Looking for those with experience with Kaiser ONLY! or if you are an ACTUAL medical malpractice attorney. ATTORNEYS IN CALIFORNIA CAN PRIVATE EMAIL ME!
PLEASE do not post if not a past or current Kaiser member.
What is your experience with Kaiser?
My test result in which Kaiser says I do not have Lyme. They even ignore results from labs they use.
Positive Advanced Laboratory Services blood culture test - Positive after only 6 days
IgG—CDC/IDSA positive 18,23,28,30,39,41,58,66,93,31,34 - positive 9/10 CDC/IDSA bands plus bands 31 & 34
Posted by lax mom (Member # 38743) on :
Sorry, I'm not a Kaiser patient. What's the point of all of this?
No insurance company accepts a Lyme diagnosis past 1 month's treatment. Plus, it's common knowledge that Kaiser is the worst of the worst.
Stress only makes you sicker.
Posted by Lymetoo (Member # 743) on :
Moving to General Support
Posted by willseremak (Member # 41955) on :
quote:Originally posted by lax mom: Sorry, I'm not a Kaiser patient. What's the point of all of this?
No insurance company accepts a Lyme diagnosis past 1 month's treatment. Plus, it's common knowledge that Kaiser is the worst of the worst.
Stress only makes you sicker.
To find a attorney with the common sense to realize the strength of my case given a blood culture, IgM (active infection), and multiple IFA, ELISA, and western blots by CDC/IDSA standards.
Wouldn't it be the start of a victory for all of us we we could at least get a verdict when we aren't treated when positive by CDC/IDSA guidelines.
Also, all but one of these tests are from before I was treated with 30 days of doxycycline (for "unknown bacteria infection")
A presentation by the CDC in June 2013 even states "Immune response decreases when prophylaxis/treatment has worked->
infection is cleared BODY HAS NO REASON TO CONTINUE PRODUCING ANTIBODIES"
"If prophylaxis FAILS AND THE PATIENT IS STILL INFECTED, THEY WILL CONTINUE TO DEVELOP ANTIBODIES AND SHOULD TEST POSITIVE ON CONVALESCENT TITERS"
I added the CAPS.
I emailed the lymedisease.org/ twice. They didn't respond. If they aren't even able to see how this is an easy win than none of us have any chance.
Again, if you are anyone other than past or present Kaiser patients, California malpractice attorneys, or lymedisease.org please don't post. Send me a private email.
Some people feel they need to post to every thread and I'm trying to keep this thread focused.
[ 10-20-2013, 08:48 PM: Message edited by: Robin123 ]
Posted by willseremak (Member # 41955) on :
I made a big typo!!!!
Also, all but one of these tests are from AFTER I was treated with 30 days of doxycycline (for "unknown bacteria infection")
Posted by Carmen (Member # 42391) on :
CDC guidelines say that you dont have lyme if symtoms persist after 30 days of treatment. I dont think you stand a chance...
and of course this is part of the reason that they dont accept dark field live blood analysis because it shows the truth.
Only the type tests you had done are accepted as proof regardless of how inaccurate that they can be.. Better to move on and find a cure on your own.
go to netflix or hulu and watch "Under Our Skin" to understand the criminals behind this and know who they are
[ 10-20-2013, 08:47 PM: Message edited by: Robin123 ]
Posted by Keebler (Member # 12673) on :
CALIFORNIA LYME SUPPORT GROUPS - contact detail at the bottom of page. Check with others through the groups. -
Posted by Robin123 (Member # 9197) on :
Kaiser stands down on diagnosing, testing for and treating Lyme. You are starting with a big zero-interest there.
The problem is also the IDSA guidelines which any schlocky place can point to to do nothing for nobody...
Posted by elara (Member # 41819) on :
Kaiser successfully stands behind the "Standard of Care" concept in medical law. If you feel you need to be treated, its hopeless beyond the initial abx.
The bigger question is PTLDS and Chronic Fatigue which are accepted conditions. I'm in a Chronic Fatigue CDC study.
So it might be possible to get Kaiser to treat symptoms but since they don't believe in persistence, it won't be abx of any kind and Chronic Fatigue is a major mystery so all they can do is help symptoms.
I've had difficulty getting any Kaiser doctor except my GP to even acknowledge Lyme but that carries no weight in ID, neurology or any specialty for that matter.
They use the specialists to deny help while the GP's pretend to care.
[ 10-21-2013, 09:42 PM: Message edited by: Robin123 ]
Posted by Keebler (Member # 12673) on :
- As Elara mentions above . . .
If you find a LLMD they may be able to guide in what good your regular PCP may be able to help with certain Rx (not to address lyme, though) or for certain blood monitoring tests here and there.
The umbrella (mis)diagnoses that often go with lyme (FM, CFS, etc.) may be handy for certain situations in symptom relief.
Before talking to your Kaiser PCP, it would be best to discuss in detail with LLMD and support group members specifics so that it might to smoothly. Best to not divulge the name of your LLMD, though.
Most LLMDs will know that any Rx needs to have some liver support. Most other doctors do not. Just keep that in mind if you get other medicines for symptoms from other doctors. Some Rx are toxic to the ears &/or liver. Support may help but may not be enough for all situations.
Also consider that magnesium can often very nicely address a whole range of symptoms that go along with lyme. Detail about that here, too: