I went to 13 doctors. Before I quit looking. Spent thousands and had two surgeries before I found one who would listen.
All said lyme doesn't. Exist, I was faking it or doctor or drug seeking. One even said suicidal.
Some I left their office crying.
And lots of time I got stuck with the doctor bills cause the insurance said lyme does not exist.
How many did you go to???
Posted by daynise (Member # 39609) on :
At least 35. Most of those are from early on- last year i finally wised up and stopped trying to get help for most things from any doctor who isn't Lyme Literate
Have been called crazy and told it's all in mty head by most
Been sick since 1998 with RMSF and Lyme since 2002, now 100 lbs, bedbound. i am 33 years old i have never been well in my adult life
I want to send every doctor who turned me away a picture of me now and ask them is it still all in my head?
Posted by lax mom (Member # 38743) on :
I was told by an evil ER Dr:
"At some point, when all the tests keep coming back normal, you're just going to have to accept that it's psychosomatic".
I have lost faith in Drs. Yes there are the few who use their brains and think outside of their limited med school education, but they are few and far between.
Too many Drs brush off symptoms. Not only with Lyme, but in general.
Posted by linky123 (Member # 19974) on :
Over the 19 years it took me to get a dx, I honestly lost count.
I gave up for a number of years until I heard a doctor being interviewed on the radio about 'chronic fatigue'.
Turns out he was an llmd; but obviously couldn't say so on the air.
I went to see him (out of state of course) and finally got a proper diagnosis.
Posted by Lymetoo (Member # 743) on :
I sure lost count. Too many years of no diagnosis or the wrong diagnosis.
Posted by Razzle (Member # 30398) on :
I counted. It took over 100 doctors for someone to finally test me for Lyme "on a hunch."
Posted by surprise (Member # 34987) on :
Zero. I had absolutely no idea I had Lyme, Bart, parasites. I got an anti- depressant and Trazadone for sleep after
my last child was born, because I was stressed with anxiety. The memory issues: I secretly thought I was doomed for Alzheimer's. Wrote everything down to cope.
I blamed myself for my ailments and symptoms- that I wasn't 'enough'. Or, I blamed it on the stress of trying to cure my daughter of autism, her challenges,
my former high paced career, etc. etc. Outside stuff, or my failings as a person.
On a whim I had my daughter tested, then read about Lyme, then we knew-and the LLMD knew the first time he met me, I was there for my daughter. He told me I needed testing that day.
But ZERO Dr.s I went to and tried to figure out an illness for myself. And no memory of a tick bite ever.
Posted by canadianmama (Member # 36298) on :
Many.
I just found the note pad from the first doctor I took my son to when I realized he could have lyme.
She recommended taking highest dose possible of claritin for a month straight -"to cross allergies off the list"
To "Pre dose" Ibuprofin at the highest dose for weight possible, again for a month.
She gave him a abx script for penecillin for a "sinus infection"
Besides all of these suggestions being bad for him she did all of this WITHOUT SEEING HIM!!! She refused to let me bring him in from the waiting room as I had gone in to talk to her alone, as I was upset and didn't want to scare my son.
Just one of many docs that didn't help, and did the exact wrong thing.