This is topic I could really do with some support right now. Feeling very lost in forum General Support at LymeNet Flash.


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Posted by takethat89 (Member # 45625) on :
 
I feel for 2 years now my health has been getting worse and worse. I have had failed 2 LLMD's due to them canceling new patient appointments due to their own health issues, and i am now currently with a new one who is out of state and i can never get through to the office,

Just before christmas i was told upon an eye exam i had a freckle on my eye that needed to be monitored because it can be a sign of cancer. I also had to have pre cancerous cells removed from my cervix 2 months ago.

The past few days i have had severe stabbing pains in my eye, and it has been pretty constant and is the worst. I also feel pressure in it. I don't know if i should go and get it looked at or if i should put it down to lyme itself, it is just so hard to tell.

I have also had severe swollen lymphs around groin and today i have had some light bleeding and severe itching (not period related) I know no one can really say much, but i just feel like my body is falling apart and i am losing this battle.

I just started a job to help pay for my treatment and i can't get time off to go see doctors so i am trying to find doctors to see after hours for my female issues.

I just feel really drained and i am extremely fatigued which has never been a symptom of mine. I can't help but feel like i am slowly dying or i now have other life threatening health stuff going on and i am just so fed up [Frown]

(broke up a paragraph for easier reading for many here)

[ 01-09-2016, 10:19 PM: Message edited by: Robin123 ]
 
Posted by TNT (Member # 42349) on :
 
I'm sorry to hear you're still struggling, and now with these new issues.

The female issue I would get looked at as soon as possible since light bleeding or spotting between periods is not a good sign. Swollen lymph area in the groin suggests an infection of some type. This doesn't sound lyme related to me. And this would definitely cause you to be more rundown. You may just have to make a gynecology appointment a priority, or try to find a gyn clinic with more flexible hours.

Hang in there. It gets very tiring, I know. Try to give your new LLMD an adequate chance. Your improvement may be just around the corner.

And, great work on the new job!
 
Posted by me (Member # 45475) on :
 
Im so sorry you're feeling so ill. I'm from tx too and travel out of state to see a LLMD that another wonderful member from lymenet recommended. I've made good progress with him but have a long way to go.

If you can travel to see him, they can probably get you in within a few weeks. I'm very pleased with him and highly recommend him. He is in MD. If you are willing to travel to see him, please send me a PM, and I can give you more info. Keep fighting and hanging in there.
 
Posted by Jordana (Member # 45305) on :
 
I know exactly how you feel.

I don't know how you're doing on money to go see people but I think you should go have both issues checked out just to reassure yourself. Both are probably just body weirdness or something minor but it would probably make you feel better to hear that from someone other than the internet.

There's probably a walkin clinic somewhere near you that you can check with tomorrow or even tonight.

If not, the ER will do. It's not a huge emergency but it will get you seen and put your mind to rest.
 
Posted by Tincup (Member # 5829) on :
 
Tis the season, so sorry! So many folks feeling worse. Sorry you are one of them. But, it will get better!

[group hug]

Lots of Planned Parenthood locations in your state. Some may have evening hours? They take various insurances and have access to Obama Care if needed.

https://www.plannedparenthood.org/health-center/TX

The spot on your eye- do you have Bartonella? Either way, get to an eye doctor ASAP. We don't mess with eye stuff.
A neuro-opthamologist would be best.

With the fatigue and spotting and swollen lymph nodes you could be looking at an infection, even yeast. Could be from the procedure you had two months ago to remove the cells?

Time to go pee in a cup and drop your drawers for another stranger! How fun!

Any problems with that, just talk to TuTu. She drops her drawers for anyone, all the time, all the darn time!

When you feel poorly like you are, the mix of several things going on at one time is very depressing. Hang in there, ok?

Lettuce no how we can help you!!! We really want to.

[group hug]
 
Posted by Robin123 (Member # 9197) on :
 
Well, you've come to the right place! Between all of us, we'll help you figure things out. It's quite common to feel pretty bad before our health starts to turn around. I've seen lots of people get better, when they first felt pretty poorly.

I am not a doctor, so these are just my patient comments, but these things work for me - we're all different so we need to find out what we respond to.

For me, drinking mangosteen juice stops all eye symptoms, which for me have been floaters, light sensitivity, eye muscle pain and blurring vision. The juice stopped every symptom in 24 hours. It's an anti-inflammatory juice. I like the Mango-Xan version, as it's the most tart. It can be found in health food stores and online.

For concerns about cancer, there have been two online anti-cancer series created by Ty Bollinger which have run for free online a couple times this past year. The series features natural care to treat and prevent cancer. I and others took notes for the first one which are posted here at
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/34905?#000000

I am currently posting notes I typed up recently for the 2nd series and will be adding them to the post you'll see in General Support about the Global Quest series, but I've just started.

The main reason I'm doing this is because the series emphasized the importance of a good immune system. We are immune-compromised, with Lyme and co-infections,

and that's why I think we need to understand how to keep our bodies in the best shape possible so as not to contract cancer. This can be done with a good natural healthy lifestyle.

For fatigue, you might check out magnesium, which we've discussed a lot here - you can use the Search function at the top of the page to type in magnesium or any word or phrase you wish and archived threads will come up that you can read through.

Some people also get some energy from taking bee pollen.

I hope others will be along to help you with the rest. Have some patience - this is a marathon, not a sprint, but it's worth getting our lives back, and making some new friends in the process of doing so!
 
Posted by Tincup (Member # 5829) on :
 
Nice response Robin59375937!
 
Posted by hopingandpraying (Member # 9256) on :
 
I'm so sorry you are going through all of this. I pray every day for all those suffering with Lyme and any other sickness to be healed.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help with suggestions.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/texas.html
www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

For uplifting, encouraging, life-changing music, listen to KLOVE (FM radio). You can listen online by clicking on "Listen Online" on their homepage (upper-right hand side) or you can find a station near you by going to "Find a Radio Station" under the photo/video on the homepage.
 
Posted by Tincup (Member # 5829) on :
 
Hey take that- you still checking in?
 
Posted by Tincup (Member # 5829) on :
 
Take That- you ok?

Please lettuce no!
 


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