Pretty good list! You'd think after being around the block a few times she would know it's not "Lyme's."
Posted by Nancy L (Member # 42733) on :
lol Lyme tu, don't be so picky!
Posted by Keebler (Member # 12673) on :
- The concern for me when someone consistently uses the wrong name is that they may not have actually been treated properly by a true lyme literate doctor or read some of the key articles to help them facilitate their treatment.
Most often, "lyme's" when used by a doctor is an indication that they are not LL. Same with articles, that the author may not be either. And then when others read that, they may then go about using the wrong name, not even knowing.
I could not read most of this due to tight spacing still, it seems to highlight that having lyme is a character builder and it helps to roll with it. And that is certainly true.
I was able to zone in on one that rings so very clearly for many (I had a doctor once tell me that NO ONE could have all those symptoms, no one. He kicked me out):
27. When you fill out a “symptom survey” at the doctor’s office, you begrudgingly check off 47 of the 60 symptoms listed. If you were being completely honest with yourself, you’d probably check off 52. -
Posted by Carmen (Member # 42391) on :
Well we cant all be as knowledgable and proper in english gramma as all us lyme brains here Posted by Keebler (Member # 12673) on :
- This is not about grammar. Not at all. And it's not a typo, used consistently. It's more about making sure that the source of information for anyone who thinks that "s" is the right word, that they assess whether they've gotten proper care from a truly LL doctor.
That "s" is an important distinction and a way we can start asking more questions if a doctor uses the wrong term . . .
or someone is selling something they say is a cure for "lymes" it is clear that they are not LL, have not really studied lyme so the "cure" they offer is likely bogus. I've seen many such ads, it's rather mind-boggling.
As for others (us non medical, non-selling posters) who add an "s", it's just good to know where they might have gotten used to hearing the wrong term and know where ever that might have been, you can bet those doctors are not LL. -
Posted by beaches (Member # 38251) on :
Totally agree with LT and Keebler. This is not about grammar or being picky.
Posted by kidsgotlyme (Member # 23691) on :
Also agree with LT and Keebler. Anytime I see people use the word"Lymie" or Lymes, I cringe inside. Not because of grammar issues, but because it shows a lack,of knowledge about LD in most cases. My DD will NEVER be a Lymie.
She is a person with LD. Period.
Posted by GretaM (Member # 40917) on :
The line that resonated with me is being able to swallow handfuls of pills in one go! So true!
Posted by Keebler (Member # 12673) on :
- Focusing back on the honest content shared that will help all better understand, she is to be commended for all endured, as she wraps it up with:
"30. You’ve been sick every day of your life for more than 10 years and still manage to be optimistic enough, and brave enough, to wake up every morning and do it all again."
Spirit of a true winner. -
Posted by randibear (Member # 11290) on :
Well I actually saw lime disease the other day.
Couldn't believe it. Thought it was some tropical illness or allergy.....
Posted by Keebler (Member # 12673) on :
- I wish (and so do the residents of Lyme, CT) that it would be called by its real name: borreliosis / neuroborreliosis, etc.
In writing, Bb (usually in italics such as in articles) can be used. Bb works well for shorthand in discussion threads, too. But it stands only for one strain: Borrelia burgdorferi sensu stricto. There are hundreds of strains but Bb is the only one tested for in the U.S.
To use the real name - and really just about everyone with borreliosis has neuroborreliosis - but either term would impart better credibility and sense of it really being a complex matter. When we speak of it, we can certainly do that. But everyone seems to want to put a short nick name to everything.
At the time (late '70's) the town's name was smacked onto this cluster of symptoms, they did not know the cause. Still, once they did, it would have been nice had a concerted effort been made in the medical community to call it by a medical name.
By not doing so, it was just one decision of many to discount the serious and complex nature of this. -
Posted by Shiela (Member # 28681) on :
Really, that blog made me feel better. Thank you for posting it.
Posted by beaches (Member # 38251) on :
quote:Originally posted by Keebler: - Focusing back on the honest content shared that will help all better understand, she is to be commended for all endured, as she wraps it up with:
"30. You’ve been sick every day of your life for more than 10 years and still manage to be optimistic enough, and brave enough, to wake up every morning and do it all again."
Spirit of a true winner. -
Yes, absolutely. Kudos to her for writing this and hoping she gets better sooner than later.
![[lol]](graemlins/lol.gif)