I know exactly where Grand Lake is!! We drive through this area between MO and TX twice a year.
Posted by lpkayak (Member # 5230) on :
Thats creepy. But im not positive it will cure her. How much is rmsf like lyme? Did it really stay in her extremities? She had a fever...couldnt it have spread?
I hope she is ok. But many yrs ago a nyc podiatrist had me sceduled to amputate both feet because the pain(that turned out to be bart) was so horrible even tho he had tried evrrything he knew
I know it sounds crazy but my appt to plan the surgery was the next mondy and that thurs, fri i took off work to go to a lyme conference. ..i think it was the one where ilads got going
So talking to docs inbetween presentations they told me if my feet werent therr the bugs would just find another place to attack
I never saw that doc again
Posted by Lymetoo (Member # 743) on :
Her extremities were turning black. They HAD to amputate.
She may still be sick. Heaven knows they won't treat her long term in OK.
Posted by Tincup (Member # 5829) on :
UGGGGGGGG!!!!!!!!!!
A dreadful story and it didn’t have to happen. Prayers going out to her and her family.
This is another reason to NOT wait. We need people and doctors to GET IT RIGHT- TREAT THE BITE!!!
Please use this opportunity to educate someone today. You may save them from this kind of senseless destruction and hardship.
Thanks Tu Tu for sharing this sad story. I am passing it along with a note for others to educate someone new.
Posted by lpkayak (Member # 5230) on :
I didnt realuze they knew she could still be sick. They are acting like shes better except for amputations. I hope she is...but it its like lyme and cos she probably isnt
Posted by Lymetoo (Member # 743) on :
I don't know if they realize she could still be sick. Surely she has Lyme as well?
Tincup, I put it on my Facebook page as well.
Posted by Lymetoo (Member # 743) on :
It just dawned on me that she must not have had a rash ... a typical RMSF rash .. or surely they would have thought of checking for RMSF??
My mom had RMSF once and it took them a week to figure out what she had. I THINK she had a rash, but not sure. I was just a kid.
PS.. Took them a week while she was in the hospital the whole time! So they ran tons of blood tests.... but nary a one for RMSF until her doctor got wise. This was before Lyme was even "discovered."
[ 08-15-2015, 03:47 PM: Message edited by: Lymetoo ]
Posted by Edessajarrue (Member # 35310) on :
Lymetoo - RMSF? Rocky Mountain spotted fever?
Posted by randibear (Member # 11290) on :
sounds so drastic...
Posted by Lymetoo (Member # 743) on :
I had no idea RMSF could do this. Are there different strains of it, some more virulent than others? That's what I would guess from reading this.
Posted by Lymetoo (Member # 743) on :
Who knows? I'm sure it was a rare occurrence but I guess any bacteria can do anything it wants to.
Perhaps she was already weakened by Lyme she didn't know she had?
Posted by junebug6 (Member # 45427) on :
My friend who lives in the desert, who already has Lyme and Babs, was bitten again by a tick and diagnosed with RMSF and Typhus (a very similar bacteria). They told her if she hadn't already been on doxycycline she probably wouldn't have survived. Yeesh.