This is topic need advice--high bp and tests in forum General Support at LymeNet Flash.


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Posted by randibear (Member # 11290) on :
 
my bp has gone up again. 187/118...it's been up all day. took my clonidine. it's now 123/89. my dr wants to put me on lexapro cause he says its anxiety causing all this.

here's the problem. I have an endoscopy AND colonscopy together scheduled for wednesday. the test will take about 3 hours and I will be sedated.

I am scared to have tests, afraid i'll panic and blood pressure will go through the roof and me going to er. right now it's unstable and I could end up in hosital anyway.

I have an appt with cardiologist on thursday

should I cancel, and make the gastro office mad, until this bp issue resolves, or try to have it done and pray my bp holds.

also the colon prep is a nightmare and I'm not looking forward to it. last time I tried it I vomited it all up and they had to reschedule.

I could call gastros office first thing tomorrow and ask what to do I guess.

as usual, hes out of town. it's always worse when you are alone.

[ 04-29-2018, 06:52 PM: Message edited by: randibear ]
 
Posted by Lymetoo (Member # 743) on :
 
Well, definitely give his office a call tomorrow. There are plenty of options for the prep. Tell him you need a different one from last time.

I don't think they would even take you for the colonoscopy if your BP is that high.
 
Posted by randibear (Member # 11290) on :
 
bp readings are all over the place
115/96
125/87
139/98

156/105
156/104
167/97
141/93
156/106
160/114
187/118
178/112

unbelivable. I'm jus thinking I'm too unstable to undergo any procedure. if I have to cancel, tough, they can adjust.
 
Posted by Lymetoo (Member # 743) on :
 
Yes, they will get over it .. you may not!
 
Posted by randibear (Member # 11290) on :
 
jus got off phone. he said there was no way to do any procedure. said go to cardiologist and get this straightened out. until then monitor and if it hits 200 then get to er asap.

he said it sounds like thete is something causing this and they jus haven't found it. he said I probably need an extensive physical and bloodwork.

oh god.....
 
Posted by Keebler (Member # 12673) on :
 
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Find a doctor who understands this. It often goes with lyme / TBD so it would be great if you could find a true LLMD to suggest such a cardiologist yet, even if one is not somewhat lyme aware, I strongly suggest finding a doctor through this group:


http://www.dysautonomiainternational.org/page.php?ID=34

Dysautonomia International

great chart - and lots of good text

What is dysautonomia?

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System.

The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.

People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, . . . .
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Posted by Keebler (Member # 12673) on :
 
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http://www.dysautonomiainternational.org/page.php?ID=14

nearly to the bottom of the page, at least 3 in the Dallas area:


http://www.dysautonomiainternational.org/mapdetail.php?MapID=247&S=3

The first two listed in Dallas at same clinic:

UT Southwestern Neurology Clinic 5303 Harry Hines Blvd 4th Floor Dallas, Texas 75390-8869

The third listed in Dallas:

http://www.dysautonomiainternational.org/mapdetail.php?MapID=172&S=3

The Heartbeat Clinic 7777 Forest Lane, Suite A236 Dallas, TX
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Posted by Keebler (Member # 12673) on :
 
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Their Texas support group seems to be on Facebook. Not sure if you "do" facebook, But you can email them, too.

Dysautonomia International Texas Support Group

[email protected]
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Posted by Keebler (Member # 12673) on :
 
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http://www.dysautonomiainternational.org/pdf/RoweOIsummary.pdf

ORTHOSTATIC INTOLERANCE & ITS TREATMENT

By Peter C. Rowe, MD (a dysautonomia researcher)

Chronic Fatigue Clinic & Johns Hopkins Children’s Center

27-page pdf - March 2014

Dr. Peter Rowe, noted John Hopkins pediatric cardiologist and dysautonomia researcher, provides a patient friendly summary of

Orthostatic Intolerance, Postural Orthostatic Tachycardia Syndrome and Neurally Mediated Hypotension.

Thia summary includes an excellent description of non-pharmacological measures and drugs commonly used to treat these conditions and the common side effects.

Dr. Rowe also offers suggestions for a high salt diet. . . .
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Posted by Keebler (Member # 12673) on :
 
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https://www.youtube.com/watch?v=omSle_qAJJo

Dysautonomia, an invisible illness, some basics

3-minute video - Sep 9, 2015

&

https://www.youtube.com/watch?v=faScrmgKcWg

Postural Orthostatic Tachycardia Syndrome (POTS),

Dysautonomia, and the Autonomic Nervous System

Description, Physiology, Etiology, and Management

Two-hour lecture / YouTube

Carrie Burdzinski, M.S.

May 15, 2013
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Posted by Lymetoo (Member # 743) on :
 
Glad you got it canceled, randi.
 
Posted by map1131 (Member # 2022) on :
 
Keebler, really go info you posted there. I know someone fighting this and it's someone I suspect has Lyme. Go figure.

Pam
 
Posted by randibear (Member # 11290) on :
 
hmmm, I have malignant hypertension not low. I have headache, tinnitus, muscle cramps, vision problems, gastro problems, you name it.

it doesn't quite seem to fit.

I have an appt on thursday for blood work, then may 8 with the cardio.

can you request the types of n lood work to have? I haven't had cholesterol, thyroid, sugar, etc, done in many years. dr saw no need but, boy, I sure do. least he can say is no. don't understand why patients can't suggest tests if they feel the need.
 
Posted by Lymetoo (Member # 743) on :
 
Sure you can ask for testing. I do all the time. All they can do is say no.
 
Posted by Lymetoo (Member # 743) on :
 
Randi .. If you now have Medicare, you get one free physical per year. They should be testing the basics every year.
 
Posted by randibear (Member # 11290) on :
 
well shoot. I didnt know that. I bet it's been five years...rats...
 
Posted by Lymetoo (Member # 743) on :
 
Get after them! Your PCP knows it!
 
Posted by map1131 (Member # 2022) on :
 
randi, I can't believe the docs aren't testing this on you yearly.

I seem to recall another post of yours that sent warning bells and I responded about make you should have thyroid levels checked.

Please be specific with doc on getting these thyroid test done. This is just a basic start.

TSH
Free T4
Free T3
Thyroid antibodies

My goodness you have blood pressure issues and they are not following your cholesterol levels? Sugar levels?

I hope you find some answers.

Pam
 
Posted by randibear (Member # 11290) on :
 
nope swear. they jus say exercise and loose weight...and drink more water...

and....mom was diabetic
 
Posted by Keebler (Member # 12673) on :
 
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And that is why I strongly suggest getting off that particular doctor treadmill and find a doctor who knows far more about the things that could be going on.

You won't find what you need by going back to the same doctors.
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Posted by map1131 (Member # 2022) on :
 
You could run on the treadmill till the cows come home. (Texas line there)

If your thyroid hormones are screwed (typical MD tx), you will never lose weight or feel better.

Please write down the suggestions from here and give a boatload of blood.

You have suffered with this for long enough.

Pam
 
Posted by LymeGoAway (Member # 25041) on :
 
Randibear,

Many of the issues that you have (including high blood pressure) are symptoms of low magnesium. Do you take magnesium supplements? If you have blood work done, be sure to ask for a red blood cell magnesium test.
 
Posted by Keebler (Member # 12673) on :
 
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So glad to see LymeGoAway's post and important reminder about magnesium.

Hope detail here helps.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123746;p=0

Topic: MAGNESIUM - Informational Links set
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Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by LymeGoAway:
If you have blood work done, be sure to ask for a red blood cell magnesium test.

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My doctor finally used this test to check my levels last month. I was asking him about this test 5 years ago.

Keep after them, randi .. and/or find a new doctor.
 
Posted by randibear (Member # 11290) on :
 
cardios office took blood this morning. he was amazed I have not been having complete bloodwork every year.

he is having what he called complete cbc panel, all lipids whatever that is, mineral, sugar, thyroid, choles, and something he referred to as any infectious agent. huh???

I asked what those were and he smiled and said, basically everything under the sun.

so it's a start.
 
Posted by map1131 (Member # 2022) on :
 
randi, I'm still looking to see if you had all the bloodwork done on thyroid?

Many folks with Lyme & co have developed (or did they have it prior and it set them up for Lyme) Thyroid disease.

I'd really be interested to see your thyroid levels on all the recommended tests from above posts.

I know it's gets tiring. But it's your health and well being.

Pam
 
Posted by randibear (Member # 11290) on :
 
more results

3rd gen
tsh 1.95
protein 6.6
albumin 3.4
bilirubin .05
bilirubin direct .01
alkaline 86
sgot 24
sgpt 20

means nothing to me.

he did take me off labetalol when I complained about severe head itching and overall widespread body burning. said jus to stop it.

however it was very effective in lowering my bp. rats...
 
Posted by map1131 (Member # 2022) on :
 
Means nothing because the doctor ordered a nothing test of TSH.

OMG, sad state of doctoring in this country is unbelievable.

Pam
 
Posted by Lymetoo (Member # 743) on :
 
Nope .. no help at all on the thyroid.
 
Posted by randibear (Member # 11290) on :
 
part of the problem is, you dont know what tests to ask for.

I've a sked for tests before, like sugar cause mom was diabetic, and I'm overweight, etc, and had drs get mad because I asked.

his bmw sits in the parking lot..uh huh
 
Posted by Keebler (Member # 12673) on :
 
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https://txand.wildapricot.org/About-Naturopathic-Medicine

Texas Association of Naturopathic Doctors


https://www.naturopathic.org/files/FINAL%20INM%20AANP%20FAQ_14_COLOR.pdf

FAQ #14: Why do naturopathic doctors spend between one
and two hours with patients in an appointment?

3-page pdf


https://txand.wildapricot.org/Find-a-Doctor

Find a Doctor - Texas
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[ 05-16-2018, 12:49 PM: Message edited by: Keebler ]
 
Posted by Keebler (Member # 12673) on :
 
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Regarding your concern with glucose issues, learn all you can about INSULIN RESISTANCE. And about INFLAMMATION.

MDs are not about to help you learn what's needed and most of them don't even consider the complexities.. NDs are the far better teachers in this regard and they also can lead you to real avenues that can lead to feeling better.

They also know about dozens of specific foods and unique herbs that can help.
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Posted by Keebler (Member # 12673) on :
 
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The Video is very enjoyable to watch. Please watch. Very engaging and uplifting, indeed. Note, she is a DO and they tend to go the extra mile for patients that many MDs dismiss.

Oh, and if one might not be diagnosed with diabetes, I'd also read this as "prevent" as well for those who are experiencing problems with metabolic syndrome / insulin resistance.

https://www.youtube.com/watch?v=da1vvigy5tQ

Reversing Type 2 diabetes starts with ignoring the guidelines

18:11 VIDEO

TEDx Talks - Published on May 4, 2015


Can a person be "cured" of Type 2 Diabetes?

Dr. Sarah Hallberg provides compelling evidence that it can, and the solution is simpler than you might think.

Dr. Sarah Hallberg is the Medical Director of the Medically Supervised Weight Loss Program at IU Health Arnett, a program she created. She is board certified in both obesity medicine and internal medicine and has a Master’s Degree in Exercise Physiology.

She has recently created what is only the second non-surgical weight loss rotation in the country for medical students.

Her program has consistently exceeded national benchmarks for weight loss, and has been highly successful in reversing diabetes and other metabolic diseases.

https://blog.virtahealth.com/reversing-diabetes-101-truth-about-carbs-and-blood-sugar/

Reversing Diabetes 101 with Dr. Sarah Hallberg: The Truth About Carbs, Blood Sugar and Reversing Type 2 Diabetes

Sarah Hallberg, DO, MS - November 28, 2017
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Posted by Keebler (Member # 12673) on :
 
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https://www.dietdoctor.com/low-carb-profiles-dr-sarah-hallberg

Interview with Dr. Sarah Hallberg, DO - Jan. 1, 2018

Excerpt:

. . . The advice wasn’t working

She worked as a primary care physician for eight years. It was in the daily treatment of patients with diabetes, obesity and chronic disease that she began to feel that something was not right in the way doctors had been trained to handle these conditions.

The advice and prescriptions she was doling out to patients did not make them better. “It is so demoralizing to see patients coming back worse and worse.”

Some doctors blame the patient for not being compliant, but not Sarah. She knew they were following her advice. “I had the first hint of it as an exercise physiologist. I had worked counselling obese patients.

I realized at that time some of these patients were exercising all the time, seemingly doing everything right, and still they were struggling with weight.” . . . . [Full interview at link above]


https://www.youtube.com/watch?v=w8jUmCe3zDs

Dr. Sarah Hallberg - 'LDL on LCHF'

30-minute VIDEO presentation in Australia - Apr 7, 2016

She stresses that her work is not so much about weight loss (that's secondary) as it is really all about METABOLIC HEALTH.
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Posted by Lymetoo (Member # 743) on :
 
randi .. Just need to find a doctor who knows what to do. They are hard to find, but it's possible.
 


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