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» LymeNet Flash » Questions and Discussion » Medical Questions » Anybody walk out of a wheelchair from treatment?

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Author Topic: Anybody walk out of a wheelchair from treatment?
aliyalex
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Or do you know of those who have and I can search their entries? I have been in a w/c for about a year and am getting stronger with treatment and can finally do some weight-bearing.

Any wheelchair to walking buddies? Thanks.

Posts: 830 | From Colorado | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
hshbmom
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My neice couldn't get out of bed when she was a teen, but is now on her feet & participating in life over 10 years later.

She had Lyme. I only assume she also had coinfections.

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Aniek
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There is a doctor who is in your state of Colorado who was in a wheelchair and had been diagnosed with ALS before Lyme. After IV Rocephin he no longer needed the wheelchair.

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"When there is pain, there are no words." - Toni Morrison

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map1131
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WOW, there you go Ilene. I told you the other day you will get better. Now just find others and see how they got rid of the walker/wheel chairs.

Cave can probably give you some advice on what helped her.


Good post aliyalex.

Pam

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"Never, never, never, never, never give up" Winston Churchill

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lymemomtooo
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There is a lady in our support group that was previously diagnosed with MS. After Lyme disease treatment she has gotten most of her life back. She was either in a wheel chair or close to the use of one.
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Rianna
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I was bed bound for 18 months needing 24 hour care after progressivly getting worse over 7 years of no diagnosis. It was suggested I could have LD and I tested positive.

After 14 months of treatment I am out of bed, I can drive to the Shops some days and can do my own house work now, albeit little bits. It has been a long hard road and I am told I have a long way to go but I have come so far, its still very difficult every day but to where I was its amazing.

Rianna

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Rianna
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JRachel11:
First of all I want to send my hopes and prayers for your recovery.

Seizures - Are you taking or had Bartonella meds as seizures can be very much part of Bartonella.

I am sure many people here will reply to your post although I hope you do not mind but I have started a new topic to ask for stories of recovery. 'Recovery stories pls for severe Neuro Lyme Sufferer'

Much Love Rianna

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Meg
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Interesting read here
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=015820

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Success Stories---Treatment Guidelines

Posts: 10010 | From somewhERE OVER THE Rainbow | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
groovy2
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I ws bed bond for about a year -

Now Im doing Flips off the Diving board-

OK OK Im only doing Belly flops off the side
-Jay-

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Clarissa
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Not a wheelchair inspired story...but still very inspiring:

My sister-in-law was going blind in one eye, having tremors, motor skill problems and was diagnosed with an early onset of MS (she was in her late 20's) by a top neurologist in Boston.

Coming from a Lyme family, my Mother got her to an LLMD and she tested positive for Lyme.

2 years on various orals and she totally recovered. She re-gained her vision and now, literally, runs marathons!

I'm talking the 26-mile kind. She's an inspiration to me!

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Clarissa

Because I knew you:
I have been changed for good.

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David95928
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One of my students had an MS diagnosis and deteririaed to teh point of being in a wheelchair for about six months. She then was treated, got up an walked, and now is attending college full time.

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Dave

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Lymetoo
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Wow!! This is an inspiring thread!! Keep going, Aliyalex!! [woohoo]

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--Lymetutu--
Opinions, not medical advice!

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aliyalex
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MAP especially thanks for PM-ing me. My computer died and I forgot I posted this. Wow. Thank you so much for all the support!

Talk about 2 steps forward and 1 back...I rolled down a hill and`shattered my femur 7 mos ago and a few days ago I mysteriously got a hailine fracture in my foot that I have been trying to weightbear on.

After my 2nd appt with Dr`K I stopped progressing. Then realized I could wiggle my toes. Now my bladder control is much better and I am putting weight on my legs` when I transfer.

I am having trouble standing with the walker, tho I know that is my next step.

This thread seems to be helpful to many, let's keep it going.

BTW, I was on tons`of abx including a PICC line and`only got worse. Dr K started me om aggreassive abx and I`was stiff as a board and couldnt detox. Now I am on cholestryamine and much more, but not abx.

That was helpful about tying knees together. I can hardly move my legs to push backwards. Anymore thoughts? Thanks.

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CaliforniaLyme
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We have had in our local group 2 people lose wheelchairs for MS Lyme- one for ALS Lyme and one lose a 3 headed cane- MS Lyme- all walking now- all normal now except 2 on maintenance abx-

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There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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aliyalex
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DId anyone else have trouble opening Meg's link?
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Meg
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I double checked the link and it still works for me.

You can access this same thread at the top of the General Support Forum.....It's called Success Stories [Big Grin]

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Success Stories---Treatment Guidelines

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aliyalex
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Very interesting link. Thanks Meg, I had lost the internet connection. Got it now.
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njgirl14
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This thread is encouraging to me.

I am practically housebound and can barely walk with a walker. My legs are so weak and feel like jelly and I have a hard time just standing. I get very discouraged as I have gotten worse over the past 2 years since treating lyme. Of course all the questions from well meaning family about "why are you getting worse?" doesn't help my morale any either. I was dx with MS for 6 years before lyme dx.

In another thread Californialyme you said about ALS and getting worse with orals. I thought that was interesting. All the LLMDs that I have seen say they do not know why I keep getting worse. This is the first time I have heard anything like that, that would explain my situation even though it was not an ALS dx. I have been on IV a month now.

Do you have any more info CALyme or others? Thanks for listening.

Posts: 262 | From nj | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
oxygenbabe
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NJ Girl maybe hyperbaric oxygen would help you regain muscular function.Do a search on this site or member boejr she is a nurse with a chamber who treats lymies in New Jersey.
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njgirl14
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oxygenbabe - Is that Julia you are talking about? I talked to her a year ago and I will definately go to her when I do HBOT. She is about an hour from me. Right now I am treating for Babesia and I have heard conflicting info as to whether HBOT can make this worse. My LLMD thinks it does not. I am doing a detox IV treatment protocol now and can't afford both that and HBOT.
HBOT is something I will try in the future though.

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oxygenbabe
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Yes it is Julia.
Rest assured it will help you get stronger.

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Parisa
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njgirl14,

What about IVIG? Can you get a neurologist to recommend it?

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njgirl14
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I have not investigated that yet. I need a new neuro - any recommendations?
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aliyalex
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Attempting to return to topic. Anymore stories for we late stage, chronic lymies?
Posts: 830 | From Colorado | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
   

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