I didn't think I'd like this because she has tons of money and is on a show that I wouldn't watch at gunpoint, but she verbalized the lyme experience very well.
[ 04-10-2013, 07:07 PM: Message edited by: Lymetoo ]
Posted by jessicabooklover (Member # 39427) on :
This is actually incredibly moving. Thank you for sharing this droid. PS- I watch the show..but only in an ironic way . Seriously, this is a great video. Jess.
Posted by Keebler (Member # 12673) on :
- Thank you so much. I am very impressed with Yolanda's presence. Such a wonderful talk. -
Posted by Keebler (Member # 12673) on :
- HYPERACISIS alert:
Alert for anyone with hyperacusis or sound triggered seizures:
BEFORE starting: turn down volume.
There are about a dozen sharp sound stabs - mostly from the popping of the microphone with certain words. There is one near the very beginning and a few more throughout.
Keep your finger on the volume control (for applause at the end, too).
If you wear headphones (since most computers have horrible speakers, be sure to not have volume at your tolerance height, but a bit lower. Setting the headphones in front of ears will also help keep the "popping pressure" from hitting the ear nerve too strongly.
Even with this, it's very important to see / hear this presentation.
Very good. Made me cry. And it still amazes me that most regular doctors just don't want to even try to comprehend or believe those with such experiences.
Yolanda's courage is a gift to us all - it's so good of her to step up and speak out. -
Posted by Lymetoo (Member # 743) on :
That was GREAT!!! Moved me to tears also. She gives me hope that the word will get out! (?)
Keebler.. you need to turn the speakers down on your computer. I had to turn this up all the way just to hear it. I would guess it's because my computer's speakers are fairly low. Just a tip.
Droid.. people are people, no matter how much money they have or do not have.
Posted by droid1226 (Member # 34930) on :
Lymetoo. I know. I was being somewhat facetious. This is a vid that lyme sufferer's can show along with Under Our Skin to people for a better understanding.
Really happy she stepped up.
Posted by Lymetoo (Member # 743) on :
Good! I hate it when people think the rich are different from them. Not necessarily true. I'd like to get rich to prove it!! Posted by Keebler (Member # 12673) on :
- Tutu, my speakers are set at the lowest possible volume, it was still very loud to my ears, not so much the voice, but the popping of the microphone with certain words.
Stil, I never turn my volume up over the mininum possible setting. Each computer will be different with volume control, though, and the setting from the sites can vary, too.
Some videos are just set to start loud, so I learned a long time ago to see where any particular video's volume is set.
I can hear my TV on a volume of "1" really but listen with it at "8". It can go up to 100. When friends come over, they want it about 30. So, that just doesn't work. -
Posted by Lymetoo (Member # 743) on :
I always have my mouse ready to adjust it because sometimes when I'm on the computer my husband is sleeping.
Posted by lax mom (Member # 38743) on :
Cried my eyes out when she spoke about her children's smiling faces afterschool.
She described brainfog perfectly.
Posted by Lymetoo (Member # 743) on :
Me too!
Posted by Keebler (Member # 12673) on :
- She also described perfectly the inability of the brain to engage in thoughtful gracious debate when she become frustrated and called someone an ***. I've done that, too, (twice) and I never talk like that.
Amazing. She was amazing in how she encapsuled some of the experiences that I've never been able to verbalize. -
Posted by surprise (Member # 34987) on :
My face is wet with tears.
No-one understands it like we do. No-one.
Posted by Lymetoo (Member # 743) on :
If you are on Facebook... please share this one with the world.
Posted by lpkayak (Member # 5230) on :
i remember this:
"children's smiling faces afterschool."
mine learned to carefully kiss me on the cheek cuz if they wiggled the bed i was in excrutiating pain
but question...did she say she went to the place in FL that has mixed reviews? i missed it
Posted by lax mom (Member # 38743) on :
I wonder about the 90 day timeframe for abx. Is that what ILADS-type Drs are doing in Europe?
Posted by birdie67 (Member # 35994) on :
Thank you for posting link. Brought tears to my eyes, she explained it so well!
Posted by Lymetoo (Member # 743) on :
kayak.. yes, she went to the one in FL that some said was not that great
I hope she is still on orals.
Posted by lululymemom (Member # 26405) on :
Great video! Awareness is everything with this disease..
Posted by glm1111 (Member # 16556) on :
Just saw this. She is such a lovely, down to earth woman. I could feel her fatigue through the video. I left her a message on You tube to come and join us here at lymenet.
Does anyone know how to leave her a message on twitter? I joined so I could do that, but somehow my message doesn't appear. Don't know what I am doing wrong? Thanks for posting this droid.
Gael
Posted by droid1226 (Member # 34930) on :
Gael, on the left under your account name. It's says "compose new tweet" and just put in @YolandaHFoster yada yada...whatever you want to write. Hope that makes sense. She reads her tweets and retweets a lot of people.
She is getting massive support through Twitter. It's really the best resource for lyme patients to communicate and organize.
There are tons of people with lyme on Twitter. I definitely recommend people here join up and find other lyme patients.
Posted by glm1111 (Member # 16556) on :
Thanks droid. I did do that, but then can't find it. Is it supposed to say...post? Or does it just go to her direct?
Gael
Posted by droid1226 (Member # 34930) on :
Gael, you can't direct message her unless she follows you. Once you hit "tweet" underneath the box, it will show up on her end. If you want to see it, click on your profile and hit tweets and all your tweets will show up on a timeline.
Posted by Kudzuslipper (Member # 31915) on :
wow. very powerful.
Posted by glm1111 (Member # 16556) on :
Oh, okay...thanks so much droid. It would be great if she came onto lymenet.
Gael
Posted by beaches (Member # 38251) on :
Wow, her speech was wonderful and she delivered it in a strong, empowering way.
And she looked beautiful to boot. I think she shot down that whole "but you don't look sick" thing.
![[Smile]](smile.gif)
. Seriously, this is a great video. Jess.
![[Big Grin]](biggrin.gif)