She has been in the fight for ten years now. She is now 25, attends college full time, in her junior year; carrying a full load. She told her doctor she has energy she hasn't had since she was ten.
Those of you who have been around a long time, know the journey we've been through. Just wanted to give some hope.
She is not cured. She manages her life. Vegan, one hour of exercise every morning, Ivermectin for two years has really taken her pretty far. Sometimes adding Bactrim and Doxycycline. She did three months of Candigone and AZO Yeast to fight that beast.
She has been on many antibiotic combos, so it's been a long haul.
Posted by Carol in PA (Member # 5338) on :
Kelmo!
I'm so glad to hear that your daughter is doing well. I remember several years ago when we were in the Lyme chatroom, and discovered that our kids had been born within a few hours of each other.
Posted by lpkayak (Member # 5230) on :
Excellant! My kids seemed to survive it too its impportant for those with sick young ones to know there can be a happy ending
Posted by surprise (Member # 34987) on :
I thank you very much for posting. YOU are amazing.
Posted by kam (Member # 3410) on :
Posted by Lymetoo (Member # 743) on :
Good job, Kelmo and daughter!!
Posted by linky123 (Member # 19974) on :
So happy for you!!! Posted by beaches (Member # 38251) on :
This post really warmed my heart.
I am so happy for your daughter and you. I imagine you've been through hell and back more than once.
Thank you so much for telling your story. It gives hope to so many of us still "stuck" in this battle.
Posted by kelmo (Member # 8797) on :
She has not held a job, and she still lives at home. I don't want to give the false impression that she is cured. She is ten times better than she was ten years ago, is all I'm sayin' But, isn't going forward a good thing to hear?
Posted by beaches (Member # 38251) on :
OMG yes absolutely! Going FORWARD is such a wonderful thing! I didn't get the impression that your daughter was cured...just doing better than she had been and moving on with her life.
I do get what you are saying. My DD is going forward too, and is better than she has been but she still has a long way to go. Like your daughter, she too has been on a multitude of abx combos over the years, not to mention tons of natural stuff. And it continues on...
I would be thrilled to pieces if she could carry a full college course load. Fingers crossed that will happen next fall. That to me would be the icing on the cake and feeling like we finally reached the top of the mountain.
Posted by beaches (Member # 38251) on :
Oh and PS, I have friends whose healthy kids are still living at home well into their late 20s and early 30s!
Posted by Anthropologista (Member # 35483) on :
So good to hear that! Good luck to her.
Posted by just don (Member # 1129) on :
Hi Kelmo,,,been wondering how things are for you,,,now we know,,,thanks for the update
Posted by kelmo (Member # 8797) on :
Don! How are you!?!
Posted by just don (Member # 1129) on :
Doing pretty good for no better than I am.
Getting up at 3:30 am to go to work sucks tho.
I have a second gig and wont get off till 10:30 tonight
But there is a few hours of nap time between I hope
But that turn around from tonight till tomorrow morning work time makes a short night tho.
Mostly work for the insurance I buy these days,,,in case I break my leg again,,,a 50K disaster.
My dad died in August so had to move home to keep mom out of the nursing home. She would NOT like it there.
Every day she lives at home is a GOOD day according to her.
Cant walk, cant see, barely able to stand, mostly in an electric wheel chair and spent yesterday baking up a storm.
Just needs some help with some things, seeing and lifting. And hoping she doesn't fall.
Takes her hours what she used to do in minutes. She has osteoporosis so bad she is half as tall as once was. Bent over to the waist.
Life is good here, good food, warm, and plenty to do. Projects out the ying-yang.
Posted by kelmo (Member # 8797) on :
ying yang...if you had said wazoo, I woulda thought you were from Oklahoma.
My dad just took a dive on Alzheimers and will need 24 hour care. I have been his primary care for four years, on top of the ten years for my daughter.
I crashed and burned in June, and my sister came in from out of state to give me three weeks.
After his hospital stay, SHE decided he should go back home. She pretty much told me I did nothing. Now, she is discovering she can't do it and is telling me I have to step to the plate. HUH?
She has wrecked my life. I love my dad, but I'm going to have to go live with him and my husband and daughter will be on their own, starting December 1st. My sister said she would cover a month here and there, but offered to pay me $1,000 to take her months.
She and her husband are both retired. I'm going to probably be joining my dad when he finally goes. My husband had a massive heart attack and lost his job of 38 years. He is working a temp job, our medical insurance went up to $1500/mo. I work three hours a day.
Life stinks. But, I'm glad you are able to do what you do. I am so glad I met you here, in this place.
Posted by beaches (Member # 38251) on :
Chiming in here Kelmo and hoping you don't mind...
Is there any other option for taking care of your father like a nursing home or in-home hospice?
It seems to me that it is an unreasonable expectation for you to move in with him given your own situation with your daughter and husband.
As the wife and mother, you belong with your own family IMO especially given your own family's circumstances.
Your sister obviously is not supportive or understanding of your situation and is perhaps toxic?
It might be prudent for you to just cease all contact with her at this point and focus on getting your dad situated in a facility close to your home, or in your home with assistance from hospice.
I hope I am not overstepping with this post. I wish you all the best in this situation. I am sure it is extremely difficult for you.
Posted by just don (Member # 1129) on :
Kelmo,
Any chance of your dad just moving in with you,,,even if it is crowded,,,or a bigger place so you can be all together.
How about a big house for you, husband and daughter and a in law apartment for him?
If he isnt well enough for his own would he qualify for public assisted living close to you?
How far away from you now does he live? Commute distance or farther?
Any home health care help him out?
Sorry to hear your having all these problems. Anything we can do to help you out with life.?
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