Last month I am doing so much better. More good days, bad days aren't as bad. Not as tired, less pain, less everything. I've been in tindmax every day for 3 month, added bactrim 2 months ago. Added Art. this week. This was after 6 months with another llmd and I made zero progress.
Sharing because always helped me to hear good news.
I still have a ways to go but I am really hoping I'm on the road!
Posted by TF (Member # 14183) on :
Hey, Jessie! I am glad to hear this! We gotta share all the good news we have! Makes everybody happy.
Shows you what can happen when you get good lyme treatment.
And, some people are scared to take art, but it sounds like it caused you to improve! It did that for me too.
Posted by Jessig627 (Member # 36240) on :
Congrats Jessie! That's wonderful to hear! I too take bactrim, started doxy last month. I have to ask, what is art?
All the best for continued improvement to 100%+!!!
Posted by CherylSue (Member # 13077) on :
Good news! Thanks for sharing.
Posted by Hoops123 (Member # 18333) on :
Great news - tindamax has made a world of difference for my son
Posted by TF (Member # 14183) on :
Jessig, art is short for artemesinin. It is an herb recommended by Burrascano as a must add when treating babesiosis. Actually, the herb is artemesia and artemesinin is a condensed form of it, more powerful.
Here is a reference to it in the Burrascano Lyme Treatment Guidelines under the heading "Babesiosis":
"Artemesia (a nonprescription herb) should be added in all cases." (page 24)
Glad to hear you are better. I have been on ART and do it 3 days on 4 off.
Been having tons of hot flashes. Hope it is frying the little burgers.
I don't know if it helps or not, but I am doing it with Pau d'Arco.
My doc rotates me every other month and this is this month's.
Posted by Kudzuslipper (Member # 31915) on :
Wonderful news!
Posted by lyme in Putnam (Member # 11561) on :
Posted by Lymedin2010 (Member # 34322) on :
Great news & it IS always great to hear someone climb out of the Lyme woods!
TF, does Dr H prescribe Art anymore? He has not for me. Perhaps because he believes in Cryptolepsis now?
Posted by phyl6648 (Member # 28522) on :
Know what you mean about scared to say you are feeling better, seems everytime I think I am out of the woods it doesn't last..
Now that doesn't mean you are like me.. Great news continue to feel better..keep us updated.
Posted by TF (Member # 14183) on :
Lymedin2010, I don't know what Dr. H is doing this year, but below I have posted the notes I took when he spoke on babesiosis at the 2011 Lyme Conference in Toronto. He mentioned artemisinin a few times during the talk, as you will see.
2011 ILADS Conference, Toronto, Canada
Lyme & Babesiosis: Updates on Treatment & Diagnosis 2011
Dr. H 10/28/11
He has 20 years of experience treating lyme; more than 12,000 chronic patients
He was in France and China discussing babesiosis. Talked with Chinese CDC regarding parasites
Some of his patients get better with glutathione alone. It opens up the detox pathways (is an anti-oxidant)
Borrelia miyamotoi is showing up in ticks in Hyde Park, NY. This strain is in Japan. We can't test for it.
There is a new ehrlichia species also found.
Indicators of bad outcome with babesiosis:
male sex, extremely high WBC
We see blood transfusion babesiosis in California. WA-1 is now in the Northeast U.S.. It is found along the entire eastern seaboard. It is difficult to get a positive test for it. LabCorp has a WA-1 test. The FISH through Igenex is also very useful.
He treats with clindamycin with azithromycin, also Mepron, then malarone. There is lots of Mepron resistance. So, he adds Septra (Bactrim). This works well. Also, he uses much higher doses of Mepron due to the Mepron resistance.
He uses coartem (which has Artemisinin in it) Dosage is 4 twice per day. Take at 7 a.m. and 3 p.m.; then switch to 7 a.m. and 7 p.m. It can be pulsed once per month.
You can't combine this with any med that affects the QT interval.
Babs is spreading world-wide. Babs also suppresses the immune system (based on a study of b. microti)
Artemisinin is not as effective now as it was in the past. Use art when coartem doesn't cure the person. He no longer uses ketek.
Beta blockers (blood pressure medicines) control these types of parasites. So, use them as an antagonist. We need a study on this. Heparin may also inhibit babs. Need a large study on this.
Curcumin (a herb)--he is now using it to treat babs. Published studies show it is useful for malaria.
Cryptolepis has been used in Africa for malaria. There is a published study in Ghana. It had a 93% cure rate (a 50% cure rate in 3 days; 90% cure rate in 7 days) You can get it at: www.woodlandessence.com
If adrenal function is low (patient has a low cortisol), they will not respond to antibiotics.
He told of a patient with intractable babs. They were treated for babs for 5 years and were not cured. Then, he gave them 1 teaspoon of cryptolepis 3 times per day with Byron White herbs. This is making the patient feel well. He hasn't found any side effects with the cryptolepis. It may not be curative. It lowers the parasite load and strengthens the patient's immune system.
Brucellosis also causes night sweats, so check for this in a patient with night sweats.
Use malarone for the patient who can't clear babs. Low dose to maintain them.
We need new treatment options for babs.
[end of notes]
Posted by islander (Member # 40104) on :
TF thanks for the info on Babs, I'm starting to wonder if I have it. Where did you test to find out you had it? Dr. H reccommends iGenix FISH test right? I have low adrenal function and have not been responding to anti biotics, I've never heard the two linked before. Maybe that's why I'm not getting anywhere! So thanks for sharing! Where is Dr. H located??
Posted by TF (Member # 14183) on :
islander,
I'm glad these notes helped you! It was a great talk.
Nine years ago, my lyme doctor tested me for babs and bart through Igenex. He ordered the FISH and one other babs test. The FISH came back positive, the other test negative.
If ANY babs test come back positive, then you are positive. The FISH is done by using a high-powered microscope to look at a sample of your blood. If they see any babs parasites inside your red blood cells, then you have a positive FISH. So, if it is positive, it is absolutely conclusive.
The trouble is, there may not be any babs in the very small blood sample that is put under the microscope. So, the best thing is to do a number of tests, including the LabCorp test if looking for babs duncani.
Eight years ago I completed my lyme treatment and I am still symptom-free, enjoying my life. I thank God for that every day. I have the same life I had before lyme disease.
Send me a private message and I will tell you Dr. H's name and location. Just click on the envelope icon above my post.
In the U.S., generally the top docs automatically treat every lyme patient for babs (if the person has been sick at least a year). Burrascano says that 100% of lyme patients who have been sick at least a year have coinfections. So, take that statement to heart. If you have been sick at least a year, you don't have just lyme disease.
It is my understanding that babesiosis is the most common coinfection. This year, Dr. H said at the lyme conference that parasites are the number 1 coinfection seen with lyme! That was startling and new!!
Posted by nursejed1 (Member # 25155) on :
Hi! I have been sick since 1980's mostly nervous system disease severe neuropathy I've been told its lyme and bartonella I just don't get better. I am in connecticut. Could you send me Dr H's name and location. Thank you so much for your help.
Posted by didogs (Member # 40101) on :
I hope your good days continue. That is great news!!
Posted by Lymetoo (Member # 743) on :
Happy news!! -
Moving to General Support
Posted by Lymetoo (Member # 743) on :
![[Smile]](smile.gif)