Is there any mechanism by which emails can be sent out to both patients and anyone involved with lyme advocacy nationwide?
Posted by wintertree (Member # 37134) on :
*bump*
Does anyone know if there is one?
Posted by shazdancer (Member # 1436) on :
It depends on what you are trying to do, wintertree. Sending a bunch of unwanted emails out is spam, a no-no.
You could email an administrator of a major Lyme patient support group (such as the LDA or Lyme.org, or a statewide group), and perhaps they would forward your message to their email list. But I tend to doubt it, as they have their own campaigns to work on, and don't want to overburden their own email lists with too many messages.
You could start up your own Facebook, Twitter, or blog account, write your message in a way that fits those formats, and try and attract followers. Or simply post it right here, as many people peruse Lymenet.
But if you are fairly new to advocacy, I would suggest that you first become acquainted with your local and state groups. State Yahoo! email groups can be found at Yahoo.com (search "Yahoo Lyme group" for a list). There are a lot of people doing great projects out there, and they could use your energy!
Posted by Keebler (Member # 12673) on :
- Why do you ask?
I sure don't want my private email address out there. I would be furious to receive "e-blasts" from sources I've not connected with on my own.
E-mail addresses can contain some personal clues and lead to privacy & identity breaches. It's just important to know that.
Most reputable lyme advocacy groups already have mailing lists. I'm on several and that works just fine for me and many others.
WHO is wanting to do this? WHY?
Very important questions. I hope you can shed some light on the Who and Why.
We may have other suggestions to help with whatever project you have in mind. Connecting with an established lyme organization may be the best move.
ShazDancer has some great ideas to get you connected - then you won't have to do all the work yourself and can learn the ropes from those who have already blazed some of the paths for us. -
Posted by Alexandru Matei (Member # 37348) on :
You can NOT send email "blasts" unless you own your own emailing list with either aweber or another email marketing service online.
Be careful, it's illegal.
You can start building your own list though.
I'm pretty sure ILADS or any of the other large Lyme Communities will not send your email to their subscribers.