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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone else with elevated ANA?

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Author Topic: Anyone else with elevated ANA?
Imhis4life
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Member # 26581

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My sister is waiting for a diagnosis on a multitude of symptoms. I believe it is likely Lyme Disease. Our son is in this battle so we know it well.

Recent blood work showed elevated ANA but negative for Rheumatoid. Of course, her PCP gave her a referral to a Rheumatologist but wouldn't really entertain the idea that she may have Lyme.

Just curious what others have experienced.

Posts: 66 | From Northern Virginia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
cordor
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Yes, my ANA is elevated (at very high levels) and then goes back down to normal, then elevated again. I have been told that I have an autoimmune Connective tissue disorder.
There is a strong family history of Lupus, so I think that is where they are leaning.
Oh course, they don't seem interested in the fact that I also have chronic Lyme.

--------------------
Corinne

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Q: Anyone else with elevated ANA?

Yeah, most everyone, at one time or another. Very common for those with lyme.

Tell your sister to forget the rheumatologist and find an ILADS-educated LLMD. Rheumatologists follow the IDSA and don't generally believe in lyme and will slap on the label of fibromyalgia and toss to patients handfuls of antidepressants that further the stress the liver.

Lupus is very often, lyme. Lyme can cause autoimmune problems of all kinds. When the infection is adequately treated, that often normalizes.

Find an ILADS-educated Lyme Literate MD. They will know what to do.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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-
www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

=================

VERY important to read - even BEFORE testing:

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

===================

www.igenex.com

IGENEX

==================

www.ilads.org

ILADS - be sure to read all the articles in "Articles and Presentions" Get the DVDs of ILADS of past seminars.

=================

http://www.lymediseaseassociation.org/

Lyme Disease ASSOCIATION

-================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

=================

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

==================

http://www.canlyme.com/tom.html

The Complexities of Lyme Disease - A Microbiology Tutorial

- by Thomas M. Grier M.Sc.

=======================

www.thehumansideoflyme.net

The Human Side of Lyme

Deliberations of a psychiatrist who evaluates and possibly diagnoses Lyme and other tick-borne diseases of the mind, sharing case histories . . . .

========================

http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by Lorraine Johnson, JD (revised 2005)

=========================

This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

=======================

http://www.underourskin.com

Documentary: UNDER OUR SKIN

========================

http://tinyurl.com/5crsjv

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

===========================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

=========================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
IckyTicky
Frequent Contributor (1K+ posts)
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Yes..I had elevated ANA. PCP says Lupus possibly or scleroderma but my LLMD says not to worry about it. He sees Lyme patients all the time with elevated ANA that goes back to normal once infection is under control.

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

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kimmie
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Yes, sadly Dr J's office called to inform me that my 9 year old daughter has a + ANA and + lupus anticoagulant reflex. She inherited my bad gene...HLA DR4 which makes us more difficult to treat and prone to autoimmune reactions. It just keeps on coming....
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karenl
Frequent Contributor (1K+ posts)
Member # 17753

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Codor, please get tested for chlamydia pneumonia -it is very often the reason for very high ANA and tissue problems.cpnhelp.org
Lupus is now treated as infectious disease, I am on doxy.Also LDN can be helpful.

Posts: 1834 | From US | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
   

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