I am comforted to be reminded I am not alone in this.
Over the years whenever the symptoms return, I have come back to this chat room. Mostly to read and sometimes share my experience with Lyme.
I have had Lyme on & off for close to 30 years. After what seemed like a pretty good remission, here I am again overwhelmed with how powerless I feel over this disease. So s&t of being s&t, but I know, you know exactly what I mean.
Why won't this go AWAY & STAY away???? Why does the treatment have to make me so sick???? Am I going to become permanently disabled?
All these questions tearing me up. I can't imagine going thru this again without anti-depressants and and a good therapist.
So you all will be seeing me around again! LE
Posted by TF (Member # 14183) on :
To help get rid of lyme and keep it away, I suggest you do the 1 hour of weight lifting every other day that is recommended by Burrascano.
My lyme doctor and others who follow Burrascano say that this exercise requirement is a MUST. It strengthens the immune system, which is how it keeps the lyme from coming back and making you sick.
Do it while in treatment and continue after treatment. I do the weight lifting twice per week, a full hour, and a full body workout.
Page 31 of Burrascano Guidelines:
"LYME DISEASE REHABILITATION
Despite antibiotic treatments, patients will NOT return to normal unless they exercise, so therefore an aggressive rehab program is absolutely necessary. It is a fact that a properly executed exercise program can actually go beyond the antibiotics in helping to clear the symptoms and to maintain a remission.
Although the scientific basis for the benefits of exercises is not known, there are several reasonable theories. It is known that Bb will die if exposed to all but the tiniest oxygen concentrations. If an aggressive exercise program can increase tissue perfusion and oxygen levels, then this may play a role in what is being seen.
Also, during aggressive exercise, the core body temperature can rise above 102 degrees; it is known that B. burgdorferi is very heat sensitive. Perhaps it is the added tissue oxygenation, or higher body temperature, or the combination that weakens the Lyme Borrelia, and allows the antibiotics and our defenses to be more effective. Regular exercise-related movements can help mobilize lymph and enhance circulation. In addition, there is now evidence that a carefully structured exercise program may benefit T-cell function: this function will depress for 12 to 24+ hours after exercise, but then rebound.
This T-cell depression is more pronounced after aerobics which is why aerobics are not allowed. The goal is to exercise intermittently, with exercise days separated by days of total rest, including an effort to have plenty of quality sleep. The trick is to time the exercise days to take advantage of these rebounds. For an example, begin with an exercise day followed by 3 to 5 rest days; as stamina improves, then fewer rest days will be needed in between workouts. However, because T-cell functions do fall for at least one day after aggressive exercises, be sure to never exercise two days in a row."
Posted by Lymetoo (Member # 743) on :
and find a really GOOD LLMD!!!
Glad to see you around again, Lisa!
Posted by Lisa Lyme (Member # 33537) on :
quote:Originally posted by TF: To help get rid of lyme and keep it away, I suggest you do the 1 hour of weight lifting every other day that is recommended by Burrascano.
My lyme doctor and others who follow Burrascano say that this exercise requirement is a MUST. It strengthens the immune system, which is how it keeps the lyme from coming back and making you sick.
Do it while in treatment and continue after treatment. I do the weight lifting twice per week, a full hour, and a full body workout.
Page 31 of Burrascano Guidelines:
"LYME DISEASE REHABILITATION
Despite antibiotic treatments, patients will NOT return to normal unless they exercise, so therefore an aggressive rehab program is absolutely necessary. It is a fact that a properly executed exercise program can actually go beyond the antibiotics in helping to clear the symptoms and to maintain a remission.
Although the scientific basis for the benefits of exercises is not known, there are several reasonable theories. It is known that Bb will die if exposed to all but the tiniest oxygen concentrations. If an aggressive exercise program can increase tissue perfusion and oxygen levels, then this may play a role in what is being seen.
Also, during aggressive exercise, the core body temperature can rise above 102 degrees; it is known that B. burgdorferi is very heat sensitive. Perhaps it is the added tissue oxygenation, or higher body temperature, or the combination that weakens the Lyme Borrelia, and allows the antibiotics and our defenses to be more effective. Regular exercise-related movements can help mobilize lymph and enhance circulation. In addition, there is now evidence that a carefully structured exercise program may benefit T-cell function: this function will depress for 12 to 24+ hours after exercise, but then rebound.
This T-cell depression is more pronounced after aerobics which is why aerobics are not allowed. The goal is to exercise intermittently, with exercise days separated by days of total rest, including an effort to have plenty of quality sleep. The trick is to time the exercise days to take advantage of these rebounds. For an example, begin with an exercise day followed by 3 to 5 rest days; as stamina improves, then fewer rest days will be needed in between workouts. However, because T-cell functions do fall for at least one day after aggressive exercises, be sure to never exercise two days in a row." [/qb]
Wow, I've been too exhausted to even consider light yoga. I'll have to slowly work my way into physical activities again.
[ 03-28-2013, 09:47 PM: Message edited by: Lymetoo ]
Posted by TF (Member # 14183) on :
I had such unbelievable muscle weakness that when my lyme doctor told me to do the Burrascano exercise program (1 hour of light weight lifting every other day), it was like telling me to climb Mt. Everest.
Even so, I started. I could barely walk down our basement stairs to get to the weight bench. My legs shook with weakness.
At first, I could only lift the bar, or very, very light weights about 2 times. Same with leg weights. I was exhausted after each try. I was done in 10 minutes. But, I persevered.
It may have taken me 3 months to be able to do a 1 hour routine. Then, I started lifting more and more weight. It really got exciting because I could see my progress. I was becoming a normal person again.
When I got muscles in my arms, I was thrilled.
This is how I got my health and life back. All in my basement lifting weights.
Posted by didogs (Member # 40101) on :
That is inspiring Tf!! I am so tired I sometimes do 10 bicep curls and I'm done. Good to know you started slow and were able to build up. And I know you always remind us of the exercise. it is helpful because it's something that is way too easy not to do. Reminders are good!!
Posted by Ellen101 (Member # 35432) on :
quote:Originally posted by TF: To help get rid of lyme and keep it away, I suggest you do the 1 hour of weight lifting every other day that is recommended by Burrascano.
My lyme doctor and others who follow Burrascano say that this exercise requirement is a MUST. It strengthens the immune system, which is how it keeps the lyme from coming back and making you sick.
Do it while in treatment and continue after treatment. I do the weight lifting twice per week, a full hour, and a full body workout.
Page 31 of Burrascano Guidelines:
"LYME DISEASE REHABILITATION
Despite antibiotic treatments, patients will NOT return to normal unless they exercise, so therefore an aggressive rehab program is absolutely necessary. It is a fact that a properly executed exercise program can actually go beyond the antibiotics in helping to clear the symptoms and to maintain a remission.
Although the scientific basis for the benefits of exercises is not known, there are several reasonable theories. It is known that Bb will die if exposed to all but the tiniest oxygen concentrations. If an aggressive exercise program can increase tissue perfusion and oxygen levels, then this may play a role in what is being seen.
Also, during aggressive exercise, the core body temperature can rise above 102 degrees; it is known that B. burgdorferi is very heat sensitive. Perhaps it is the added tissue oxygenation, or higher body temperature, or the combination that weakens the Lyme Borrelia, and allows the antibiotics and our defenses to be more effective. Regular exercise-related movements can help mobilize lymph and enhance circulation. In addition, there is now evidence that a carefully structured exercise program may benefit T-cell function: this function will depress for 12 to 24+ hours after exercise, but then rebound.
This T-cell depression is more pronounced after aerobics which is why aerobics are not allowed. The goal is to exercise intermittently, with exercise days separated by days of total rest, including an effort to have plenty of quality sleep. The trick is to time the exercise days to take advantage of these rebounds. For an example, begin with an exercise day followed by 3 to 5 rest days; as stamina improves, then fewer rest days will be needed in between workouts. However, because T-cell functions do fall for at least one day after aggressive exercises, be sure to never exercise two days in a row." [/qb]
For many this would be way too much to undertake. For those dealing with joint, muscle and nerve pain it could be impossible. While I feel slot of his advice is great not all of it is right for every body.
[ 03-28-2013, 09:47 PM: Message edited by: Lymetoo ]
Posted by Robin123 (Member # 9197) on :
My preferred exercise is in the pool. Whatever we can do. I initially started really slow, and now am able to do a lot, after I stretched out over a period of many months and built up some endurance. I initially wore a torso float to hold me, and I swim with a snorkle and mask.
Posted by lostlyme (Member # 38561) on :
i guess there is some truth to this , I was a paving laborer working while i was sick and gradualy going down hill . The asphalt can reach tempatures to 300+ degrees. It was not after the paving comapny went out of business . then the hall put me on a pipeline job and my symptoms got worse . it is known that B. burgdorferi is very heat sensitive.Also, during aggressive exercise, the core body temperature can rise above 102 degrees Perhaps it is the added tissue oxygenation, or higher body temperature, or the combination that weakens the Lyme Borrelia