Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Are there any good,easy to understand,inexpensive Books or Booklets on LD it's symptoms and the affects[effects?] on a person available?
We need to find something,relatively soon,to educate our church folk,about what is happening to me,and what often happens with Lymers in general. They are polite and loving,but at times many just don't get it. I am a Pastors wife,and people expect to see me in services. Often I cannot make services,at this point in my life.
I definetely cannot lead a large study, [six or eight gals is about my limit...on a good day]. Now especially if I've had a bad preceding week, I do my level best to work w/ these young ladies and young married women.
It at least helps me feel like I'm still connected to others,for me,it's in a helpful way. At least I can still do something to help others.
TxCoord[Pastor Hubby, who is also an 'At Risk Youth' Counselor] and I are going to try an update letter once a month for our Church folk. A good book/booklet on the subject of LD/Co-infectant symptoms and problems would be so helpful!!!
Any ideas, tho'ts? It would be so appreciated. Thank You from Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
an excellent book is "coping with lyme disease" by denise lang. runs about 15 bucks i think. can be bought at barnes & noble.
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
The best semi-technical thing I"ve seen is Stephen Buhner's Healing Lyme. Even if you don't do the herbal approach, his explanation of the disease, the symptoms, and the political climate that prevents some patients from getting good care, is a very good introduction to the illness for patients and their families and friends. I"ve suggested to several people to buy the book and photocopy the first few chapters (leaving out the herbal treatment section) just as a good primer to hand out to their families.
-------------------- Symptom Free!!! Thank you all!!!!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Helloooo,and Thank you so much for the info'!!!
I'm gonna show this info' to TxCoord.Between us,maybe we can remember this,and get a hold of some of these books and brochures!!!
With much appreciation from Silverwolf!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
"Everything You Need to KNow About Lyme Disease" is a comprehensive book on Lyme. I recommend it!
Posts: 364 | From California | Registered: Sep 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Thanks again to each of y'all!!!
Gonna copy off the info' in a bit. Weary right now, I am up earlier than usual as we had a pupperdog w/intestinal issues. Got her outside at least. Now she is sleeping,and I'd like to be.
I sure apprecaite the info' and thot's, will BBL !
From Silverwolf In Boots n'Thinking/Researching Cap [if I could only find mah brain].
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
bonny,
LymeR Primer....do NOT order this once; very hard to read since it's timesnewroman in small print!
i retyped that since it deals with CO-INFECTIONS;
2 easy reading books LDA sells are these:
LYME DISEASE IS NO FUN: Let's Get Well for kids 8-12 yrs. old
LDA's LYME DISEASE UPDATE: SCIENCE, POLICY & LAW
current prices can be found in BOOK AREA, LEFT SIDE; both were a total for 2 of $20 - $22 tops! ***********************************************
also from my newbie links/advise:
"But You LOOK Good: A Guide to Understanding and Encouraging People Living with Chronic, Debilitating Illness and Pain!"
I ordered some pamphlets that could be part of your church's "pamphlet ministry". The founder has lyme, but the info is geared for all invisible illnesses! Check it out, and clink on several links on this site! Lots of good articles to print and share!
I clicked on an add on the bottom that took me to a sister sight the founder of MYIDA started to deal with the God and church aspect of these illnesses. The direct link to this website is www.whereisgod.org
Some of the info and articles are the same as the other website, but some are written for churches! I ordered a book called "Being Sick Well" but have not read it yet. I loaned it out and just got it back. If you are interested I will be glad to share the contents etc.
MommaK
Posts: 242 | From Mississippi | Registered: Oct 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Thanks for the info'<<<<< Allayall >>>>>, wow there's alot of good stuff available it looks like!
I was hoping to check out the wereisgod/Mindspring deal too. But all I get is a white screen w/ the Mindspring logo/site deal [sorry Lyme Brain Lameness is fogging my tho'ts again].
We'll keep trying! I apprecaite this,maybe it can help others understand a little better. I have a friend w/ an "Invisible Illness " as well.
Love from Silverwolf.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
What about the nice tan booklet a patient in Pennsylvania gives out???
Tincup sent me a box and people were most receptive to this because it wasn't alot to read.
I'm sorry I don't remember the name since I gave all of them away!
Anyone?
Posts: 4258 | From over there | Registered: Jul 2001
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Click on the link and it should take you straight there. I double checked it by going to www.myida.com and clicking on the where is God when we suffer add at the bottom!
Hope this helps!
MommaK
Posts: 242 | From Mississippi | Registered: Oct 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
For books I like "coping with lyme Disease" By Denise Lang- Third edition. I got mine used on amazon a while back.
Don't know if you can print out the above link but you could e-mail them & ask if its alright to print out it & pass along to your church members.
Hope this helps Dana
I am not affliated with the the sales or author of the above book
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Cool, Thanks <<<<< MommaK >>>>> I'll check this site out!!! Might be that Pastor TxCoord and I can use this to help a number of folk,dealing w/ chronic health issues!!!
My friend w/ Lupus might find this helpful as well [I've wondered if she might have Lyme as well as Lupus,but her family isn't quite ready to check all that yet].
It goes into the site now!!!
Gotta run [well I am in my tho'ts LOL], fighting soem pain issues today and I have a Young Womens study in a couple of hours BBL...
Just saw your reply <<<<< 5Dana' >>>>> I apprecaite the replies and info' so much. The more info' we can get out there,the less stress for us.And the more chances of others recognizing TBDs before they get to severe,or preventing them,even better!!!
Er .... <<<<< Sizzled >>>>> I'll check around on that patient tan booklet...maybe there is soemthing in the Newbie links??? Okay,I better skidaddle for now ...Jus Silverwolf! BBL
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hellooooo All,
Sorry It took me so long to get back here,I've had the Migraine/Sinus-Weather thing from the 7th level of He** since about Feb.6th. It is finally calming down,tho' I don't like to even have to sneeze for fear it'll come back.
I wanted to say I appreciate the info.' and links you posted for me! Thanks very much!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
sorry to read you've been so sick; glad you are feeling better now.
PJ, Paula Langhoff, Wisc. is writing her 2nd lyme book and asked folks to send her their lyme stories especially about MEMORABLE MISDIAGNOSES!
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there is alot of information under Newbie links, www.wildcondor.com and you can also do a search on youtube for "lyme" and you will get several microscopic videos that will be eye opening to them.
Blessings
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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