than your fair share. Hope you are on the way back.
Take care and God bless.
Posted by lymeinhell (Member # 4622) on :
Oh no!!! So sory that you ended up back here again. You certainly have been through the mill. Not sure who you're going to see LLMD wise - please let me know if I can do anything.
Oh and - Happy Thanksgiving. Hold the stuffing please Posted by Carol in PA (Member # 5338) on :
With your nerve pain and inflammation, you may be interesting in trying LED light therapy.
You can buy a unit and do this yourself.
Posted by TheCrimeOfLyme (Member # 4019) on :
Thanks guys. I am not seeing a LLMD yet, but if anyone knows one around the Pittsburgh, PA area please let me know. Carol in PA: led light therapy? Nerve pain and inflammation? I WANT ONE! Where do I get them? Im going to go google these and take a peek. Thank you bunches. Just don: An Abusive ex hit me. May he forever rot in he**.
Posted by Carol in PA (Member # 5338) on :
This is also available at Amazon.com and eBay. If you buy from the SOTA site, google to find the 10% discount coupon. They have a 30 day guarantee so if you are not satisfied, you can return it. (I don't know if the other vendors offer the guarantee.)
The LightWorks is not as strong as the professional models, which are ten or twenty times more expensive. You can also get models from other companies that are less expensive, but they are usually much smaller, with fewer LED's. It would take longer to treat an area, as you'd have to keep moving the lights every couple minutes.
Here is another model about the same size, that uses 660 and 880 wavelength LED's, but less expensive. Dual Hand Held LED Light with 120 660nm/880nm LEDs http://www.theledman.com/handheld.html
That unit gets hot when used, and the manufacturer offers a model with a fan. (It might be stronger?) The LightWorks doesn't get hot.
I have used the LightWorks all over myself, for pain and to heal wounds. When I first got it, I had a sore on my earlobe that had not healed for six months. I used the LightWorks on it, and it healed in three days!
I've used it on toothache, swollen saliva gland, sore throat, sacroiliac pain and other back pain, stiff neck, joint pain, abdominal pain.
The light provides energy that is absorbed by the mitochondria in the cells, and they are able to function properly and heal the cells.
![[Frown]](frown.gif)
. I lived in intense pain for YEARS and finally decided to undergo microvascular decompression surgery for it (brain surgery) last year. I had a stroke during surgery and the whole thing just went haywire leaving me in CONSTANT severe pain in my mouth ( right sided). ![[group hug]](graemlins/grouphug.gif)
![[Wink]](wink.gif)