Only other Spouse members can see posts in this group
Paul
Posted by Keebler (Member # 12673) on :
- Paul,
That's great, and nice to have it a private group.
Hope you are doing okay. -
Posted by KentuckyWoman (Member # 38894) on :
I'd love to recommend this to my hubby, but he still thinks I don't have lyme..
But just on the way OFF chance.. I will email him this link.
How does one "ask to join?" and how can you tell if they are the spouse only?
Just wondering.. kw
Posted by Keebler (Member # 12673) on :
- Not sure anyone can ever tell on ANY website, even here, if people are always who they present themselves to be.
Most are though, still, it's best to never, ever share certain specific personal details on any website.
Most sites have suggested guidelines regarding posting - for personal security.
Even with safety measures in not sharing any specific personal detail that could be recognized by a friend, neighbor, coworker (or a stalker or a thief), there is still so much of value that can be discussed. -
Posted by Paul Mall (Member # 27581) on :
I pretty much ask that they are spouses of patients.
And like Keebler says you never know for sure.
But I do personally monitor this group and if I see anything that looks out of place I will handle it.
Paul
Posted by Donna Campbell (Member # 52157) on :
I know it has been already 7 years, however i was wondering if there is still an active group on facebook.
Posted by Kylie (Member # 52158) on :
Ohh dude, it has been freaking 7 years since 2013. However i would like to tell you that i was a member of a facebook group also related and dedicated to the spouses of the Lyme patients. So those guys have actually helped me a lot. I mean they gave me so many great advice, they recommended me a great doctor in my area. I was really grateful to those people, however i felt really bad that the group was closed, because they also had a group on instagram and it was banned due to the fact that they had to buy followers worldwide for instagram, and their facebook account was connected to the instagram one.
[ 08-24-2020, 10:48 AM: Message edited by: Kylie ]
Posted by Ann-Ohio (Member # 44364) on :
Thanks, Paul! What a good idea!
Posted by Steven Morrison (Member # 52202) on :