SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Until recently, I had not heard of heparin as a treatment for Babesia. I had heard of and been using it for hypercoagulation, but a relatively new thought is that it is also effective against Babesia. Something to consider when talking with your practitioner.
If you do a Google search, you can find information such as:
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hi Scott
I have posted on this subject numerous times here. First time was in April 2005. I've posted numerous times this same article (I think), only your link isn't working for me.
I think this is REALLY important info and may have something to do with why I am in remission for so long. I am glad to see someone else post about this so I am not just blabbering on all by myself
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
posted
I am on Heparin with my rocephin. Am getting 101 fever in PM and during day sweating through my clothes. I think its the heparin working on babs.
I asked my LLMD's assistant about heparin working on babs but he didn't seem to know.
Posts: 588 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
^^^^ people need to take notice of this
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
posted
My son (age 20) was on Lovenox (40 mg 2/day) for 7 months. He does/did have hypercoagulation. He has not had any extreme sweating since Lovenox.
My other son (16) is starting sublingual heparin next week.
Jellybelly - did you do nasal heparin? I asked my son's hematologist and his LLMD and neither would prescribe it. His LLMD is prescribing sublingual heparin. The LLMD said nasal heparin has not been discussed at any of the hypercoagulation conferences that he has been to.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
posted
Scott, I hope that Heparin does help with the treatment of Babesia. I've been on it I think for about 6 months. I'm on it for hypercoagulation, but it would be great if it got rid of Babesia too.
I seem to tolerate the Heparin just fine. Which is a plus for me since most meds make me really sick, in even small amounts. It does seem to make me sweat though.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
-------------------- We have only this moment, sparkling like a star in our hand... and melting like a snowflake. Let us use it before it is too late. Posts: 221 | From the hills | Registered: Mar 2006
| IP: Logged |
my doc says that heparin does in fact act against the babesia, as well as helping with coagulation issues.
i have been sweating more at night since starting. feel like i'm wrapped in saran wrap.
take, care, lisa
Posts: 92 | From berkeley, ca, usa | Registered: Jan 2005
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I am excited about the Heparin. Other than the bruising at the injection sites, it seems to be well tolerated, may have anti-Babesia qualities, helps with hypercoagulation, etc.
I think that I have felt improvement since having done the Heparin and the Alinia (28 days 1000mg twice daily). Alinia is a very difficult drug and was for me as well. So I do not suggest people run into it lightly, but talk with your doctor and see if it might be something worth more consideration.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
posted
I want to update my earlier heparin experience to 102 fever, sweating through clothes and then whole body shaking from cold. This has been going on for two days.
My doc's office (receptionist) just called me back and they want me to go off for a few days to reboot and then start up roceph at 1/2 dose for 2 days then work up again.
I ran the heparin getting the babesia by her and she thought it was a very intersting possibility. She had forgotten about the heparin babesia connection.
I think I will start back at a lower dosage of heparin as well. I am at work now, have bounced back, temp is almost normal, but I was still sweating when I started on my first patient (acupuncture). She said "Oh my God, it looks like you have malaria!"
I have stopped sweating and fever and all and feel great now. It has been 27 hours since my last dose.
Posts: 588 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
^^^^^ for Babesia treatment going to slow
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/