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» LymeNet Flash » Questions and Discussion » Medical Questions » Sleep and a Sleep Study

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Author Topic: Sleep and a Sleep Study
Member # 7922

Icon 5 posted      Profile for cgooge   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know most everyone here has trouble sleeping. Has anyone done a sleep study and if so what was ever determined?

My wife is going for one soon as her inability to sleep is a major problem.

If only we could find a sleep medicine that worked for her......


Posts: 82 | From Summerville, SC | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
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Member # 7603

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Yes. Sleep is my #1 main symptom of Lyme and major complaint. It is just the worse. I've had this symptom for over 20 years now, and it makes life hell.

I DID go for a sleep study, finally, not too long ago. It showed some pretty abysmal things.

As I recall, it showed a complete lack of REM sleep, a sleep 'efficiency' of only 23%, a complete lack of deep stage IV restorative sleep, and they said something like "the EEG patterns seen during this patient's sleep are the same as for someone in considerable pain".

So yeah, it did show a lot.

There is even a published paper showing that chronic Lymies have measurable disturbances in sleep.

I've tried every med out there (I think). I currently use Xyrem, the date rape drug (!), and it does really help. Other things that are helpful are mirtazapine, Klonopin, painkillers, trazodone.

I had a really bad experience with Seroquel (gave me night terrors), but some people do well on Seroquel for sleep.

Please post what the results of the sleep study were, if you can.

Good luck!


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Junior Member
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Im 14. Over the past 2 years I have been experiencing chronic migrains,nausea,and dizziness. I started to have severe seizure like activity and twitches and collapsing episodes.I have a gluten sensitivity. My muscle feel achey and like their on fire!I have congnitive delays with memory and speech.I have many other symptoms. I recieved many concussions so it is possible that it could be that but its been 2 years so I'm looking for an alternative diagnosis. I was wondering could this be lyme?
Posts: 1 | From St.Louis,MO | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Virginia of Yore
LymeNet Contributor
Member # 3269

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Why not just ask a lyme literate doctor (LLMD) to give you a Western Blot lyme test to at least rule it out? While you may have some of your issues from the concussions, perhaps you have a combination of factors causing so many problems. If you need a lyme doctor in your area, this site and others like LDA may be able to help link you up with one. (A regular doc might want to just do an "Elisa" test, but it is not very reliable, just used as a sort of pre-screening test by some. I would find an LLMD to do an initial Western Blot test, and see what it says.)
Posts: 193 | From Virginia | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator

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yes, i had it done; same results as someone above. NO DELTA 4 SLEEP WHERE BODY RESTORES ITSELF AND YOU WAKE UP FEELING UNREFRESHED.

future sniper; sorry, but i HATE your name with a passion due to all the severe violence incidents occurring. would you consider changing it, and start with another one; you can NOT edit a name, but can edit ALL POSTS/REPLIES.

nevertheless, i will send you my newbie package info of 81 pages...links, advise, SYMPTOMS, TESTINGS, disability, and much more including treepatrol's archive of over 1000 links of good lyme info.

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