- Not an exclusive or formal list. Remember to connect with STATE and LOCAL lyme support groups for the best area options. Just always check to be sure they are of like-mind with the groups above, with ILADS as the educational base.
Each group above has a unique focus, yet they are all fully "lyme literate" - as well as tick-borne infection literate (as lyme rarely travels alone). All are ILADS "minded" -- bringing them all together. -
Posted by Keebler (Member # 12673) on :
Tick-Borne Disease Alliance (TBDA) & the Lyme Research Alliance (LRA)
Before this, they were Turn The Corner and Time For Lyme. -
Posted by Keebler (Member # 12673) on :
- Now, it may be that you are looking for other discussion or research study groups - or social networking.
Others can likely better speak to those. So if that's what you had in mind, other than first going to the organizations' sites above to see what they have in the line of what you seek, you might clarify what kind of site / experience you may be looking for. -
Posted by Robin123 (Member # 9197) on :
You're certainly welcome to discuss things here if you want and see what folks have to say.
There are lots of active Lyme sites on facebook! Also MD Junction, Healingwell - a few I'm aware of.
Posted by k84 (Member # 32738) on :
quote:Originally posted by Keebler: - Now, it may be that you are looking for other discussion or research study groups - or social networking.
Others can likely better speak to those. So if that's what you had in mind, other than first going to the organizations' sites above to see what they have in the line of what you seek, you might clarify what kind of site / experience you may be looking for. -
Thanks for asking for clarification. Basically looking for other social discussion/study groups.
I don't do facebook, for many reasons.
I suspect however at least some of the activity and higher traffic once seen at this discussion group has moved on now to social networking groups due to the rise of their popularity.
Posted by Lymedin2010 (Member # 34322) on :
Yes, many have moved to Facebook.
Posted by lpkayak (Member # 5230) on :
i tried the healingwell one but i cant do sites that make you type the crazy letters to prove you are human...i really cant do it thats why i cant do gmail and my whole family does
Posted by Lymetoo (Member # 743) on :
I used to hate gmail .. now I hate yahoo also. I hate when they STACK your emails. Hard to read them that way!