-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
That was awesome. Thanks so much for posting Catgirl!
Posts: 428 | From Midwest | Registered: Dec 2012
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Me too! The gluten and sugar thing surprised me as well.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Catgirl, Thanks for posting these links, especially the 2nd video about the gluten connection because that video emphasizes the importance of the methyl form of B-12.
In contrast, the first video discusses only the cyano- form of cobalamine, which isn't nearly as good as other forms of B-12 because it is derived from the cyanide molecule, and it can become toxic if you take too much of it.
The first video showed the boy injecting cyanocobalomine, which is red in color, and although he improved, he didn't have a very good outcome towards the end of the video, according to his mother's evaluation. The first video is somewhat outdated because it focuses primarily on pernicious anemia.
Newer thinking about B-12 deficiencies is coming from the CFS community which has been following Amy Yasko's autism protocols. (Yasko recognizes the importance of avoiding gluten too, of course.)
Here's the link to a video by CFS researcher, Rich van Konynenburg, PhD which he gave at an ME/CFS Conf. in Sweden in 2011. It discusses methyl- and other forms B-12.
I found the link above on the homepage of a CFS Yahoo forum pertaining to Dr. Amy Yasko's methylation treatment. (B-12 is part of the methylation cycle.) http://health.groups.yahoo.com/group/CFS_Yasko/
Thanks also to Lymetoo for giving this video an EXCELLENT rating -- or else I might have scrolled on by and not taken time to click on it.
BTW, methyl B-12 is available in an oral (sublingual) form. Injections are better for really sick patients, of course, but they are inconvenient and they require a doctor's Rx. Here's the brand of oral, sublingual methyl B-12 which is preferred by followers of Amy Yasko's methylation treatment program. http://www.iherb.com/Jarrow-Formulas-Methyl-B-12-1000-mcg-100-Lozenges/129
posted
I hope to watch the second video later today!
TXLM.. I thought the first video mentioned the methyl? It was in one of the graphics. (?)
Faithful.. I've been lax in taking my shots lately and that symptom list sounded like me! I took a shot this morning.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Lymetoo, You're right! They did mention methyl B-12 towards the very end of the video afterall. I had had several interruptions while watching it, so I never quite finished the very last part of the first video -- until I realized from what you said about it that I had probably missed seeing that part. Thanks for catching my oversight.
One other criticism of mine though is that the only thing that either of these two videos talked about was "folic acid" -- instead of "folate".
Folic acid is bad because it depletes B-12. Furthermore, folic acid has NOT been proven to prevent neural tube defects either. What is needed is the folate form instead. There's a lot of information about the important differences between folic acid and folate in the links listed in my previous post above.
These two videos are both excellent though otherwise, in spite of their shortcomings, because they do help to create awareness of the severity of B-12 deficiencies.
However, both of these two videos are a little bit outdated because there's so much better, newer information available on both B-12 and on folate that can be found on the internet by searching for MTHFR and for methylation and by using other related search terms. These videos are a very good starting point. Nevertheless, it's equally important to continue to search for the newest materials on this subject as well.
Posts: 4563 | From TX | Registered: Sep 2002
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Jacob Teitelbaum's newsletter today contained an article about using B-12 to treat Alzheimer's and dementia--(1st link, below). The link to an article entitled "B Assays May Be Missing More Than a Third of [Pernicous] Anemia" appeared at the bottom of Teitelbaum's "Alzheimer's and Dementia" article as its reference citation--(2nd link, below).
The next two links are from NEJM. The first link was found listed as the reference citation at the bottom of the MedPageToday article, and the second link was found at the end of the first article from NEJM.
Since doctors are much more impressed with sources from the mainstream medical literature, it's always a good to take the trouble to chase down such references, so that's why I've included these 2 articles from NEJM as well.
Posts: 4563 | From TX | Registered: Sep 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I was only able to watch a little ways in on the B12 video before the brain went.
So looking for the bottom line...
I do recall taking B12 shots when I was first dx for a short time back in 2003.
did a search and noticed Dr. Mercola has some B 12 spray....
when brain is functioning better I will give that a try.
[ 03-09-2013, 12:33 PM: Message edited by: kam ]
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
If you can read past the lines here, and the video, I simply was not getting enough B-12. Not even 5000 mcg was cutting it. Lyme patients' immune systems are compromised. People on chemo take up to 15,000. Every lyme patient should watch the video. The second one is good too (much shorter).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Up for more views. Someone here is bound to have this issue!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
So, do people who don't have fatigue as a major lyme symptom still need more B-12? I am taking B-complex, B-5, and a multivitamin.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
You never know. Be sure to watch the video.. if your attention span is short (I can relate).. then watch the last 12 min or so.
Doctors are not testing properly for this.
You could have a severe deficiency and it might manifest itself mostly in neuro symptoms. For some, only the shots will correct it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Like!!! Like!!! Like!!!
B12 is critically important!!!
We cannot methylate without methyl-B12!!!
Without methylation, our immune system, neurotransmitters, detox capacity, antioxidant status, cellular energy and metabolism all suffer dramatic impacts.
Without methylation, we age faster, cannot detox anything (including basic byproducts of protein metabolism), and our genes can decay (mutate; read: cancer).
Every tissue and cell in our body depends on methylation for something...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Lymedin2010
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Member # 34322
posted
I click on the video & it says it is private?
Posts: 2087 | From NY | Registered: Oct 2011
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
that just happened to me too
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
http://www.youtube.com/watch?v=p0da1xrELcA The link did the same thing to me when I clicked on it. I then did a search for B12 and if you search on youtube type in: Symptoms of Vitamin B 12 Deficiency Glutenology You'll find the first link/video. Nice video! Thanks! I have ALL THAT! I take B12 shots, and am feeling better with a gluten free diet, but my stomach acid/heartburn has been horrible lately. It's all connected!
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
Thank you Tx Lyme Mom for the recap of the info, that B12 should be in methyl B12 not cyano.
B12 was recommended to me, every other day, to help with brain healing, while taking artemisinin to help clear the brain & kill blebs.
I got the cyano type.
Many thanks and catgirl others for the links.
Posts: 254 | From North Carolina | Registered: Nov 2013
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
OK. I'll try and figure out what I need to take when anle. Typing this wiht eyes closed and brain barely working this am. ...and inflamed.
Bottom line anyone on what to purchase??
My primary care doc is down the hill....an hour and a half away. I don't have a LLMD.
And rarely see my primary care doc.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have seen this before but forgot a lot of it. It is something we need to remember.
Animals get b12 from grazing. Since most animals are factory raised on dry lots, they do not graze and they are B12 deficient. Even people who eat meat can be deficient.
If you grow your own root vegetables (organic) and do not scrub and peel them, you get some of the same B12 grazing animals do. But if you are vegan, it is a good idea to supplement it anyway.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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hiker53
Frequent Contributor (5K+ posts)
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posted
I remember my mom getting regular B-12 shots after being diagnosed with celiac disease.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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posted
Kam, maybe your Dr would prescribe a vial of methylcobalamin? I give the shots to myself.
The video says that the elderly used to be given B12 shots rather routinely. Now, they do NOT!
Can you say "Alzheimer's?"
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
The video that hadlyme posted is also excellent and a lot shorter. It also mentions that a B12 blood serum level test may not be accurate and to get the MMA test and the homocysteine test as well.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Thanks so much for posting this!
Have been on methylcobalamin 25mg/ml injections since Sept 3 times a week.
At first, thought it was helping--but am getting scary tired and wonder if this isn't enough? Memory getting worse and fingertips feel odd.
The link says we need 1000 mg/day and wondering how this translates to the injections?
I've had enlarged red cells in last two blood draws.
LLMD rxd the b12 shots back then. New PCP isn't concerned about the enlarged red cells. Thinks this is all thyroid. Very low in Vit D also.
Posts: 1297 | From USA | Registered: Dec 2002
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The link says we need 1000 mg/day and wondering how this translates to the injections?
Wish I knew!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Kam, when I was out of town I had forgotten to bring my shots so bought Methylcobalamin B12 at a health food store. Made by Vitamin Research Products.
One dropper is 1000mcg, but just checked their website and it comes in 5000mcg/dropper too.
They put cinnamon in it and it tastes good too.
Posts: 1297 | From USA | Registered: Dec 2002
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
If you have methylation issues isn't hydroxocobalamin used with good success?
I take Perque B12 per Dr Ben Lynch's protocol (which is in line with Yasko and Rich Von K)
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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