This is topic Urgently need to move, can't live here any longer... in forum General Support at LymeNet Flash.


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Posted by Judie (Member # 38323) on :
 
Someone was helping me out at my house last week and found a tick on his arm. I REALLY need to move.

Any leads are helpful. I'm dying here physically, emotionally and spiritually.

My back went out a month ago and hard to lift or do anything now, but I keep going as good as I can.

I posted a few months ago here what's going on:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/36572?#000053
 
Posted by hopingandpraying (Member # 9256) on :
 
I am so sorry you are going through this and praying things get better for you very soon.

I don't have anything concrete to suggest to you, but check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/CaliforniaLyme/info

Maybe they can help. They would know better about CA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/lyme-in-california/

http://www.lymenet.org/SupportGroups/UnitedStates/California/

I'd also check with the Lyme Disease United Coalition at (800) 311-7518. They are very knowledgeable and might know where to direct you. Website is: www.lduc.org

For uplifting, encouraging, life-changing music, listen to KLOVE (FM radio). You can listen anytime online www.klove.com or find your local FM stations in your area by going to this link:

http://www.klove.com/music/radio-stations/

Just put in your city and state or zip code and it will tell you if there are any KLOVE stations in your area.

Your life most certainly matters. After all, you are "fearfully and wonderfully made."

[group hug]
 
Posted by hopingandpraying (Member # 9256) on :
 
Here are some MCS Support Group links I found online where you might find help:

*NOTE: this one is in CA and full of resources for you to check out
http://www.gordonmedical.com/resourcessupport-groups/

https://www.facebook.com/Multiple-Chemical-Sensitivity-Support-Group-171502276293744/

http://mcs-america.org/index_files/forums.htm

https://groups.yahoo.com/neo/groups/bayareamcslist/info?yguid=198799829

http://www.mdjunction.com/multiple-chemical-sensitivity

http://www.angelfire.com/planet/mcshelpsite/orgs.html/

http://www.mcsfriends.org/resources/
 
Posted by Lymetoo (Member # 743) on :
 
The best Facebook group for Mast Cell Activation Disorder:

"Mastocytosis and Mast Cell Disorders-Integrative and Holistic Approach"

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I left you a message on your other thread.
 
Posted by Judie (Member # 38323) on :
 
I just saw the allergist/immunologist.

I found out I'm allergic to ALL the area around my house. I'm in a forest/rain forest and I'm allergic to not only the plants, but the mold that grows in ALL the ground covering which is activated by dampness.

No wonder I feel awful all the time here.
 
Posted by Judie (Member # 38323) on :
 
I'm just so miserable. I can't get any relief.

Thanks hopingandpraying. I've already posted on some of those groups, but maybe there will be something new.

I moved to the country because of MCS. It turns out I may do better in the city of all things! I need the medical care there.

I'm so completely overwhelmed with the new info on how my place is bad for me on more levels than I knew before.
 
Posted by Lymetoo (Member # 743) on :
 
Yuck... it does sound like San Diego would be a good choice.
 
Posted by WPinVA (Member # 33581) on :
 
This resource may be helpful. They have info on areas of the country that are good or bad for people affected by mold. Seems most are chemically sensitive as well.

http://paradigmchange.me/
 
Posted by Robin123 (Member # 9197) on :
 
Am wondering if you could choose a location and then move into an SRO in a city - single room occupancy hotel, good for singles, you could stay in one until you decide where you want to go next, but at least you'd be out of there.

N CA would continue to be moldy, I think, unless you go more inland where it's warmer. Perhaps S CA? San Diego has a good support group.
 
Posted by Judie (Member # 38323) on :
 
I'm pretty overwhelmed. I thought I was moving to a safer place for my triggers and there are more here than where I was before.

Just trying to keep it together. I really need help with moving and packing. I'm physically challenged along with everything else.

No wonder I haven't been able to heal in this house!
 
Posted by Judie (Member # 38323) on :
 
quote:
Originally posted by WPinVA:
This resource may be helpful. They have info on areas of the country that are good or bad for people affected by mold. Seems most are chemically sensitive as well.

http://paradigmchange.me/

It looks like a good page but I'm totally overwhelmed.

I can't take cholestyramine.

Can someone guide me to a page for methods to treat mold exposure? Like supplements I can buy over the counter?

I just don't have the mental bandwidth to comb through google pages if someone knows where to go already.
 
Posted by hopingandpraying (Member # 9256) on :
 
Write a new post in "Medical Questions" to ask if someone knows of methods to treat mold exposure and over-the-counter supplements. There should be people who might know of something to suggest to you.
 
Posted by Robin123 (Member # 9197) on :
 
Probably Scott at www.betterhealthguy.com would know about supplements for mold - you can ask him there -
 
Posted by MichaelTampa (Member # 24868) on :
 
The "big" ones I know about are cholestyramine (Rx) and chlorella (OTC). Of course there could be more. Perhaps any binder, such as pectin, would also work.

Cholestyramine and chlorella are believed to help for mold not by killing or removing mold. Rather, they bind, so help remove, the toxins that the molds make.
 
Posted by WPinVA (Member # 33581) on :
 
"]It looks like a good page but I'm totally overwhelmed."

I don't have all the answers... I am learning about this too and just found this resource. But you could start with the so called "Beginner's Guide"
http://paradigmchange.me/beginners/

and here is the link for safe locations:http://paradigmchange.me/locations/
 
Posted by Judie (Member # 38323) on :
 
quote:
Originally posted by WPinVA:
"]It looks like a good page but I'm totally overwhelmed."

I don't have all the answers... I am learning about this too and just found this resource. But you could start with the so called "Beginner's Guide"
http://paradigmchange.me/beginners/

and here is the link for safe locations:http://paradigmchange.me/locations/

That's great! Thank you.

One of the places I was considering moving to is a toxic hotspot according to one of the links. Thanks for helping me dodge a bullet.
 
Posted by Lymetoo (Member # 743) on :
 
Is there an actual LIST on one of these pages? I sure couldn't find one.
 
Posted by Judie (Member # 38323) on :
 
No, I wish there was.

This was a helpful article, but the locations start being commented on about 1/3 down the article.

It just happened to be the first link I clicked on and skimmed.

http://paradigmchange.me/wp/outdoor-toxins/
 
Posted by MADDOG (Member # 18) on :
 
If you lived here you could breathe burning plastic rubber and anything that the neighbors want to burn.

Have had to take my laundry to town to dry it due to horrible toxic smoke from neighbors burning.

Tonight in December a briar redneck moron is burning plastic crap in a fire ring in the rain making it smoke to optimum levils.

It makes them feel like they are down home in a Kentucky holler .

MADDOG
 
Posted by Judie (Member # 38323) on :
 
MADDOG, I can see why you're so mad. Yuck...
 
Posted by Keebler (Member # 12673) on :
 
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Stumbled upon this article today and thought of you, Judie, as you mentioned Olympia. Training paths might involve that area. Also consider SEA-TAC, the int'l public airport.

JET NOISE

Find out where all military airstrips (and that's more branches than just the air force) might be anywhere you might consider going. And the local / international airports, too . . . and research their flight patterns and noise issues

Flight / Training patterns might matter nearly just as much as the location of the airports themselves.

http://www.truth-out.org/news/item/39247-how-much-noise-can-a-person-survive-navy-jets-plague-the-lives-of-washington-residents

How Much Noise Can a Person Survive? Navy Jets Plague the Lives of Washington State Residents

By Dahr Jamail - Truthout - February 06, 2017

. . . The loudest jets ever built fly so close to Puget Sound that residents' dishes rattle and they become physically ill. . . .

Imagine living in a place where the loudest jets ever built regularly flew so close, your entire house vibrated, dishes rattled and fell off shelves, and the noise was so loud you became physically ill.

Your sleep was impacted, you couldn't work, and literally every single aspect of your life was affected negatively. . . .

. . . the Puget Sound region of Washington State, near Naval Air Station Whidbey on Whidbey Island.

Along with thousands of others there and other islands and locations throughout the Sound, Andrews is afflicted by health-endangering levels of noise from Naval EA-18G "Growler" warplanes, the single loudest aircraft ever built. . . .

. . . " . . . the impact of this low-vibration frequency noise on the body, and what the mechanics really are in creating the breakdown of bodily organs," . . . .

. . . A "Public Health Emergency" . . . .
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Posted by Keebler (Member # 12673) on :
 
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NINETEEN STATES

http://www.naturopathic.org/content.asp?contentid=57

Licensed States & Licensing Authorities - Naturopathic physicians

Currently, 19 states, the District of Columbia, and the United States territories of Puerto Rico and the United States Virgin Islands have licensing or regulation laws for naturopathic doctors.

In these states, naturopathic doctors are required to graduate from an accredited four-year residential naturopathic medical school and pass an extensive postdoctoral board examination (NPLEX) in order to receive a license.

For information about the Naturopathic Physicians Licensing Examination Board (NPLEX) and the North American Board of Naturopathic Examiners (NABNE), please see our Education page.

Licensed naturopathic physicians must fulfill state-mandated continuing education requirements annually, and will have a specific scope of practice defined by their state's law. The states that currently have licensing laws for naturopathic physicians are:

[see list at link above]


http://www.naturopathic.org/about

American Association of Naturopathic Physicians - Detail
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Posted by Catgirl (Member # 31149) on :
 
There are inexpensive FIR saunas you can buy on amazon or ebay, about $150 to $200. FIR saunas are great for mold (helped me a lot).
 
Posted by windingshores (Member # 48600) on :
 
Judie, my situation is similar to yours. Ironically I found relief in a city studio, that is quiet and and faces a small street with no traffic, but is a few minutes walk to a square full of culture and activity.

I sold my house and got rid of literally everything except for one small storage unit that contains photos and my kids' music, dance videos etc.

Once I was mobile, I stayed in temporary places that I found on craigslist of tolerable motels (wood floors, no cleaning products etc.) until I found a rental I could sign a lease for. It took 6 months, sorry to say.

I don't know your age but if you are over 55 a lot of people find community in retirement communities or whatever you want to call them. I like the Kendal ones the best but cannot afford them right now.

I cannot move things myself due to disability so it was a huge relief to get my possessions down to what fits in my small car. In my current studio I bought some plastic chairs and stools (that don't outgas), one table, and a twin mattress with a cover. It is very minimalist, washable and easy to take care of. If I move I could either stack them in my car or get rid of them for a net loss of about $200 so far!
 


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