Is that a sign that Lyme has about run its course in the wild?
Not many on here any more.
I remember the old days when this place was hopping . MADDOG
Posted by hiker53 (Member # 6046) on :
Sadly, fewer people are coming here.
But I will stick around. And hope you do, too Maddog!
Would love to start a thread (BartenderBonnie's suggestion) where the "old timers" come back and tell us how they are doing!
Posted by daisys (Member # 11802) on :
I would hate to lose the search function on this site. It's been my go-to place for answers to many issues that come up.
After all this time, I still have a changing situation, even though I'm feeling better than I did for years.
I don't come often, don't think of myself as an old timer, but rely on this site and would hate to see it disappear.
Dare I hope that less are coming here because there is more help for the masses who still get LD every year?
Many long time supporters who have helped me greatly are no longer around, but their help is available with search.
Posted by aklnwlf (Member # 5960) on :
I think people stopped coming here because it was turning into a political forum.
I almost quit coming here too.
Seems like most are going elsewhere to sites that are like how Lymenet used to be.
Posted by Bartenderbonnie (Member # 49177) on :
Hi daisys
LymeNet's search engine ROCKS!
There is no other website ANYWHERE that offers first-hand experiences of Lyme patients that is also assessable with ease. It's invaluable and must be preserved đź’š
Posted by MADDOG (Member # 18) on :
I will always come back here it is home.I am proud of being member 18.I was one of the first to get lyme,and at a national park complete with a dept of agriculture lab in it. Mammoth cave park KY..
Akinwlf I never saw political things on here if i tried they vanished,but i was careful not to do that anyway.But i was not here a lot sometimes. MADDOG
Posted by 6t5frlane (Member # 8628) on :
I use it. Thank God I found all my old posts
Posted by marie (Member # 3980) on :
Keep it going. Most are on FB now. We need to recruit them here. You can follow your contacts & searches.
Posted by MADDOG (Member # 18) on :
Marie good idea, post a link on Face book to here. MADDOG
Posted by terv (Member # 29410) on :
I found a reddit community that is pretty active. Maybe that is where people are going.
Posted by hiker53 (Member # 6046) on :
I am hoping that people got well and moved on.
Terv, encourage the Reddit group to come here as well. So much good info here.
Posted by Robin123 (Member # 9197) on :
I think we should keep it going because sometimes we want to refer people here to find Lyme docs, as well as any other discussions.
Posted by Bartenderbonnie (Member # 49177) on :
That Lymenet story is GREAT. Thanks Bonnie.Would like to see it updated.
Posted by Mathias (Member # 5298) on :
You learn something new every day. I never knew the story behind this site but I am grateful that it was created and that I was lucky enough to find it. I'm not sure I would have survived without the knowledge and information that is available and shared here!
Posted by Robin123 (Member # 9197) on :
Lyme has NOT run its course! Still very much happening. I think a lot of people are on facebook now.
Well, we're still here and can chat.
Posted by Phoiph (Member # 41238) on :
Recently, I have been clicking on the "LymeNet Flash Recent Visitors" button to get an idea of how many people are visiting the site and what topics they're searching.
If I am interpreting this correctly, there seems to be a number of people visiting, just not posting or creating new topics frequently. (For example, there was a record number of 1133 visitors recorded on May 30, 2024.)
Unfortunately, it also appears that people may be looking at older topics/posts (and potentially outdated information). I'm wondering if these are quick searches that people make but abandon just as quickly when they check the dates.
Robin and Hiker, am I interpreting this info correctly?
Posted by aklnwlf (Member # 5960) on :
Thanks BB for posting the info on how Lymenet was created.
Posted by hiker53 (Member # 6046) on :
Phoiph, I think you are interpreting the data correctly.
We do seem to be getting a few new posters lately and I am glad as this is a great forum to help others.
Posted by LisaK (Member # 41384) on :
hi!! I hope this place never "closes" . tried and true it is.
I have been away from online things for a while. I was feeling ok, but. then another brain or spine (mild-ish) injury and I forget so many good things. I have been feeling pretrty ok with tick diseases, I thought, but now started w new wellness center and the symptoms , herxeimers, are strong and extremely unpleasant.
I feel like my istuation will never get better and all I. do is get older, haha. but on ly list of TODOS is to one day come back to lymenet and read all my old posts and questions, etc!
I hope everyone is ok. Posted by MADDOG (Member # 18) on :
Hi Gang I am back in the pain pit. The lyme in my low spine ate the little bones in there.
I live with the disability every day.
I can deal with it a lot of the time.
I have been to the best mayfieldclinic.com
Nothing can be done . It gets ok with phth and needleing .
Well i was on Gabepentin for years it added to the brain fog.
GANG I wrecked my truck and got my back all hurting again.
Then I started fixing it and moved a new door around and made it worse. It is on there!!!!! GRRRRRRRRRRRR
MADDOG
Posted by hiker53 (Member # 6046) on :
Sorry to hear this Maddog!
Your poor back and your poor truck.
Hang in there!
Posted by aklnwlf (Member # 5960) on :
Oh no MD! Speaking from experience here maybe take it easy and ice the area. I use Voltaren cream on my elbow and shoulder and it seems to help.
Hope you get better soon! Pain can just wear you out!
Posted by LisaK (Member # 41384) on :
hi!! I hope this place never "closes" . tried and true it is.
I have been away from online things for a while. I was feeling ok, but. then another brain or spine (mild-ish) injury and I forget so many good things. I have been feeling pretrty ok with tick diseases, I thought, but now started w new wellness center and the symptoms , herxeimers, are strong and extremely unpleasant.
I feel like my istuation will never get better and all I. do is get older, haha. but on ly list of TODOS is to one day come back to lymenet and read all my old posts and questions, etc!
I hope everyone is ok. Posted by LisaK (Member # 41384) on :
not sure why my post snet twice, but a got an"flood warning" with is saying admin put this into action...???
Posted by LisaK (Member # 41384) on :
MADDOG, so sorry tohear about your spine! I have same issue , so I am told , in lumbar. it doesn't hurt i na terrible way for me but always tender to the touch.
Posted by MADDOG (Member # 18) on :
My PCP took me off the Gabepentin thinking it was the cause of my brain fog.I told him about Lyme brain fog.He did not listen.
Disaster!! Now i am touretting 5 times worse and about every joint i have is screaming at me OUCH.
I had to go to my PH TH and get my back needled ,then to my pain doctor for 10 times worse stuff than Gabepentin.
Still every time there is a day above 35 degrees and not snowing I work on the truck. Step one done all metal structural parts pushed back to factory places with porta. power hydraulic press backed up by giant walnut tree.
Have a new bedside to install,and a cab corner.Mountain climbers can never give up it is a DNA thing.
A new PCP may put me back on the Gabepentin????
MADDOG
Posted by hiker53 (Member # 6046) on :
Maddog—so sad that most GPs don’t know anything about Lyme.
But I think it is great that you keep working on your truck. The more you can do the better! Posted by aklnwlf (Member # 5960) on :
Hoping one of the docs will put you back on Gabapentin soon Maddog.
Posted by Sylvie R (Member # 52778) on :
Hi from Sylvie, over the big pond! I was here for the first time in December 1998... This is my third account, I have lost the two others. Reading your posts, I thought that I would love to get out of everlasting pain, but I have stopped believing that it is possible. I am used by all this sufferance. When I popped on this board, I was full of hope, but my hope is gone. There is a "Lyme specialized service" in a hospital some miles away from me, they are on the internet, and what do you read? They are making research about Lyme... what research??? I almost died in 1993 in another hospital testing medications published in the Lancet as very promising... almost deadly for me. I can tell exactly what antibiotics can help me, no research needed, but no one hears. I am fed up with the way we are (not) considered, with MDs who don't know what really is this disease, and judge me, even one had the nerves to expertise me, who had never seen an actual Lymie in his life! We are the guinea pigs in something that countries don't want to recognize, because it would cost them too much money if every Lymie would be treated correctly. Borrelias have been grown up in ticks for military purposes since WWII and escaped, and make sick the populations. This is something nobody will recognize, never. Too disgusting and too expensive to cure. The only thing we can do is exchange our little recipes to get better... Take care all of you, I am glad to still be in touch with you and Lymenet :-)
Posted by hiker53 (Member # 6046) on :
Sylvie,—Sorry you still deal with all of this.
Wishing you the best.
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by MADDOG:
Now i am touretting 5 times worse and about every joint i have is screaming at me OUCH.
Maddog, so sorry to hear you're doing worse. Magnesium will help reduce the Tourette Syndrome. Have you been taking fish oil? The Omega 3's will help some of your symptoms.
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