There is a new data survey on the LymeDisease/dot/org website called My Lyme Data. I'm not sure if I'm allowed to post the link, as I recall there are certain rules about these things.
But in essence, they're trying to collect as much data as they can from Lyme patients all over the country and will be expanding to other countries soon. I signed up - it's a little time consuming and not as thorough as I would have liked it to be, but I think it's a great beginning for collecting data and could really bring attention to Lyme disease and all of the obstacles we encounter.
A Quote from the site: "MyLymeData expects to gather more data about Lyme disease than any research study has done before. Consider this: The largest Lyme disease trial funded by the National Institute of Health enrolled only 64 patients in the treatment group. Our patient surveys draw over 9,000 responses! We’ll use the information provided by patients to help figure out how to prevent and treat all stages of Lyme disease. It’s that simple."
Hope everyone will sign up.
Posted by jblral (Member # 8836) on :