posted
I treated lyme starting in 06 agressively. It took me over one year to be diagnosed. Finally an infectious disease Dr. did a blood test and I was CDC positive for lyme. My very first symptom was bodywide muscle twitching.
I was at two ALS clinics in San Francisco and both saw the twitching but there was no weakness so it was diagnosed as BFS(benign fasciculation syndrome). After one year the twitching stopped.
I'm not sure what eventually stopped it but now it's back.
I've done 2 full years of orals and one full year of IV Rocephin. I had two full years of remission.
In October I started getting severe bodywide nerve pain. I had never had this symptom and did not associate it with the lyme.
I was worked up again for everything and then was told it probably was lyme. Evidently nerve pain is one of the most uncontroversial symptoms.
I immediately started flagyl,cefdinir,clarithromycin.
The pain was gone in one month. I am still on these antibiotics and now I have bodywide muscle twitching. It's enough to drive you mad.
Any thoughts on what's going on?? I was taking magnesium (Natural Calm) and stopped it about a month before these started. I am going to go back on it.
I'm interested in hearing from you and your experience with the twitching???
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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posted
Hi Barb, is it possible that the muscle twitching in the result of previous nerve pain? I mean nerves control mucles so there must be a link...
Posts: 723 | From Montreal | Registered: Oct 2010
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My muscle twitching became much more intense with antibiotic treatment (herx) If I had to guess it is probably worse from flagyl/clarithromycin.
Posts: 747 | From Utah | Registered: Apr 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
If the twitching stopped after taking magnesium, I would tend to think that it might be a magnesium deficiency. Just my opinion.Not a doctor.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
I also get a lot of body-wide twitching. Magnesium helps a lot.
Posts: 227 | From Northeast | Registered: Mar 2010
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lymeboy
Unregistered
posted
I had a load of bad Bart symptoms, including muscle twitching. All over, horrendous twitching, 24-7. Bart treatment has cleared it up pretty well so far.
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
What are your vitamin D levels? Low Vitamin D, like low magnesium, can cause body-wide twitching...
Posts: 1155 | From Southeast | Registered: Oct 2005
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Thanks to all for replies. I will get my Vit D levels checked as they were severely low at one time. Vit D seems to play a major role in helping chronic illness.
Back on my Natural Calm and hoping it helps these twitches. I guess this is all part of the lyme.
Posts: 281 | From san francisco | Registered: Jun 2006
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Twice now, when I have gone on Rifampin, my twitching has decreased significantly.
Posts: 520 | From Maryland | Registered: Jan 2007
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up
Posts: 281 | From san francisco | Registered: Jun 2006
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
It could likely be from Magnesium deficiency. If your D is low, so is your Mag - Mag needs D to process correctly.
When did you last get your red blood cell magnesium levels tested? If you are low, which most of us are, oral magnesium will not restore your levels. Nor will taking antibiotics. It needs to be addressed separately.
Topical magnesium helps a bit, but IV Mag is really the way to go. Ancient Minerals Magnesium Oil is pretty easy to get.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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When I was 18, shortly before my cyclical night sweats started, I started getting muscle twitching all over my body. I've had it on and off since then, but never as bad as those first few months. My muscles twitched like crazy. This was probably in August of 2001.
I diagnosed myself with BFS, though I was terrified I was developing MS or ALS or something. I now realize that it was the Lyme progressing in my body. I had terrible anxiety around this time too.
-------------------- Symptoms since age 4 IGM positive Western Blot (Bb) PCR positive Spiro Stat (Anaplasma) Suspect babs and bart Posts: 226 | From Currently in Los Angeles, originally from Malvern, PA. | Registered: Feb 2010
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posted
I have twitching all over my body at an unsually high rate. Not like I had before in my life, before these lyme symptoms started. For me it started after taking 2 magnesium pills a day for a month. I took magnesium glycinate with breakfast and dinner. I don't know if the magnesium caussed it, or if it was a cooindence. I think it could have caused it and i've considered taking just calcium to see if it goes away. It is possible this would not have happened had I had no other condition and took the magnesium, or it may have happened with anybody taking magnesium. You could ask some people to take some magnesium like you did and see if they get twitches after at least a month of two pills a day like the bottle says. Mine has not gone away and I've been off magnesium for 6-12 months.
I was living in south eastern PA/ North Western DE when my symptoms started. I went into the wild life preserve a few times and lived next to one. I don't know if some symptoms could be caused by a seperate condition but I remember systoms in this order. Vision shakes back and forth when viewing objects closer than 6 inches. Neck stiff all the time. Feels like water running down leg and buzzing in hip. Extreme burning pain in chest area 24/7/365. Jaw pain, tinnitus, verigo, electic shocks around ear/jaw. Numbnes under eyes around cheek bone and sometimes lips. Trapezius muscles and hips hurt. After starting minocycline 1 or 2 months in strange neuropathy appears all over body that feels like random sparks/snow flakes/water/ice cubes touching me in some place randomly. I do treatment for 6 months, but lose confidence and want to further investigate. Neuropathy increases in frequency and I think some of it is starting to become painful instead of just feel strange.
I have reason to believe I was exposed to a neuro-toxin after doing some research into my surroundings, but I had the stiff neck and almost sure I had the vision thing a year before I could have been exposed. I tought I had the neuropathy before that too, but I'm not sure. I could have lyme, but plan on asking a neurologist about neuro-toxins.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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