posted
I am newly diagnosed. My question is how do the LLMD's approach the neuro and cardiac involvement in patients? If they suspect meningitis or heart issues, do they refer out? Thanks
Posts: 66 | From Memphis | Registered: Feb 2013
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Keebler
Honored Contributor (25K+ posts)
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posted
- If they suspect meningitis or heart issues, do they refer out?
While not the only factors, Lyme can CAUSE meningitis. Lyme can CAUSE heart issues. So, this is important to know. A LLMD would refer out, of course, if there is reason to do so for more specific assessment.
Often, treatment for lyme can help other issues resolve.
Sadly, most neurologists and many cardiologists are totally clueless about how lyme can cause so many other problems.
Yet, if the LLMD thinks there may be other causes also connected, they would likely refer out but also remember that lyme must always be addressed, too, even if there are other causes. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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See listener comments, too. They show us how very wrong of the ID (Infectious Disease) doctor who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.
Neurologists & rheumatolgists also follow the same umbrella group (IDSA) that ignores lyme and discounts those who have it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that)
ADRENAL, MITOCHONDRIA & MYELIN SUPPORT -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Looking at your posting history, I see that just yesterday you posted, seeking a LLMD and that you have a positive Western Blot.
That you are asking about meningitis and heart matters, has me a bit concerned that you need someone to help guide you until you can see a LLMD.
I have to stop now, but be sure to know that, even if you can't find a LLMD right away there are some things that you can do in the meantime that may help.
As Cpn (Chlamydia Pneumonia) has a similar protocol, see detail here that may be of help you until you find a LLMD:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by iluvrain: I am newly diagnosed. My question is how do the LLMD's approach the neuro and cardiac involvement in patients? If they suspect meningitis or heart issues, do they refer out? Thanks
- The antibiotics would probably take care of meningitis .. they should know how to handle that. But heart issues... for sure they would refer out. We Lyme patients get referrals all the time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
The thing about specialists is that they seldom know about tickborne diseases. While they may document the symptoms related to their specialty, they will not be treating the disease. Keep that in mind.
Some will even deny that you have any of these diseases, and cause trouble with your treatment.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
What happened to my husband with the cardiologist is after testing, they determined part of his heart wasn't squeezing like the last time they did the same test. They had no explanation for it.
The only good thing that came out of all this is that 4 years ago they put a pacemaker/defibrillator in. We had no idea then Lyme was the culprit, but the hardware in his chest protects him if he ends up with one of those arrhythmias that stop the heart.
Hopefully Lyme treatment will take care of the problem, but the cardiologists don't recognize it at all.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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posted
Wow...i have actually seen fairly recently The doc mentioned in that link, and i did test pos for cpn. I live in Memphis. When i emailed about the lyme results...he told me that in the face of a neg IGG there are false positives...but the treatment for that would be helped with cpn treatment. At the time...abx were making me terribly sick due to yeast he was treating me for...so we couldnt get to that..then i had to stop going due to the pain in my teeth getting worse with no explanation...been chasing that down.. and $$$. He does seem to really get it.
Then we got the possible lyme diagnosis i began to wonderif that was cause of jaw pain with no explanation.
Posts: 66 | From Memphis | Registered: Feb 2013
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Iluvrain, teeth pain for me has been due to parasites. Since I started treating, teeth pain is gone, and way less jaw clenching. Check out the PARASITE WARRIORS SUPPORT THREAD.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I've had Lyme cause teeth pain, that showed no problems on dental exams. For me, the pain doesn't stay in one place, but rather seems to shift around in my mouth between several different places.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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