Good - signing numbers are going up even as I look at the petition! Keep passing this around to your various Lyme groups!
Posted by Ann-Ohio (Member # 44364) on :
Done and done! (meaning signed and passed on)
Posted by Robin123 (Member # 9197) on :
Extraordinary response - 100s signing every several minutes!! So if you haven't yet, please do so, and pass it on!
Posted by Tincup (Member # 5829) on :
Kicking butt we are! Keep up the good work! Don’t stop now!!!
Posted by TX Lyme Mom (Member # 3162) on :
I tried to sign it, but it showed up under my husband's name instead -- and he had already signed it!
Stupid website. Just because my husband has a presence on FB, his name is the only one that this crazy stupid website recognizes.
It didn't let me sign the petition -- or perhaps I was just too stupid to figure out how to do it, without creating a public personal on FB -- which I do NOT want to do. I value my privacy too much ever to do that.
Oh well, at least I did try!
Posted by Tincup (Member # 5829) on :
Thanks for trying!!!
Posted by Tincup (Member # 5829) on :
So Close To 10,000! Less than 400 to go!
Can you help get more people informed and signed on?
Posted by Tincup (Member # 5829) on :
Up....
Posted by Tincup (Member # 5829) on :
WOW!
In less than 3 days approximately 10,000 people have signed the petition objecting to Eugene Shapiro being on the federal Tick Borne Disease Working Group!
Thank you for saying NO to Shapiro!
It's amazing what we can do when we work together!
If you haven't signed on or shared this link, please do!
Posted by Robin123 (Member # 9197) on :
Wed morn, 3:22 am PST/6:22 am here - 10,000 sigs!!! Posted by Ann-Ohio (Member # 44364) on :
10,500 ! at noon EDT.
Posted by TX Lyme Mom (Member # 3162) on :
11,241 at 8:30 pm CT
Posted by jblral (Member # 8836) on :
11,498 at 9 pm Pacific Time.
Posted by Robin123 (Member # 9197) on :
Almost halfway to 15K!! (from 10K) - 1pm PST.
Posted by Robin123 (Member # 9197) on :
Getting close...14.5K
Posted by Ann-Ohio (Member # 44364) on :
Over 15,000! Going for 25,000.
Posted by aklnwlf (Member # 5960) on :
Done!
Posted by Ann-Ohio (Member # 44364) on :
FYI: Here is where the petition will be delivered, thanks to Dorothy Leland and to all who sign it!
Tick-Borne Disease Working Group US Department of Health and Human Services
James J Berger US Department of Health and Human Services
Alex Azar Secretary, Dept of Health and Human Services
Posted by duncan (Member # 46242) on :
I hope someone is sending it to all the major appropriate press outlets, so it doesn't just get filed away...
Posted by Robin123 (Member # 9197) on :
Good idea, Duncan - if you want, you could PM jblral about it.
Posted by Tincup (Member # 5829) on :
Yes! The petitions are going to the places they need to go!!!
They are also followed up with letters and other info from LDA and LDO and some of the patient advocates. We are always working behind the scenes.
I just sent this related document in to be used as public testimony. It is published (will be in a few days) on the government site and be sent to all members of the TBDWG in advance of the June 4, 2019 meeting.
It includes most of the Lyme monsters and gives reasons why they shouldn't be on the working group.
And thanks to those who signed on and who shared the petition.
Thanks very much!
Posted by TX Lyme Mom (Member # 3162) on :
Does anyone know if this meeting can be viewed "live" on-line?
I'd love to be able to watch it live, if that's possible.
I'd also like to re-post the info for our TxLyme Yahoo group in case any of our members want to watch it.
Posted by Tincup (Member # 5829) on :
Yes, it can be seen online, or you can go in person.
(Last paragraph is what you need to read below to watch online.)
June 4, 2019, TBDWG Meeting (in-person)
The ninth meeting of the Tick-borne Disease Working Group (TBDWG) will be held at the Holiday Inn Washington-Capitol, 550 C Street SW, Washington, DC 20024, from 8:30 a.m. to 5:00 p.m. Eastern Time.
The TBDWG members will focus on plans to develop the next report to the HHS Secretary and Congress on federal tick-borne activities and research, taking into consideration the 2018 report.
Registration: In-person attendance at the meeting is limited to space available.
On the day of the meetings, seating will be provided first to persons who have preregistered exit disclaimer icon.
People who have not preregistered will be accommodated on a first come, first served basis if additional seats are still available 10 minutes before the meeting starts.
Members of the public may also attend the meeting via webcast. Instructions for attending via webcast will be posted one week prior to the meeting.
``````````````````````````````` My note- sometimes they don’t have it ready on time so keep checking the link below for how to watch online.
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