Why did she not mention these multiple other strategies in her protocol for MS in her Ted Talk?
Obviously, the thing that jumps out at me was minocycline. But there were many things beyond her "caveman diet" that got her better. I'm sure colleagues pressured her and blah blah..
Anyway. Her Ted talk should have a large asterisk point to this case study.
Posted by lpkayak (Member # 5230) on :
What is the nems?
Do you think the clean diet talked about for lyme is just as good? It is not necessary to eat so much...9 cups veg and fruit a day?
She calls rice cakes and puffed rice and cream of rice whole food...that confuses me
However...my sx are going in her directuon fast...exercise intolerance...inability to sit upright in chair-i need reclin er...sleepy a lot...
I do respond to "mito supps" ... but they are really expensive and i would like ti cure the p rt oblem...not just keep medicating with supps...i want to live not keep putting out fires
Thanks for reply...i wish we could get a conversation going with those who know about her
Posted by Keebler (Member # 12673) on :
- Rice cakes can be just terrible in so very many ways. -
Posted by Keebler (Member # 12673) on :
- I felt "deceived" by her book / TED Talk for failure to disclose things OTHER than JUST the diet - for MS (and then, of course, we can all see the correlations).
Mitochondria, a main focus of Wahls' work - also echoes big with lyme as lyme can damage mitochondria, big time.
Of course, it would seem logical that there would be a full range of stuff besides that but it just seemed she gave all the credit in her talk to the diet . . . or I misread it.
That aside, I did get her book but as it goes, I really can't read books very well in detail or from front to back (many factors) yet I would like to support her advice for lots of vegetables.
But who can afford all that?
Certainly not most of us. Not after being forced out of work due to illness that when untreated for so long, as is so often the case.
So, we just do the best we can with excellent foods, real foods and the best quality of select nutritional supplements. Prioritize.
I try to cover many bases with something like Stinging Nettle LEAF powder, with its many nutrients. But a powder is still not enough as food so the vegetables still need to come along, with good proteins and fats.
The prep work, though, is nearly impossible many days. Getting veggies without mud on them really helps. For those who can't shop for themselves, it can be a trick teaching others how to select the best. At times, frozen may have to due.
I do strongly support Wahls' advice for veggies with all meals of the day, especially breakfast.
Best to always have at least 2 different colors of veggies with each meal, and rotate. Veggies as snacks, too.
Low glycemic berries are also very important if tolerated. Even some with candida can. OLE (Olive Leaf Extract) can be a wonderful helper to keep candida in check. Seagate is the only brand I would recommend, though, as their growing, harvesting, processing is tip-top). -
Posted by Keebler (Member # 12673) on :
Topic: Wahls' protocol - minocycline? -
Posted by lpkayak (Member # 5230) on :
But you guys she did some electrical stim thing too called. Nems...do u know what it is or how important it is
I appreciate both of u helping me understand what is going on here. Thanks
Posted by Keebler (Member # 12673) on :
- I do recall reading where she wrote about having done electrical stimulation of some kind, but I don't recall if it was in her book or elsewhere. And I can see how that would help - in her case - to help "revive" nerve endings. She couldn't walk for a time.
But for those with lyme, it's not advised. I did not know that at the time I did it.
Electrical stimulation nearly killed me (a series of several sessions, I was determined to stick it out as I was assured it would help lessen "fibromyalgia" pain).
Far too excitatory to my nerve endings & adrenal system, triggered the most intense seizures I had had to that date. Resulting injuries caused more pain, for months afterward.
Dr. B advises against it, in the PT section of his guidelines. Wish I had known that before I wasted so much money to get fried. -
Posted by Keebler (Member # 12673) on :
Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
Page 32. Section: PHYSICAL THERAPY (if needed):
. . .
2. Relieve pain and muscle spasms utilizing multiple modalities as available and as indicated:
massage, heat, ultrasound, and passive and active range of motion.
DO NOT use ice or electrical stim unless specifically ordered by our office. . . . -
Posted by lpkayak (Member # 5230) on :
Ty. For this and all the rest you do for us
Posted by droid1226 (Member # 34930) on :
She completely misleads the MS community. Progressive MS too, the worst kind.
This video could actually be more damaging than no video at all.
Posted by Keebler (Member # 12673) on :
- It's also sad because friends and family of those with "MS" or related neurological conditions may think a person SHOULD be able to recover just following the book.
I'm not sure she intended to mislead and actually may not even understand how it does. What she offers with nutrition detail is important, it's just the context is not as qualified as it should be. -
Posted by jackie51 (Member # 14233) on :
I thought there were multiple videos that described her protocol that got her well. I recall taking notes from it a few years ago.
What works for one doesn't always work for others. Wahls shouldn't be so adamant.
Keebler--sorry to hear about the frying. Good to know.
Posted by droid1226 (Member # 34930) on :
Good point Keebler. She leads family on thinking(about the MS sufferer) "if they were really committed to getting better, they'd just follow the Wahl's protocol"
Posted by Catgirl (Member # 31149) on :
Lpkayak, it sounds like it was the combination of e-stim and nutrition that worked. Halfway down on this link, starts with: Terry Wahls, For four years, I really did a lot of e-stim...
Also, more info, different piece but halfway down the link below (e-stim...it makes athletes grow muscle), paragraph starts with: Then in summer 2007... But then he added in micro nutrients and focused on reducing toxins.