posted
Has anyone had a spinal tap, only to have more symtoms appear after? Can the MS markers in spinal fluid be present in LD?
I had a spinal tap 2 weeks ago. Results came back positive for the "bands" and another immunoglobulin. I have brain white matter lesions (but not "Classic MS" according to the neuro) and a ton of other symtoms.
The neurologist is now saying "probable MS"
Ever since having the spinal tap, I have new symptoms, which are pretty significant- feeling of chills in my body (mostly my back and down my legs, but sometimes my whole body and head) AND
a humming sensation down my lower back, butt and legs when I bend my head and upper back forward.
My neurologist has asked me if I have had this over the past few months- I believe it's called L'Hermitte's sign. I always said "no" but now I have it...AND
I just noticed 2 days ago 2 small weird white things on my left hand right where the thumb meets the hand, palm side. They look like small white scars, about the size and shape of grains of rice....related?
Posts: 55 | From North Carolina | Registered: Dec 2007
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posted
My only MD appt. since the spinal tap was w/ the neurologist to discuss MS meds.
We did not discuss the new symptoms, mostly because they had only just started and I felt they were the result of laying flat for a week due to the spinal headache.
One of my many weird symptoms is a popping or cracking in my upper back between my shoulder blades. Every time I take a deep breath it cracks/pops...it really started to happen while I was laying flat for the week, almost every deep breath I took.
I did ask the neurologist about lyme and he said it is a bunch of bulls**t.
I've had my varied symptoms since 8/07 and have seen my main MD, the neurologist and a hand surgeon since; neck x-ray (fine), cervical x-ray (fine- although the neuro says there's probably lesion(s) "hidden"; brain MRI (lesions- not typical MS); spinal tap (shows bands and another marker for MS)
I have an appt early 1/08 w/ a LLMD.
I have had no lyme tests yet.
Posts: 55 | From North Carolina | Registered: Dec 2007
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posted
I have a particular interest in these stories, and here is why...
My Mom was given a diagnosis of MS in 1987 at the age of 30 after she had symptoms for a couple of years.
She was never tested for anything else.
She began treatment and quickly went downhill - the more she was treated, the worse she became.
3 years ago she passed away at the age of 46.
This year, my 3 sisters and I were all just diagnosed with Lyme and co-infections.
We all had symptoms as children, but tried to ignore them. I believe I was reinfected 12 years ago.
It seems likely that our Mom never had MS, but was misdiagnosed and had passed it on congenitally to her children.
Will we ever know for sure? No. But it seems likely.
My point is, you need to be very careful with a diagnosis of MS. Studies are showing it is very frequently misdiagnosed.
I don't want to give you false hope or say that your doctor is definitely wrong, but I think you should definitely seek more opinions and more testing.
The symptoms of Lyme overlap with so many other diseases.
Have you thought about testing at Igenex?
Please keep me posted:) Jackie
[ 19. December 2007, 05:08 PM: Message edited by: justwondering ]
Posts: 209 | From maryland | Registered: Aug 2007
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posted
Oh, and about your back cracking? Mine does the same thing with every deep breath I take. It is loud enough for everyone around me to hear it...
I don't remember when it started, but it happens in most of my joints, not just my back.
Posts: 209 | From maryland | Registered: Aug 2007
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