For almost 5 years my children have been gone taken away at ages 8 and 11 because they had lyme and missed school. They would not tutor my kids and accused me of munchausens by proxy.
I only see them 2 hours supervised a week for 5 years my little girls are 12 and 15 now living with an abusive father.
My oldest daughter died last year at age 28 due to lyme and not getting help.
I have written to everyone. All I get is "try your legislators" Where are the lyme advocates? Are their any activists? 5 years of begging for help and no real reaction.
I am sick myself and have trouble getting into real activism just now. If anyone knows of anyone who can help. I tried the LDUC, all the organizations.
Thank you. I need people who can be real advocates and activists to save my children. My middle child needs help and they both need and deserve their loving mother back and their grandparents.
................................................
(breaking this up for easier reading for many here)
[ 12-09-2015, 02:40 PM: Message edited by: Robin123 ]
Posted by poppy (Member # 5355) on :
There is so much need and injustice in lyme and the activists are usually sick themselves. I doubt they can take on a case like yours, even though it is such a terrible situation.
Have you checked into pro bono legal services? Maybe have a look at this site as a starting point.
- The thing is that if an attorney is not LL, I'm not sure they could help much. I come from a family of attorneys and none could come to understand the least bit of complexity involved with lyme (or wrap their heads around the fact that there are other stealh infections involved).
They trust the government health groups that say "no big deal" and they trust the "doctor experts" with the IDSA.
Particularly, perhaps, attorneys who handle injury cases are so used to SEEING such in the person of their clients or on X-Rays, etc. My experience is that those I know in that line of work have a great deal of trouble understanding what they cannot see.
Attorneys are used to used to the typical "experts" and don't go beyond that to seek the full picture.
I agree with poppy that legal representation is important but you may do well to inquire to your local and state lyme support groups . . . and to LymeDisease.org as to the specific attorneys who are lyme literate. -
Posted by Keebler (Member # 12673) on :
- jed,
Perhaps why you don't have the collective group hug and support is that some of us are barely managing as it is. It's between taking a shower or cooking a meal and there's just not much left.
Others who have returned to "life" are likely also still juggling with strict adherence to energy "budget".
Also, even for note replies, it's hard enough to think of how to write a sentence, much less put hands through the torture of hitting the keys, etc. But the real on the ground support, I truly hope you find. -
Posted by lpkayak (Member # 5230) on :
sometimes tincup can work miracles if someone can connect them
Posted by Keebler (Member # 12673) on :
- Pamela Weintraub is a journalist who is very LL. Her series at Psychology Today may have some lightbulb connections to spark for you:
Munchausen: Unusual Suspects - by Pamela Weintraub
2007 - last reviewed on November 10, 2010
Call them the Munchausen mothers. A growing number of women stand accused of deliberately sickening their children for attention from doctors. In an era of patient advocacy and hard-charging moms, there's no end in sight to this hotly contested diagnosis.
is one of the best advocacy organizations. You may be able to connect with them for suggestions. -
Posted by poppy (Member # 5355) on :
Since she had already touched base with advocacy groups, I went the attorney route. And what you say is probably true, keebler, about lyme illiteracy as a rule, but this person is in CT, and seems like that might be a place with a bit more understanding than average.
Posted by Keebler (Member # 12673) on :
- yeah, poppy, good point about location and the likelihood they should be more literate about all this. Too bad we have to screen just about anyone we go to for any kind of help to be sure they have the knowledge base.
nursejed,
I'm so sorry you've not found much support with the groups you've connected. Hold on. Take care. -
Posted by WPinVA (Member # 33581) on :
I absolutely agree with Poppy's suggestion to contact an attorney. A good attorney should see the injustice of the situation and delve into it, regardless of how much info they may have on Lyme disease.
It doesn't take specific Lyme knowledge to address the issues of having two children live with an abusive parent. And to question the accusation of munchausens.
Posted by tickalert (Member # 7033) on :
I agree with everyone else.
Are the girls living with there biological father?
Posted by poppy (Member # 5355) on :
You there nursejed?
Posted by grandmother (Member # 19908) on :
Ira Maurer was a LL attorney in White Plains, NY. I don't know what his legal Lyme situation is now but he has been helpful to some in the distant past.
Posted by poppy (Member # 5355) on :
Don't think he is in a position to get involved.
Posted by nursejed1 (Member # 25155) on :
Hi everyone who has answered me and been so caring
I do understand that everyone is also so sick. I
wrote that in desperation and still am at the same
point. I do have an attorney, moving slowly along
I have talked to Pam Weintraub and even president
lyme association. My childs doctor was a well known
LLMD. I just wish some of us were healthy enough
be at the biggest court cases to show support I
guess the local support group is what I should call
Thanks for taking the time to answer me and give
me info. God bless you all and take care everyone
If you hear of the case in CT its ME!! I plan
on being loud!
Posted by poppy (Member # 5355) on :
Best of luck. We are all pulling for you from a distance and I'm sure if people closer to you know, they will support you if they can.
Sending you a big hug.
Posted by nursejed1 (Member # 25155) on :
sending you all hugs back. Im waiting for autopsy results on my daughter that went to heaven, I pray the infections will show up even though its been a while. If they do, I will have an even larger proof of the injustice she faced, the two that are still alive I am fighting to have rights to even see. The foundation for child victims of family court is helping me and a lawyer. I will keep you in the know if anything good happens. God bless you all so kind to me.
Posted by WakeUp (Member # 9977) on :
Hi Nursejed1-
Im so sorry to hear about your horrible problems with the corrupt social services and family court in Connecticut, and I will pray for you-- as social services in this state can be extremely evil and unjust!!.
Can you find one or two Lyme literate psychiatrists or psychologists who could certify that you do NOT have Munchausens and never did, thus laying the groundwork for overturning the custody and visitation decision-- which was apparently based on your bogus Munchausen by proxy diagnosis?
Can you ask a cousin or an aunt to ask your daughters (now that they are older) to keep a record (like a Facebook page or a diary) of how they are feeling on a daily basis (if they are still complaining of symptoms)? This could eventually provide evidence that you do NOT have Munchausens (and that you never did!!), and that your daughters still have chronic Lyme disease--- wherever they live.
Their health diaries might be able to eventually help you win your custody or visitation rights back, as well as damages in a Munchausens defamation case.
You just need a really, really good attorney!!
Kathleen Dickson-- a lyme activist in Connecticut (and chemist involved in Lyme diagnostic testing) ---also had her children taken away from her and was harassed and bankrupted by the state--- as did Lisa Masterson, a Lyme activist in great Britain. All of these women had children with Lyme disease. It is just so disgusting what is now going on in America!!
Personally I believe that the war on families with Lyme is related to the general Lyme Disease coverup --- which relates to the government testing of spirochetes on the population in Tuskeegee and in Guatemala--- but that is just my educated guess---- and it does not help your current situation.
It does however, put the injustice you face into a broader context --- with hundreds of thousands of damaged and suffering people-- who have literally been defrauded of both their health and their children!!
Your girls must still be very sick with chronic Lyme--- are they attending school now, and what is their attendance record like while living with their father? Im sure their attendance record cant be much better now than when they lived with you...What are your daughters' opinions about their own health right now-- can they write down their feelings about their own health in a daily diary?
Could you give them diaries as gifts, or ask someone else to do this?
WHO "proved" that you have Munchausens? Was this a result of a doctor hired to testify against you by your husband--- or was it simply a claim by nosy, self important biddies at your daughters' school or in social services?
Could you eventually try to sue the staff at the school for malpractice or defamation-- if they were the cause of this injustice--- or possibly the deranged "know-it-alls" at social services?
Did the school hire an attorney or was it those know-it-all biddies in social services?
If your daughters are still feeling sick under their father's care, you could claim the the Munchausen's argument has always been spurious.
You would probably have to go to court to have your daughters' health examined by a LLMD (I am not a lawyer and this is not legal advice) but their own writings might also be relevant since they are older now.
Its not like you want to hurt their father, but if they are still sick, the government's case for Munchausen's is bogus--- and thus your custody and or visitation right must be restored IN FULL--- and you may also even have a legal damages claim against the people who responsible for defaming you.
As your daughters get older they will begin to see the scam about what has happened to them, and about how they were literally ROBBED of a loving mother-- and an intact family--- due to lies about Chronic Lyme disease..
God bless you and i wish you luck and I hope you succeed-- in any event just always tell your daughters that you love them.