This is topic Did you see this??? in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/37957

Posted by Ann-Ohio (Member # 44364) on :
 
https://in.reuters.com/article/us-health-chronicfatigue-dispute/exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-complaints-idINKCN1MR2PI?fbclid=I wAR3WOFXWYIoVl6sOHmdCrmCasHTCb2KS7lZJi2KUghCMqzl51LDdFZb1RWo
 
Posted by Bartenderbonnie (Member # 49177) on :
 
Thanks Ann
This is great news for chronic fatigue sufferers.

Of coarse everyone knows exercise is a good thing. But if you can't get out of bed due to crushing debilitating pain and fatigue, then it can't be considered part of the equation. Duh !

Also, by taking it out of the mental health realm and putting it in the physical disorder realm means they finally graduated to the 21st century.

Finally.
 
Posted by Lymetoo (Member # 743) on :
 
Will they never get the connection to Lyme and other tick-borne illnesses?
 
Posted by duncan (Member # 46242) on :
 
Just wanted to chime in that, yes, the Cochrane temporary withdrawal of support for GET/CBT for ME/CFS patients is huge.

Of course, CFS does not equate to chronic fatigue - the CFS label is basically a misnomer applied to mylagic Encephalomyeltis ie, ME. Lyme people will know of Lyme Encephalomyelitis.

It is way overdue that everyone knew ME/CFS has long ago been demonstrated not to belong in the mental health realm, that it was a physical disorder with many many documented biologic abnormalities.

Incidentally, with ME/CFS many types of exercise - in fact, exertion in general - can actually be bad for the ME/CFS patient.

You can imagine the issues this might present for those patients diagnosed with both Lyme and ME/CFS, having to negotiate that exercise tug of war.
 


Powered by UBB.classic™ 6.7.3