I'm hoping to connect with current or former long-term Lyme disease sufferers who would be willing to talk about their experiences while trying to get treatment, and who identify as fairly engaged politically around the current standards of LD diagnosis and care. You yourself decide what "fairly engaged" means. It could range from starting Change.org petitions to strategizing online with others in the community, to writing letters to politicians and beyond.
I'm a freelance journalist in the preliminary stages of writing an article about how the mainstream medical establishment leaves some sick people feeling very disenfranchised and neglected. Speaking with me about your illness need not entail you using your full legal name, appearing in pictures, and so on if it's not something you're comfortable with. I'm happy to answer any questions you have for me and discuss more in detail, but would prefer to do that privately than inside the thread.
Thank you for your time!
Posted by duncan (Member # 46242) on :