LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Does chelation cause herx?

 - UBBFriend: Email this page to someone!    
Author Topic: Does chelation cause herx?
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter recently started IV EDTA once a week chelation for mercury and several other heavy metals. She has felt absolutely terrible since starting treatment. Is this normal? How long before it might actually start to help?
She is under a lot of stress from school right now, but is barely able to function. Not sure where stress, lyme and metal toxicity begin or end. The doctor performing chelation is not her llmd, but is supportive of lyme.

Any thoughts are much appreciated!!
Suzy

Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
mojo
Frequent Contributor (1K+ posts)
Member # 9309

Icon 1 posted      Profile for mojo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Once a week sounds like a lot.

I did IV's with DMPS but only every other week.

I was OK when I did mine, but my twin got pretty sick when she chelated for metals (she also did every other week with DMPS).

Did you speak with the physician who is doing her chelation about this?

I sure hope you can resolve this - I hate when the kids/teens have to suffer.

Posts: 1761 | From USA | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
She's only had 2 treatments so far and the doctor is aware that she is not feeling well. I thnk I will talk to him again at our appt. on Monday. I may call the LLMD also; she wanted an update after a few treatments. She had been worried that if it was done too fast it could cause a crash. The treating doctor has some of his patients chelating several times a week. I wonder how they can take it.

Thanks for your response, mojo!

Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
mojo
Frequent Contributor (1K+ posts)
Member # 9309

Icon 1 posted      Profile for mojo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think it's good that your LLMD is paying attention.

Sounds like you are in good hands.

Several times per weeks sounds like a lot.

Posts: 1761 | From USA | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does your daughter have a positive bloodslide from the Fry lab for bartonella or haemobartonella?

Rumors say that he is treating some patients with oral chelation at very low doses to either dissolve biofilms or improve antibiotic penetration.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's interesting. She did test positive for Bart several years ago. Do you know which chelating agent he is using?

Thanks!
Suzy

Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

It's very typical to fell horrible while undergoing chelation. I think lyme patients have a MUCH harder time.


I would not call it a herx but, yes, it's very hard. Sometimes, it can be from some essential minerals getting too low. Adrenal support and liver support, too, are vital.


Sometimes, it's just that this is such a hard process. The outcome may be worth it but I'd ask about what to make this more tolerable.


I don't think very many doctors who do chelation understand just how much harder this is for lyme patients. EVERYTHING is harder for lyme patients, even a regular trip to the dentist can take a month out of my life to recover. Some of this is due to the adrenal stress and that can also affect the heart with high cortisol and exhaustion, etc.


Be sure her LLMD is totally informed of this process, too.

Good luck.

-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

You also might do a search above for threads here by GiGi. She has posted a lot about chelation.


Certain brain protection is also necessary with this.

-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

I have tested high in mercury and some other metals but there was no way I could afford chelation.

I just remembered that when I did some EDTA rectal suppositories (Detoxamin), that I had a horrible reaction - each time I tired that - 4 times during one year.


I had more seizures, much more weakness, vertigo, etc.

It seems that there were to have been some protective or additional measures that I should have employed but no one told me.


I'm too tired to go through my computer files (and they are not organized) but I do recall finding out that my treatment really needed something else or another method beside EDTA.


I do better with oral DMSA and chlorella - for limited times.


-

[ 03-28-2009, 07:30 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
ESG
LymeNet Contributor
Member # 4816

Icon 1 posted      Profile for ESG     Send New Private Message       Edit/Delete Post   Reply With Quote 
I did a very slow & gentle oral chelation and it made me very ill - so you may want to discuss with your LLMD a gentler approach to chelation; my LLMD stopped the chelation, figuring attacking one thing at a time was more than enough for my body to handle.

The idea of IV chelation terrifies me - I would never do it nor make one of my children do it.

You could stop the chelation until she is out of school for the summer, at the very least.

ESG

Posts: 424 | From Connecticut, USA | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for your responses! I will discuss it with her LLMD next week.
Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.