LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » F Test/Mystery Protozoa

 - UBBFriend: Email this page to someone!    
Author Topic: F Test/Mystery Protozoa
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Has anyone thus far come back with the mystery bug being protozoa? on the paperwork?

Am I clear on what was once seen as haemobartonella by F is now considered protozoa?
Or is the protozoa an add'l finding?

What does this mean for those that have been treating haemobartonella if the protozoa drugs are different?

Im finding this quite confusing that so many have had the haemobartonella finding. Was that then not a true finding? We went from mycoplasma to protozoa? Hope this thing gets cloned soon!!!

(I realize that these tests are for medical research use and how hard the Lab is working to solve this mystery.)

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Leelee
Frequent Contributor (1K+ posts)
Member # 19112

Icon 1 posted      Profile for Leelee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Seriously want to know too! [Razz]

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
It is my understanding that F lab is in the process of developing a PCR test for the mystery protozoa. Doubt they will change the terminology on their blood slide until they have an alternative test.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bea,

Im still confused, it sounds like this is replacing the haemobart/mycoplasma finding?
Not an additional finding? I would love to know
from one of his patients.

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, my friend just came back with the paperwork that states either hemoplasma or protozoa.

So the haemobart/mycoplasma is now hemoplasma/protozoa.????????

He started her on Zithromax which tells me we are still not sure what this is. No anti-protozoan drugs.

Could this approach be part of the research.
Treating some with the toxo type drugs and others with the haemobart drugs?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tosho, thanks, yes I just read about the mild antiprotozoan effects of zithromax. Certainly doesnt look like a cure-all. However maybe it has a dual effect on the hemoplasma as well.

I am also optimistic about the work this dr. is doing. One has to be willing to experiment going in though I think.

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mary, Thanks for the update.

Hubby had me google haemoplasma -- came back as 3 different types of feline mycoplasma.

So it looks like Dr F is still saying that the bacteria he has found and the protozoa both look visually identical.

Really hoping he makes PCR tests available soon.

Mycoplasma is generally treated with the same meds as bartonella so obviously for patients it is still a guessing game as to which meds might work.

Hubby's LLMD believes that Zith can work on Lyme, babesia and bartonella all. But by itself it will not erradicate any of those infections in my opinion.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
bears1985
LymeNet Contributor
Member # 17271

Icon 1 posted      Profile for bears1985     Send New Private Message       Edit/Delete Post   Reply With Quote 
It has DNA of Malaria/Toxoplasmosis. There is an opportunistic gram negative bacteria in the mix...it is only "opportunistic". There was a DNA match sent around the world to see if this organism had ever been recognized...it came back negative. So we are looking at a new organism, never been found...not even in the Veternarian World.
Posts: 136 | From Arizona | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bears -- Please clarify --

Was it the protozoa or the bacteria which is a new organism?

Thanks

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
bears1985
LymeNet Contributor
Member # 17271

Icon 1 posted      Profile for bears1985     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bea - the Protozoa is new and the other is gram negative bacteria that is not new.
Posts: 136 | From Arizona | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bears,

Could you e-mail me the info or link on the DNA

Thanks, Marsy

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bea,

Thanks again, makes sense that they look similar.

Tell me what Im missing though, how was the protozoa identified? Or is the lab still not sure what it is?

Im leaning more towards the hemoplasma here.

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
bears1985
LymeNet Contributor
Member # 17271

Icon 1 posted      Profile for bears1985     Send New Private Message       Edit/Delete Post   Reply With Quote 
There is nothing missing:

There are 2 Organsims-

A. Gram negative bacteria (OPPORTUNISTIC)
B. Protozoan (DNA related to Malaria/Toxo)


The only thing missing is the medium to grow them on. If you have a medium, maybe we can get started.

Posts: 136 | From Arizona | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bears, excuse the brain fog. Wish I did have a medium Id be feverishly at work here to help solve this mystery.

I understand that there are 2 organisms what I am missing is if there is no medium to grow them on what is the deciding factor that this is protozoan? just how it looks on a slide?

Could you point me in the direction of where the information is that this has the DNA of malaria/toxo. Who sent the DNA around the world a lab or the CDC?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121

Icon 1 posted      Profile for Jill E.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does anyone know if Dr. F. has talked about using the drug Alinia for the protozoan bug?

I'm on Alinia now for Babesia and as a cyst-buster. It is anti-protozoan, yet is very expensive, so many LLMDs are not using it regularly.

I haven't had the Fry test yet, but plan to when I can afford it.

Jill

--------------------
If laughter is the best medicine, why hasn't stand-up comedy cured me?

Posts: 1773 | From San Diego | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
kelmo
Frequent Contributor (1K+ posts)
Member # 8797

Icon 1 posted      Profile for kelmo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wait a while to get the Fry test. Save up. He needs to get enough supplies to start mass testing, and to identify the best meds for each organism.

Right now, he is just keeping us on anti-parasite (plaquinil) and mino or biaxin.

We have added lumbrikonase to give an extra boost, since my daughter has been on that combo a long time.

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
galehane
LymeNet Contributor
Member # 15437

Icon 1 posted      Profile for galehane     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bears
Pleae help with clarification again :Is this info from Fry?Sending the sequence around the world?

"The only thing missing is the medium to grow them on. If you have a medium, maybe we can get started."
Problem is, everybody with this infection IS the medium.If you want to grow it in a lab I dont think a small lab stands a chance.

Gale

Posts: 268 | From europe | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
aiden424
LymeNet Contributor
Member # 7633

Icon 1 posted      Profile for aiden424     Send New Private Message       Edit/Delete Post   Reply With Quote 
I sure wish someone would hurry up and figure this out! I hope we'll have a test better then the tests for Lyme.

--------------------
You never know how strong you are until being strong is the only choice you have.

Posts: 804 | From South Dakota | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
capebite
Member
Member # 9789

Icon 1 posted      Profile for capebite   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
So what about herbal treatments?? The lab hinted that there were no known prescrption treatments but that here were natural ones...Buhner says Cryptolepsis and stephania will help with neurological seizure activity ...nutramedix says their new Red Leaf product will help?? Dr Zhang says Coptis, HH and Artemisin??? What is really helping??
Posts: 67 | From cape cod | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
galehane
LymeNet Contributor
Member # 15437

Icon 1 posted      Profile for galehane     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bears
Think you are crossing a line here.People are sick and want answers and need therapy that works.
You ask if some of us have a medium to grow the pathogene on.???
Not a time or place for jokes ,I think.If you want to help (yourself?) and people suffering reprort it to somebody able to culture and research it.I have.
Gale

[ 05-16-2009, 09:49 AM: Message edited by: galehane ]

Posts: 268 | From europe | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
bears1985
LymeNet Contributor
Member # 17271

Icon 1 posted      Profile for bears1985     Send New Private Message       Edit/Delete Post   Reply With Quote 
Gale

I dont think I am crossing a line. As a matter of fact...I know I am not crossing a line. You say "people are sick"...well I am too. Do you think I am a scientist that is just making statements? If I was a scientist, I would be busy working on this.

If people cant take jokes, then the chance of someone ever getting well is slim...anyway. Just to let you know...this information comes from a reputable lab and it has been reported. I would try not to stress myself out about statements made on this website, because like your statement...it carries little weight in the scheme of things.

Everything I have posted about the new research is factual and based on scientific evidence. My posts are just to the point.

Posts: 136 | From Arizona | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
springshowers
Frequent Contributor (1K+ posts)
Member # 19863

Icon 1 posted      Profile for springshowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does anyone know what this natural or herbal treatment is that the lab supposedly talked about to someone?

Or what are your best guesses?
Looks like Alinia is brought up as a question lately.
And then Buhner and or Zang items.

I am wondering what fits best ... what do you guys think?

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
mikej2323
LymeNet Contributor
Member # 8913

Icon 1 posted      Profile for mikej2323     Send New Private Message       Edit/Delete Post   Reply With Quote 
I still haven't seen a solid answer yet either...for those who had the early test done that stated it was, "suggestive for bartonella spp."- is this the same thing as the "mystery bug" protzoa?

Mike
[email protected]

www.caringbridge.com/visit/angelsforalex

Posts: 252 | From Iowa | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
mike,

I think the best answer to that question is that it could be, but it could not be.

I think that is why kelmo was saying that getting the test done right now may not be a good idea if you want a definitive answer on what is being seen on the slides.

From what I gather, the people with slides labelled "suggestive for bartonella" could be seeing any of the above things we talked about (hemoplasma, protozoa) on that slide.

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
mikej2323
LymeNet Contributor
Member # 8913

Icon 1 posted      Profile for mikej2323     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up please for any other opinions...


Mike
[email protected]

www.caringbridge.org/visit/angelsforalex

Posts: 252 | From Iowa | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
mike,

Please see my post today on hubby's new bloodsmear from F lab.

How about an update on Alex?

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
mikej2323
LymeNet Contributor
Member # 8913

Icon 1 posted      Profile for mikej2323     Send New Private Message       Edit/Delete Post   Reply With Quote 
I saw that Bea- thanks.

We're being advised to start samento and begin zeolite drops. Also starting IV anti-candida drug.

Got a tip that a doctor down south is doing chelation in those with this type of neurological problem, but told us he wouldn't help because the treatment would bring out the metals in the blood...blah, blah, blah. Too much work or too lazy...who knows????

Possibly starting the full C-protocol along with the PE-1...not too many other choices. Can't seem to find anyone who really improved with this. I can only find those that speak out against it...same with Dr. K's protocols/treatment ideas.

Had her tested through Clongen for bart due to more striae appearing on the front of her legs by her hips...PCR was negative for Bartonella spp. Now being told the striae are not from bart, but from the neuroendocrine changes that are happening. She doesn't have a cycle anymore, so not sure if this is true or not. Looked it up---and hormonal changes can cause striae.

Not too many choices left...

Mike
[email protected]

www.caringbridge.com/visit/angelsforalex

Posts: 252 | From Iowa | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.