Topic: To everyone with cardiac symptoms please read!!!!!!
btmb03
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I am still shaking in my boots. Just finished watching Dr. Cheney's video over the internet..on CFS Diastolic Cardiomyopathy.
Sorry don't have energy to copy/paste but just google: CFS Diastolic Cardiomyopathy Dr. Cheney and the video starts immediately after you click on the site.
This may have been discussed here before so this might be repetitive.
I am stunned..but I warn everyone, it took a lot of brain power the last several days and stopping/starting to follow what he was saying.
And yes, it definitely can pertain to Lyme since so many of us have both!! Please watch and post your opinions!
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Keebler
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- I have the links and some excerpts in my file.
Remember, though, that treatment for infections can bring improvement. That part is not really in the video. Remember, with treatment - and time - things can get better.
The information about Diastolic Cardiomyopathy and Cardiac Insufficiency is meant so that patients do not overdo the stress on their hearts and have patience. This is serious but, with attention, it can improve.
I'll be back with links. -
[ 05-23-2010, 01:08 PM: Message edited by: Keebler ]
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Keebler
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- The links below were presented to the CFS/CFIDS community. While some (many?) cases of CFS might be undiagnosed lyme, this information may be helpful to patients across the board.
Even if from lyme, it helps us understand how better to take care of ourselves while seeking treatment/resolution. ==================
You can watch the video - for free if you have fast speed internet.
More recently, physicist, physician, long-time ME/CFS researcher and clinician, and heart-transplant recipient Paul Cheney, M.D., Ph.D., has offered an alternative theory that a subset of ME/CFS patients suffer from a
diastolic cardiomyopathy, a problem with ventricular filling resulting from mitochondrial dysfunction and low ATP energy in the heart.
VIDEO: A three-hour talk by Dr. Cheney on diastolic cardiomyopathy and ME/CFS.
"CFS and Diastolic Cardiomyopathy" - Paul Cheney, M.D., Ph.D.
There are links to TWENTY articles on this topic at this link. Among those:
Hawthorn extract for treating chronic heart failure: meta-analysis of randomized trials.
Am J Med. 2003 Jun 1;114(8):665-74. [PDF Format]
=======
There is new research from a New Jersey team, authored by Doctors Arnold Peckerman, Benjamin Natelson et al., which found left-ventricular dysfunction following exertion and orthostatic stress in patients with myalgic encephalomyelitis/chronic fatigue syndrome. . . .
. . . In an NIH-funded study on impedance cardiography also linked . . . , Peckerman and Natelson found that low cardiac output correlated with symptom severity in ME/CFS. . . .
EXERCISE INTOLERANCE ------------------
Dr. A. Martin Lerner: " . . . Viral infection persists in the heart, causing left-ventricular dysfunction, producing exercise intolerance.
. . . "Exercise, in turn, worsens the cardiac dysfunction. "
- Lerner has seven articles at this link.
=====================================
Again, presented not to sadden, but if there is a dysfunction, treatment for underlying infections and employing support measures can make a difference.
the link to the Hawthorn research above holds hope. I feel so much better when I take that. -
[ 04-15-2010, 06:07 PM: Message edited by: Keebler ]
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Keebler
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- You can read customer reviews and look inside the book at this link to its page at Amazon.
This book focuses on lyme patients and also those with Cpn (Chlamydia Pneumonia) - and the effects of high cortisol from stress. Suggestions included in the book are very helpful:
[Post-polio expert] Dr. [Richard] Bruno points out that physical over-activity is the biggest cause of post-polio symptoms. [3] (See Dr. Bruno's "Fainting and Fatigue" in the Spring 1996 CFIDS Chronicle, page 37.)
EXCERPT:
when mice infected with Coxsackie B3 were forced to swim in a warm pool, the virulence of the virus was drastically augmented.
In fact, viral replication was augmented 530 times. This did horrendous things to the animals' hearts. We all know that to play squash with the flu can lead to heart attacks. Much the same danger can be courted by undertaking hard exercise with M.E. (end quote)
==============
This may be just one reason why non-aerobic, gentle, exercise is suggested for lyme patients. It's good to move as best we can, but aerobic exercise, with any infection, may put the heart at risk.
And since some chronic stealth infection can even go beyond lyme and the tick-borne infections:
If you have been ill with various multi-systemic symptoms and the doctors have run many tests on you and cannot figure out what is wrong, then consider getting these tests done.
40678 Lyme C6 peptide 2034 Lyme IgG and IgM western blot
Tick borne disease tests (Q-Fever through Lyme tests) can also be run at Igenex: www.igenex.com
Getting tested at Focus Diagnostics Lab can be a bit of a problem, unless your doctor has signed up for an account with them. Here's some links as to how to get the testing done. These links are at the HHV-6 website, and you must sign in to view the posts.
And may I add to the list of things to test for: enteroviruses. Using Arup lab. The enterovirus website is not quite operational yet, but it will have loads of info on it soon.
A friend of mine is now 95% well after being sick for several years (very sick). She has been on antibiotics for lyme/coxiella, valcyte for high EBV and HHV-6.
She saw improvements from both treatments. She is now almost well by treating the enterovirus with oxymatrine. She had multiple pathogens making her ill.
Topic: Parvovirus B19 should be included in Lyme differential Dx!!!!
AliG - posted 12 October, 2008 -
[ 10-04-2010, 01:06 PM: Message edited by: Keebler ]
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Keebler
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- I feel bad posting all this stuff. I've had these links for years and don't have the energy to work through it all - or find it too much of a downer.
Still, knowledge is power. But we need also more than knowledge.
Remember the power of healing arts such as singing or learning a musical instrument . . . yoga . . . Qi Gong or Tai Chi, too.
Be sure to intersperse with your study, some joy - even if just in appreciation of nature/art /music and of those good people around you.
That will help to nurture any heart. -
[ 05-23-2010, 01:09 PM: Message edited by: Keebler ]
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btmb03
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I agree, dr. Cheney even talks about the importance of meditation, deep breathing, even touches on spirituality.
Appreciating the world around us takes on a whole new meaning with these illnesses!
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watched 2 hours so far.....awesome information, but also, depressing too......
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btmb03
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it is a bit hard to take since Dr. Cheney is so clinical..i missed the part of the MD in Germany who is doing stem cell treatment..
as he said, we have a systemic disease so it will take many different modalities..
disturbedme
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I don't really have the patience to sit and listen to all of that. So long....
It's probably something I should listen to but would make me depressed since I have heart issues thanks to this illness. And the heart issues scare me a lot!
Treatment for two years and still no change in symptoms of heart getting better... and the worst part is I'm only 25... I shouldn't have to worry about heart issues.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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btmb03
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I know what you mean disturbedme...but this actually shed light on many issues--initially scary but after thinking about it I realized the docs have missed so much, wonder if this another piece of the puzzle (that always makes me feel better).
Crappy having this illness and heart issues, sorry that you're also going thru this.
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disturbedme
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Well, this illness is what gave me the heart issues...
I will have to watch more of the video then. In spurts.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Can someone summarize what he says? I'm too impatient to sit and watch something lengthy. I have heart issues too .. but my attention span is short!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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btmb03
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I truly wish I had the brain-power and stamina to make a synopsis of what dr. Cheney talked about.
It's also very complex - perhaps watch it the way I did - a little bit at time and focus on the parts that are interesting/important to you (ie: gut vs brain vs. cadiac output).
I also think I'm coming down with a whopping cold/flu or something..time for the hot tea and tylenol.
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Cheney's work is essential in understanding the heart and CFIDS, but it's important to look at those who came before him too.
Dr. Martin Lerner was studying viral infections in the hearts of CFIDS patients for many years before that, and his work formed the basis for the Valcyte trials going on now.
Lerner treated HIMSELF with antivirals for six years for a heart infection (viral) and he's a cardiologist: I think about that (I saw that on a YouTube video of him lecturing) every time I lose patience. Six years.
So recovery may be possible and just may take a long, long time.
Also, John Richardson in the UK studied CFIDS/ME and enteroviruses for many many years -- I have yet to read his book but plan to read it soon. And Arnold Peckerman did the research Cheney cites.
This is important partly because Lerner and Richardson were talking about viruses, and studying viruses. I get frustrated when people do the Lyme=CFS equation because it's far more complicated than that.
Lerner did myocardial biopsies so the discovery of viruses in the hearts of his patients was confirmed through tissue samples.
But Lerner also found, and spoke about not long ago, that one subset of his CFIDS patients have only a virus, and another subset have a virus plus a coinfection including Lyme and/or babesia.
So this again points to the importance of treating viruses.
I have used the magnesium cream and Nexavir that Cheney talks about in that video (he talks about both improving heart function) and I think both are useful. Not cures though.
I hate posted so much serious stuff. I would have loved to have become a comedienne, really. But, like much art, I can appreciate it much more readily than actually creating it myself.
So, with all this serious stuff, I try to interject some play when I can. -
[ 05-23-2010, 01:20 PM: Message edited by: Keebler ]
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Dr. Cheney is going to be announcing the results of his stem cell/heart trials (using pig and human cells) in mid to late April.
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I have had open heart surgery due to Lyme-now that is scary.
I still continue to have bad cardiac issues, and I am only 30 years old!
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btmb03
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A friend who has CFS told me that Dr. Cheney initiated stem cell tx with two patients. How is that possible? I thought stem cell research was only allowed under very specific circumstances?
Despite the hoopla around stem cell tx I do think it's the way to go. My opinion only.
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Astria - open heart surgery!! Could you explain what it was for? Apparently Lyme infected your heart but how and what did they do?
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Cheney ended up having a heart transplant himself, so obviously he's going to be looking at cases like his.
Lerner, on the other hand, was always convinced that a virus was the cause of his heart probs and he treated accordingly (for a long, long time) and he seemed to get better.
I had absolutely terrible, incapacitating heart problems, terrible arrhthmias, non stop, all day and all night long (could'nt sleep for my heart stopping as soon as I fell asleep) and now all those bad symptoms are gone!
My pulse is completely normal and regular, never have the slightest ectopic beat, no more heart stopping in the night provided I keep taking me Lariam every week.
If I miss a dose, or if I go over a few days after it's due, I get a warning from my heart, a flutter or two, then I say: when was the last time I took my lariam? and invariably I'm a few days overdue for my next dose.
So in my case heart things are kept in check with Lariam (is babesia what makes my heart bug? )
Nelly-Paris-France
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Lerner treated himself for cardiomyopathy too -- that was how he got interested in it. He divulged this in a lecture I watched on YouTube you might be able to find -- really interesting. I don't think he talked about it in the past b/c I never knew that and I've really followed his research. So I guess it takes fixing one's own heart to understand the heart. . . or something.
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Keebler
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- ABC News does a good job here of explaining various cardiac conditions involving a irregular heart beats. Also, see the links below for QT syndrome. I'll be right back with those.
Roger Moore, Elton John Have Type of Arrhythmia Suspected in Death of Breslin's Daughter
By SUSAN DONALDSON JAMES - April 25, 2009--
When does that heartbeat that skips after too many cups of coffee or lurches erratically at night lead to a fatal arrhythmia?
"That's a popular question," said Dr. David Haines, director of the Heart Rhythm Center at Beaumont Hospitals in Royal Oak, Mich. "Almost everybody has a palpitation or skipped heartbeat and the overwhelming majority are benign."
But more than 250,000 people die each year in the United States from sudden cardiac deaths, and most of those are thought to be from ventricular fibrillation.
Just this week, the 44-year-old daughter of famed New York City newspaper columnist Jimmy Breslin died unexpectedly from what doctors think may have been a sudden death arrhythmia.
Kelly Breslin died four days after collapsing at a Park Avenue bistro where she had enjoyed a steak and fries at a friend's birthday celebration. After eating, she put her hand on the leg of the person seated next to her and collapsed. . . .
- Full article at link above.
===================
Now, not to discount medical exams but to shift from fear to empowerment, it is also important remember the positive effects that magnesium and calcium to help regulate cardiac rhythm. A deficiency in either can trigger irregular heart beats.
And, going back to the work of authors listed way above, there are some things that we can do to help ourselves. And, sometimes, a good quality very dark chocolate may just be the ticket - in addition to expert medical care (although most lyme patients are pretty much on their own to figure out a lot). -
[ 10-04-2010, 01:05 PM: Message edited by: Keebler ]
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Automated Prism system to test for dangerous parasite
NEW YORK, May 19 (Reuters) - Abbott Laboratories Inc (ABT.N) has received U.S. approval to market its diagnostic test for a parasite spread by a bug that causes Chagas disease, a potentially fatal condition found only in the Americas.
Abbott said its automated Prism diagnostic system, which also tests for hepatitis, HIV and other retroviruses, will now test for the parasite. Chagas disease, caused by the parasite Trypanosoma cruzi, is found mainly in rural areas of Latin America where poverty is widespread, according to the U.S. Centers for Disease Control and Prevention.
The CDC estimates as many as 11 million people in Mexico, Central America and South America have the disease, and most of them don't know they are infected. Infection is lifelong and can be life threatening, leading to heart disease and heart failure.
In areas where the disease is endemic, the parasite is usually carried by triatomine bugs. They hide in crevices in the walls and roofs of houses and bite people's faces at night -- and are therefore nicknamed "kissing bugs."
The parasite can also be spread by blood transfusions, organ transplantation, consumption of uncooked food contaminated by the bug, and from congenital transmission from mother to baby. But it is not spread person to person like a cold or the flu, or through casual contact.
Anti-parasite medications can successfully treat the disease in its early acute phases, and can prevent or delay symptoms during the chronic phase of the disease.
(Reporting by Ransdell Pierson; editing by John Wallace) -
[ 05-23-2010, 01:18 PM: Message edited by: Keebler ]
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This is to address the person that asked how Lyme affected my heart-
At the time all they knew was I had a bad mitral valve infection, and it was preventing the valve from shutting all the way.
They put me on 6 weeks of abx to get rid of infec but I had to have surgery to replace valve anyway.
I tested positive for Lyme upon piecing together my puzzle from inputing the symptoms into goggle-main one being the mitral valve damage and it always came back Lyme.
I begged for the test and got it, so docs chalk it up to Lyme.
I still have a heart rate of 120 though.
Hope this helps!
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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This is to address the person that asked how Lyme affected my heart-
At the time all they knew was I had a bad mitral valve infection, and it was preventing the valve from shutting all the way.
They put me on 6 weeks of abx to get rid of infec but I had to have surgery to replace valve anyway.
I tested positive for Lyme upon piecing together my puzzle from inputing the symptoms into goggle-main one being the mitral valve damage and it always came back Lyme.
I begged for the test and got it, so docs chalk it up to Lyme.
I still have a heart rate of 120 though.
Hope this helps!
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kreynolds
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I have been looking for this video......
Astriapage, hope all is well.
I appreciate what you did for me and I thank you from the bottom of my heart( whats left of it).
I won't stop fighting until I get my heart situation figured out!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Keebler
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- MYCO just posted this at another thread:
Yes, I am reading THE SINATRA SOLUTION - Metabolic Cardiology and it is fascinating. Dr. Sinatra in CT has helped many with heart disease and CFS on this combo (must be all three).
Reversed heart failure, high BP and prevented bypass in alot of patients. Amazing read!
(Dr. S) recommends this daily dosage for CFS (Lyme):
15 hospitals to freeze children suffering from cardiac arrest
Later this year, 15 medical centers will begin testing what is called Therapeutic Hypothermia on children suffering from cardiac arrest.
NBC -- Later this year, 15 medical centers will begin testing what is called Therapeutic Hypothermia on children suffering from cardiac arrest.
Physicians routinely use the procedure on adults, but they don't have any data on what it might do for children from infancy to eighteen years of age.
In the procedure doctors place patients on a temporary heart-assist device and packed them in ice to cool down the body. The assist pump allows the heart to heal itself while the induced hypothermia protects the brain.
The University of Utah and University of Michigan will head up a study to see if "cooling" works for children.
"Children have cardiac arrest, either because they are already in the hospital with a very, very severe illness or they have a cardiac arrest outside the hospital because of something sudden and unexpected," explained Dr. Michael Dean of the University of Utah's School of Medicine.
If the heartbeat is restored, but a child remains in a coma, physicians at Primary Children's Hospital and 14 other medical centers will use cooling blankets to drop the body temperature to 32 to 34 degrees Celsius.
The patient will remain at that temperature for three days. Then rewarming over 16 hours will bring them back up to normal, where they will stay for 120 hours.
"If the data looks good, we'll transform the care of children that have had cardiac arrest across the world," says Dr. Dean. Paramedics might even be able to do the procedure in an ambulance while the patient is being transported.
"The animal studies that underlie all of these efforts in the clinical setting are fantastic," Dr. Dean adds.
After one year, with more funding from the National Institutes of Health, the study could expand to include 30 sites around the country.
More than 900 children could be enrolled over the next six years. --
[ 10-04-2010, 01:07 PM: Message edited by: Keebler ]
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Keebler
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- Nice, gentle but powerful exercise:
QiGong & Tai Chi & Yoga -
[ 11-21-2009, 10:01 PM: Message edited by: Keebler ]
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Keebler
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- Less than an hour around smoke can affect the heart . . .
quote: ``And it cited "compelling" if circumstantial evidence that even less than an hour's exposure might be enough to push someone already at risk of a heart attack over the edge -- as the smoke's pollution-like small particles and other substances can quickly affect blood vessels. . . .''
Report finds smoking ban cut heart attacks - Confirms benefits of eliminating exposure to secondhand smoke
(AP - The Associated Press).
WASHINGTON - A major report confirms what health officials have long believed: Bans on smoking in restaurants, bars and other gathering spots reduce the risk of heart attacks among nonsmokers.
More than 126 million nonsmoking Americans are regularly exposed to someone else's tobacco smoke. The surgeon general in 2006 cited "overwhelming scientific evidence" that tens of thousands die each year as a result, from heart disease, lung cancer and a list of other illnesses.
. . .
"The evidence is clear," said Dr. Thomas Frieden, head of the federal Centers for Disease Control and Prevention, which requested the study. "Smoke-free laws don't hurt business ... but they prevent heart attacks in nonsmokers."
Among the IOM report's conclusions: While heavier exposure to secondhand smoke is worse, there's no safe level.
And it cited "compelling" if circumstantial evidence that even less than an hour's exposure might be enough to push someone already at risk of a heart attack over the edge -- as the smoke's pollution-like small particles and other substances can quickly affect blood vessels. . . .
- full article at link above. -
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Keebler
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- In the book, The Clinical and Scientific Basis of Myalgic Encephalomyeltis/Chronic Fatigue Syndrome
authors: Byron M. Hyde, M.D., Jay Goldstein, M.D. and Paul Levine, M.D.
The Nightingale Research Foundation reprinted p. vii which shows three sets of SPECT scans. (1993, I think.)
Taken in resting, post-exercise and 24 hours post-exercise, the images show an immediate post-exercise effect with perfusion and
``illustrate the severely decreased brain perfusion of the same patient 24 hours after the brain has been stressed by physical exercise."
This is a most remarkable piece of paper. You can see the marked impact upon the brain in the nine photos from the SPECT.
I can't find a copy of the page on the web, but you could request a copy from the Nightingale Research Foundation at
Believe it or not, toxic free radical molecules and oxidation by-products are produced whenever you exercise.
Everyone knows that exercise is related to improved muscle, heart and lung function... but it does have a downside, too. 1,2
All of your workouts' positive effects begin with oxidative phosphorylation, a pathway that your body uses to generate energy (known as adenosine triphosphate or ATP) at the cellular level.
Unfortunately, this respiratory process--paired with your muscles' contractions and additional environmental factors like certain preservatives in foods and beverages, sun exposure and smog--produces by-products that pollute your body and lead to the formation of damaging free radicals.3
And studies show that this excess free radical exposure can pave the way to DNA mutations, premature aging and cell death, muscle weakness, fatigue and chronic oxidative stress.4-5
So how can you get the best benefits of regular exercise--without placing your body at risk in the process?
Proper antioxidant support is one effective way: Extensive research shows that safe, natural substances including vitamins A, C and E, N-acetyl cysteine, lutein, rosemary leaf extract, turmeric, green tea, bilberry and grape seed extract are all potent free radical quenchers . . . .
- Cont'd at link above.
======================
In addition to antioxidant support, please refer to Burrascano's guidelines regarding self-care and safe non-aerobic exercise recommendations.
Exercise is vital - it just needs to be the right kind in the right degrees.
(10-10 - this site just changed all its links. The articles are still there but they take some effort - I'll work on this when I get some energy. In the meantime, copy and paste the title with Google to find the article.)
* Magnesium: The Underappreciated Mineral of Life Part II
-----------
All this on magnesium is partly because it has helped me so much. However, be sure to ask your doctor. Most lyme patients are very low in magnesium as the infections seem to do that.
Some are concerned that the magnesium can "feed" infection, however, if the body is severely depleted the body must be replenished as magnesium is a necessary mineral for survival.
Taking magnesium with B-6 helps it get into our cells better. And B-6 is a calming vitamin, too. B-12 important for nerve health, too. -
[ 10-04-2010, 01:09 PM: Message edited by: Keebler ]
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Keebler
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Cpn Help - C. pneumoniae (as discussed in above article) -
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Keebler
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- nenet just posted this great article at another thread. It applies to cardiac function and exercise tolerance details discussed above, so I thought it would be good here, too. -------------------
Lyme Disease - Its Cause, Symptoms & Treatments: An Interview with Professor Garth Nicholson
October 20, 2010 - ProHealth Library
Professor Garth Nicolson, PhD, director of the Institute for Molecular Medicine in Huntington Beach, CA, was a featured speaker at the International Lyme and Associated Diseases Society Annual Conference in Jersey City, NJ on Oct. 14-17, 2010.
This interview highlights key points in Dr. Nicolson's presentation to the ILADS group:
REVERSING MITOCHONDRIAL DAMAGE & INCREASING CELLULAR ENERGY IN CHRONIC LYME & LYME-ASSOCIATED INFECTIONS
- by Garth Nicolson, PhD. - Interview is at the link above. ------------------------------------
- Carol in PA adds:
That article has a link to an article about repairing mitochondrial function with NT Factor. This helps fatigue.
This book at Amazon - see reader reviews. -
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Keebler
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- Re: feeling worse after exertion. Just stumbled upon this at a discussion board.
It's what I've been saying for years, not more tired after exertion, it goes so far beyond that that it's literally sickening.
I can only explain it as: "post-exertional exacerbation of symptoms" for lack of precise words that can come even close to describing this.
This is something that few doctors really understand. MANY of the links here speak to this but I thought this comment would just help others better understand: ------------
. . . In the International Consensus they use the term Post-Exertional Neuroimmune Exhaustion (PENE pen ׳-e). Exhaustion is just another word for fatigue.
I don't have post-exertional fatigue.
I have post exertion symptom exacerbation. Many of use don't feel more fatigued or exhausted after exertion.
ASTAXANTHIN Links -
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nonna05
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I know this was a lot but any updates or is there a simple way to get through to a doctor ,not LLMD, about possible issues..
Test when weak and low electrolites...then symptoms slowed..
But different issues over several years ,but nothing that WORRIES THEM...
WHAT wording ,,I certainly can't mention all thing's listed...I'd get the roll of eye's and exit door..
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Keebler
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- LEARNING A STYLE
I suggest to those wanting to learn Pilates (or Qi Gong or Tai Chi) at home to find a local instructor to come to your home for a few private lessons - or a small group of friends &/or family to split the cost.
Some of the positions are very specific and a lot can be missed if just watching a DVD.
sixgoofykids (a moderator here) is a Pilates Instructor. When asked if there was a particular DVD that she might recommend for someone who is home-bound,
sixgoofykids writes: -------------------------
I'm not too familiar with most of the videos since I've always done it in a studio setting. I know of this workout online. It's 11 minutes, but you might want to have a pause button handy for breaks.
I'm happy to check out any DVD someone finds online, but unfortunately, I don't know which ones to recommend.
Classical pilates is generally done with no music. The reason is that you want to focus on your body and the movement without the temptation to work with the beat.
This aspect of pilates was great for me because I lost a lot of my proprioception (knowing where your body is in space, think of a toddler learning to walk). When I was sick, I wasn't too weak to walk, I didn't have enough control to walk. Pilates helped me reconnect my mind to my body.
What's also good for Lyme patients is most of it is done lying down, which takes gravity out of the equation.
There's a broad range of pilates work, so don't feel limited by the beginner video. Here's an example of advanced reformer work by the same man. http://www.youtube.com/watch?v=32thJdJyK8I (you might want to turn your sound off if you're annoyed by a pulsating beat as the video does have music).
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