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» LymeNet Flash » Questions and Discussion » Medical Questions » CSM -- who has done it?

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Author Topic: CSM -- who has done it?
CD57
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anyone done the Cholestyramine tx for biotoxins? did it help?
is there something else that works just as well?

Posts: 3528 | From US | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Helped for 10 days...then it began making my stomach really hurt. I took it for about 2 months or so.

It may have aggravated my GB. Hated taking that *&%$.

--------------------
--Lymetutu--
Opinions, not medical advice!

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lululymemom
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I also took at about 10 days. It worked good at the beginning and then gave me severe cramps.. I think apple pectin would work better as a binder..

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IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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CD57
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Apple pection? I will ask about this. The charcoal, clay and glucammanna combo I am taking has me totally stopped up.
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zil
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The CSM didn't do much for me and I stuck with it for about 6 mos.
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luvema
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I am on the biotoxin treatment right now.
I only been on it for three days. First and second day it gave me really bad headache. Today, it was not so bad. I am increasing it slowly. My LLMD said I will feel worst before I feel better while on it.

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Ema

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R62
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how are you all who are tolerating dosing this and working up? im taking 1 tsp before bed... i cant see how to take it 4 times a day and get any meds or supps in as well.
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Pam08
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My Dr. gave me a choice of Apple Pectin, Bentonite Clay or Welchol (which is basically the same as CSM). That is also the order of least to most powerful.

My LLMD said the apple pectin is the least strong of the three but you may want to try it if the clay and the csm don't work for you.

Have you tried just Bentonite Clay by itself rather than in a combo of the other stuff? Maybe it is the combo that is stopping you up?

R62...I KNOW!! I would also like to know how you can fit this in 4 times a day and still get your meds, supps and probiotics in! It has to be taken 2 hours apart from any meds or supps so I don't see how people can do this.

I will be starting soon myself so I would also really like to know how others fit this into their med/supp schedule.

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Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting.

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cleo
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I am on 2 packets a day. I started it with actos to help with the herx from it. I think it has really helped me tolerate abx better. It did take a month or so to notice the difference.
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