LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme & Pancreatitis

 - UBBFriend: Email this page to someone!    
Author Topic: Lyme & Pancreatitis
Northerner
Member
Member # 4215

Icon 4 posted      Profile for Northerner     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hello!

My brother who has Lyme Disease has been having serious problems with his pancreas. He has trouble eating anything and has been in steady severe pain. Yesterday the doctor told him that his pancreas has shrunk to half its normal size!! I was wondering if Lyme has attacked anyone else's pancreas? And if so, what are you doing to treat it? Does anyone know of any natural supplements that could help it?

------------------
Northerner


Posts: 38 | From Minnesota | Registered: Jul 2003  |  IP: Logged | Report this post to a Moderator
Aniek
Frequent Contributor (1K+ posts)
Member # 5374

Icon 1 posted      Profile for Aniek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Is he currently taking medication to treat the Lyme? If so, the doctor should have had a serious conversation with him about potentially needing to stop medication.

I showed early signs of pancreatitis, and reduced some of my medication and cut out all alcohol and most vinegar from diet. My enzymes went back to normal. But I was far from your brother's stage.

Pancreatitis is very serious. If you feel your brother's doctor does not have a good grasp, you should get him to a specialist ASAP. This is not something that you treat on your own with herbal supplements. There might be some that can help, but make sure he gets proper treatment.


Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
duramater
LymeNet Contributor
Member # 6480

Icon 1 posted      Profile for duramater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Northerner:

I have pancreatitis and was hospitalized for it back in January. Thus far, tests have not shown any cause (alcohol, gallstones, etc) for it so perhaps it has to do with the Lyme. I was not on any medications, so we know it wasn't that either. If there is a pancreas-Lyme connection it is quite rare.

There is at least one other person I know of who also is dealing with pancreatitis and Lyme.

Supplement-wise, the doc has me taking digestive enzymes as that helps the pancreas not work "as hard." That was something they gave me in the hospital too (along with not eating at all and taking acid-blockers). Basically, you can't really fix the pancreas, you can only let it "rest" by taking over its functions (as they did in the hospital for me).

This isn't something you can take care of by yourself. Doc needs to follow this.


Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
Northerner
Member
Member # 4215

Icon 1 posted      Profile for Northerner     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Aniek & Duramater!

Thank you both for your replies and suggestions. No, my brother isn't currently taking antibiotics, but he has in the past.

For many years he has been screwed over by the doctors that told him nothing was wrong, while his pancreas grew steadily worse. This week he saw a new specialist doctor that told him his pancreas is so far gone that it is almost too late to treat him. He has some more tests that they are doing on him, and then the specialist is going to give him some enzymes and maybe other medicine to try to stop the destruction of his pancreas.

This whole deal is another classic example of how terrible patients are treated in the mainstream medicine world these days. He has been to the ER and almost dead with hardly any pancreas left, and everyone tells him he's fine. How can the tons of doctors he's seen over the years not catch this? Did they even try??

This makes me furious! Myself, my mom, dad, brother, and dog all have chronic Lyme Disease. And we have all been treated like trash for years. I'm sure that many of you on LymeNet can relate to all of this. You guys are a wonderful support group to come to everyday.

Thanks again Aniek and Duramater for your replies!

------------------
Northerner


Posts: 38 | From Minnesota | Registered: Jul 2003  |  IP: Logged | Report this post to a Moderator
Nancy-OH
LymeNet Contributor
Member # 3567

Icon 1 posted      Profile for Nancy-OH     Send New Private Message       Edit/Delete Post   Reply With Quote 
I found this thread to be very interesting.

I was treated for Lyme for 2-1/2 years and I'm now in "remission".

Following treatment with an Osteopath trained in Chinese Med. One of the things he has me on is Panplex 2-Phase (concentrated pancreatic enzymes with HCI).

I was amazed what a difference it made. I've been reading about digestive enzymes and how cooked food destroys imporant enzymes needed in digestion.

I'm actually not as hungry now that I'm supplementing these enzyes. What a blessing!

He also has me on Antitox Gentle Drainage. When we suffer from Lyme, we are full of sludge and need to detox. I wish I had done this along with my Lyme treatment.

Any way your brother can detox would help him, I'm certain. If he can find a FIR Machine (infrared sauna). It doesn't get as hot as a Swedish type sauna, but draws the toxins out from deep....even from organs.

Even people with heart problems can benefit from a FIR Mahcine.

It brings the toxins to the surface of the skin where so they can be sweated out.

Best of luck!
Nancy



Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
tick sick
Junior Member
Member # 50341

Icon 1 posted      Profile for tick sick     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have 5 children with congenital tick-born illness. Two of them developed pancreatitis. Both had relatively mild pancreatic enzyme elevations, but severe symptoms. Both had classic presentations, but I had to push for additional work up. Both ER doctor and GI specialists were dismissive and wanted me to take them home. I refused, knowing that both had Babesia. In dog studies a significant number of Babesia infected dogs developed pancreatitis. I told them this and they looked at me like I was crazy. At my insistence both were admitted with a different diagnosis. Within 48 hrs. both were in the ICU with severe pancreatitis.
I have not come across any literature linking Lyme with pancreatitis, but definatly Babesia, which can be present and difficult to diagnose. A skilled and patient lab tech may see it in red cells if you are fortunate enough to have some in your sample. Sometimes you can get a positive PCR at IgeneX, but again, there must be Babesia in the sample. Often the number of organisms present is low, but still cause a lot of trouble. Usually it is a clinical diagnosis.

Posts: 1 | From PA | Registered: May 2017  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow. tick sick. This is very valuable information.

Do you happen to have a link or a citation for the dog studies that linked babs to pancreatitis? That would be very valuable for people on here to have.

I love reading about how you forced the hospital doctors to treat your kids! But, you are one in a million.

Maybe with the references to the studies, every person on this site could do the same.

Those of us who have been on here for a while remember a man who died in the hospital because they refused to treat him for babesiosis since they couldn't find it. His wife was very informed, but still powerless to get them to act. Very upsetting.

Welcome to LymeNet! You have made a very valuable contribution to our community! Thank you.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.