A warm and sincere thank you to the patients, families and members of the Lyme Community who came to NJ to attend the LymeRights Protest on Wednesday May 7th to demand Congressman Frank Pa llone schedule our Lyme Bill, HR 741 for a Hearing. Thank you to the thousands of callers across America who demanded to be heard!
We know it was a hardship for the many that came. For those who could not come, know we were there for you! We felt your spirit and presence. It was a sight to be proud of, over 100 people lining both sides of Broadway with signs, chanting and conviction!
Unfortunately, Mr Pa llone appeared to have already written a press release with his decision. He feels that there is no reason to hold a hearing on the legislation until after the IDSA treatment guidelines have been reviewed. That's right, he thinks that we do not need research into a reliable test, research into more effective treatments, or any education or prevention efforts.
Mr. Pa llone does not consider Lyme patients and our Bill, HR 741 a priority. Despite Attorney General Richard Blumenthal's findings of bias and conflicts of interest, he continues to bow to the pressure of the Infectious Diseases Society of America. Unacceptable!!
Together we are a strong voice that Congress will hear! Our lives will not be ruled and destroyed by 14 members of the IDSA whose corruption and ulterior motives are riddled with conflicts of interest.
I urge each and every one of you to read the letter Behind the Scenes of the Pa llone Decision, written by Pa t Smith, President of the Lyme Disease Association (attached). Keep those calls going to Pa llone's office and tell him you want the Lyme Bill brought to a hearing, but also let him know you read ``The Letter'' and you know what is going on behind the scenes, and we will not be stopped!! We will continue to open the eyes not only of Pa llone's constituents but people across the nation.
This is not the end; we must all continue to call Mr Pa llone's office and Mr Kennedy's office until we are heard.
Thank you from all of us for your passion and your support!
[ 11. May 2008, 02:04 AM: Message edited by: ellenluba ]
Posted by stella marie (Member # 7216) on :
Thx for posting Ellen!
bump up
Posted by METALLlC BLUE (Member # 6628) on :
That son of a *****. When I get home, which will be shortly, I'm going to make such a ruckus that they will hear me.
Posted by pingpong (Member # 13706) on :