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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 8)

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Author Topic: Mild Hyperbaric Treatment
Phoiph
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Survivorgirl1...

You are right that I am concerned about adding more toxins into the mix, but also want to be totally clear that I am not advocating for people to go off of their medications unless they are under supervision of their doctor...

It is encouraging, however, to note that people have been able to get off of antimicrobials with the support of mHBOT...but it is a process that should be done with careful thought, planning and monitoring, of course...(just as you mentioned you plan to do)...

As far as early reactions to mHBOT...people differ in their reaction/sensitivity to oxygen, not only from each other, but from day to day.

Many times people experience an initial energy increase when starting mHBOT, and then a 2 step forward, 1 step back pattern. Other people (as in my case) feel very little changing for several weeks, then the pattern begins to emerge.

It will be interesting to hear what kinds of reactions you are noticing.

Haley...those are great observations...and, in my opinion, very positive signs. You have just started, though, so please be very careful not to overdo the exercise Just gentle movement is good enough right now to improve circulation and move lymph...you want to avoid having to "recover" from a workout at this point, as your body has a lot to do right now [Smile]

Regarding the question as to the best time of day to do a session, that depends on your reaction. Some people find mHBOT stimulating, so shouldn't do it before bed. Others can do it before bed, and it doesn't affect their sleep.

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Survivorgirl1
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- Haley, sounds nice, your positive changes!

I recognize getting hit with extreme fatigue and also the improved circulation, I notice it in my upper legs.

My question was a bit unclear, but I think you got it. [Wink] I mean any change, I feel both, sort of herxing and sort of healing. It’s a bit ‘shakening’ after every dive.

So your answer and update are very helpful to me!
After a week or so my rollercoaster gets calmer, till I increase time and frequency a bit again…

Time of diving is just what feels most comfortable to you! I tried different times, ended up with diving in the morning.

- Phoiph, thanks, I'm happy with your reply, gives me reassurance and more understanding! Very encouraging…

I will work on an update in the upcoming week...
Find me some brain to create descriptions… [Smile]

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Haley
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Phoiph - that is good advice about the exercise. I don't realize that the Oxygen is very powerful. My body needs to adjust to the oxygen and then I will do 5 minutes every other day, then incrementally work up to more.

I need to conserve my energy, I always forget that when I start to feel better.

I'm just so excited about mHBOT!

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Survivorgirl1
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My update, hopefully contributing to more data on this treatment:

I’m at 30 dives now on 1.3 ATA with 9,5L/min. oxygen from the Intensity concentrator. I use a Summit to sea Shallow dive.

I’ve gone very slow because of my oversensitivity and herxing (or whatever) right away. I have been increasing time and frequency over the past 2-3 months up to 30 min. once every 2 days now, to eventually reach 1 hour daily. Before doing mhbot I did a month on just oxygen from the concentrator without using the chamber.

1. Straight after diving I feel tired and weakened or more flu-like for about 4 hours.

2. But about 6 hours after diving I feel (relatively) increased energy and strength from a deep level inside my body. Big smile!

3. The next day I’m feeling toxicated and tired again, along with a mild headache, brainfog or a feeling of totally neurocognitive crippled. Sometimes multivitamin helps a bit then.

4. I’ve had two massive flares at the beginning, possibly herx, and a few weeks ago I had another very big one.

5. My monthly women thing seems to have improved a bit, less cramps, less days.

6. I have had only just one migraine since the start. Normally I have lots, so that has improved.

7. My bowel-function has a little bit improved, my stomach has worsened.

8. I feel a bit more calm in my head and legs. And being in the chamber relaxes me.

9. My (probably co-infectional) drenching nightsweats had been less for a few short periods and now have worsened again... I'm adding C.S.A. Formula to the mix...

10. My knees seem more painful and swollen, and I have more pain in my neck and lowest back. Muscle and tissue are sometimes a bit less painful.

11. At the moment that I’m actually in the chamber my heartbeat is of the most strength and regularity I’ve ever felt in the past 7 years! (that's when my CO-poisoning was added to the mixture) Very promising.

12. Diet and my medication seem to work better since I’m on oxygen. Although, there are still only a few foods that I can eat without getting more nerve-pain, more heart- and breathing problems or more nausea.

13. It seems that I have more trouble handling tiring things around me lately. I.e. noises, light, and I’m having a hard time tolerating my at home caregivers around me, needing their help, but so overwhelming…

Well... overall I have some improvement. I feel cautious and confident...
Views, ideas, insights, questions or guidance are always welcome.

Wishing you all patience, support, love and much progress along this harsh lyme-road!!

Also to the ones in this thread that haven't posted for a very long time and have 'open-endings'... I feel a little worried about you... Please feel invited (not obligated!) to write some personal words online (not necessarily in this thread) about your mhbot, if you feel like and have energy to do so...

Reading experiences all helps me to make choices in my journey to recovery.
TNT, I'm going to pm you.

Byebye,
Survivorgirl1

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TNT
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Survivorgirl1,

I got your PM, and will try to reply to it. If I don't reply right away, I am going through a flare right now, and trying to figure it out to get things stabilized.

I haven't read this thread in months, and I truly admire your courage and fight!

For the other divers:

I briefly scanned over page 7 and 8 of this thread the best I could right now (eyes feel like they are in a vice, and stiff neck), and some of people's symptoms stood out to me.

I cannot remember what symptoms went with whom, but some that were mentioned were "new-onset" symptoms while continuing mHBOT.

Things like lack of appetite, looser bowels even while eating good (and no ABX), lower back pain, panic attacks, GI issues, nausea, sweating upon minimal exertion....

These all could read like Brucella symptoms. Very easily! And the thing with brucella is it can produce "malaria-like" symptoms.

I am not trying to worry or discourage any one of you, that's for sure.

But I would at least look into Brucella and it's symptoms if you are experiencing a worsening while doing mHBOT. And discuss it with your LLMD.

I have some great links (please look at them all very thoroughly) on the brucellosis thread here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/128892#000000

It seems like I have more than 5 links somewhere, so I may bring that thread back up with some added links.

I wish you all continued courage and complete healing!!!

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TNT
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Hi, everyone.

The subject of SOD came up with Haley on page 7 of this thread (7-27-14).

And Phoiph has explained that mHBOT interferes with detoxification because it creates more free radicals that the body counters with increased production of SOD. I think I have that right.

She wondered (in the non-mild HBOT thread) if my genetic make-up was contributing to my lack of success with mHBOT. I guess she thinks it is possible that I was producing free radicals faster than my body could deal with, especially considering I was also on ABX.

So, I thought that I at least owed it to everyone here to explore the possibility that my genetic mutations were interfering with my ability to detox properly, thus making my condition worse with mHBOT.


So, I dug out my genetic profiles to verify my mutations.

It appears that most of my snps for detox are fine. A few have 1 mutation (heterozygous). So, they should not be causing much trouble.

But I do have a double mutation (homozygous) on NOS (D298E).

***It appears that I have been tested by two different labs for SOD II (A16V). One lab lists me as no mutation ("neither chromosome carries the genetic variation"), or (-/-).

And the other lab lists me as double mutation (+/+). So, I am not sure which one I am. All other snps between the two labs agree.

The SOD II snp affects the mitochondria.

Here is the commentary from the lab that shows I am (-/-) on SOD II:

"Superoxide dismutase is the primary anti-oxidant enzyme within the mitochondria of cells
(where most of our energy is made). SOD2 converts reactive oxygen species into less reactive hydrogen peroxide.

The wild-type genotype (-/-) is associated with higher SOD II activity and a greater sensitivity to antioxidant status compared to the other genotypes.

The combination of higher SOD II activity and low antioxidant intake and/or excessive oxidative stress (e.g., smoking) may result in an accumulation of hydrogen peroxide and increased risk of cancers of the breast or prostate.

This genotype has also been associated with a higher risk of motor neuron disease. Risk of cancer may be reduced in individuals taking anti-oxidants.

Because the (-/-) genotype is particularly sensitive to antioxidant status, liberal consumption of dietary antioxidants in colorful vegetables and fruits is recommended.

Broad-spectrum anti-oxidant supplements may also be helpful, including agents that help to raise glutathione levels (e.g., vitamin C, N-acetylcysteine, milk thistle) and support glutathione peroxidase (selenium)."

Also found this:

Superoxide dismutase (SOD) is an antioxidant enzyme that converts reactive oxygen species into less reactive hydrogen peroxide (H2O2), which is then neutralized by catalase and GSH-peroxidase. SOD2 is located within
cellular mitochondria and uses manganese as a cofactor.


The only other detox snp that would be causing me any trouble would be the GSTM1 (1p13.3). I have an "absent allele" on this one.

From my test results:

"Glutathione S-transferases (GST) are responsible for detoxifying certain products of oxidative stress and a variety of electrophilic xenobiotics and carcinogens such as solvents, herbicides, pesticides, polycyclic
aromatic hydrocarbons, steroids, and heavy metals.

GSTM1 is located primarily in the liver, whereas GSTP1 is located primarily in the brain and lungs.

When there is no gene present on the GSTM1 chromosome it is called an "absent" allele.

This results in reduced capacity for hepatic detoxification and increased risk of various cancers, chemical sensitivity, coronary artery disease in smokers, atopic asthma, and deficits in lung function.

Risk appears REDUCED for colorectal- and head & neck cancer, but ONLY when cruciferous vegetable intake is high."

It also says, "Decreased glutathione conjugation capacity may increase toxic burden and increase oxidative stress."


It does appear that detox is an issue for me, but exactly how it would affect my ability to use mHBOT, I'm not sure.

So, if a genetic/mHBOT expert would like to weigh in on this, go right ahead. I am sorry that the SOD snp is confusing.

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Phoiph
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"And Phoiph has explained that mHBOT interferes with detoxification because it creates more free radicals that the body counters with increased production of SOD. I think I have that right."

"She wondered (in the non-mild HBOT thread) if my genetic make-up was contributing to my lack of success with mHBOT. I guess she thinks it is possible that I was producing free radicals faster than my body could deal with, especially considering I was also on ABX."


Just to clarify...(especially since we're mixing two threads here)...I did not mean to imply that mHBOT interferes with the detoxification process, on the contrary, it actually initiates/enhances a detoxification response at the cellular level.

In addition, oxygen produces free radicals (ROS), which are a double edged sword; a certain amount are necessary to disarm pathogens, and too many will damage our own cells. To protect our cells from damage, the body produces antioxidants like SOD and GSH (in greater amounts when exposed to mHBOT) to compensate. (Conversely, taking too many antioxidants in supplemental/IV form can theoretically thwart the ability of the free radicals to fight pathogens.)

So, in TNT's scenario (see the non-mild HBOT thread), my question/concern was that her situation may be more complex if there were other factors, including a significant detoxification defect present, and wanted to explore this possibility since I thought it might have contributed in part to her negative response to mHBOT.

I wondered about a possible predisposed inability to detoxify or produce specific antioxidants, combined with other factors, including:

1) The daily ingestion of toxins (e.g., antibiotics, supplements etc.), plus

2) Methylation supplementation; the dosing requirements of which may have changed with the addition of mHBOT (methylation dosing is a complex and variable "art" to begin with, that can cause severe symptoms similar to the ones mentioned when not dosed properly), and

3) That additional oxygen via mHBOT may have initiated a greater detox response (normally a good thing), which, in combination with the "perfect storm" above, may have released toxins into the body at a greater rate than they could be removed, causing build up and worsening of symptoms.

This is a just a possible consideration on my part, because I personally believe that symptom flares/worsening can't always be attributed to the growth or spread of pathogens themselves; and that there may be more to the picture if we look deeper.

I would like to be optimistic that more formal research on long term mHBOT is forthcoming, but the truth is that since oxygen is not patentable, there is not much impetus to throw money in this direction...which is why everyone's experience/contribution is so valuable and important to consider carefully...

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Haley
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Thanks for that explanation Phoiph. It's going to take a while before I comprehend the free radical / antioxidant balance, but I think I am starting to get it.

I would like to ask if anyone has this side effect of mHBOT... I can't catch a breath and feel like I can't breath in enough air, also have rapid heart beat. Not saying this is bad or good, just wondering if this is a side effect.

It reminds me of when I had internal bleeding (I lost about 1/3 of my blood), so of course my hemoglobin was very low, my heart was pounding trying to circulate the small bit of oxygen that was in my system.

I wondered if low hemoglobin and mHBOT may have this effect. I do have slightly low hemoglobin.

Anyway the point of this post is, I'm wondering if I should take a day off. Maybe I have too much oxygen in my system. I have done 10 days, will be day 11 today.

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joahsark
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Phoiph,

I'm thinking probably not but do you know of any research related to successful treated of C-Diff while treating Lyme and Bart? Just came down with my fist bout, now more than ever determined to get a machine in the house since options are getting even more limited.

Thanks!!

Penny

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JCarlhelp
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Prescription dificet
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Phoiph
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joahsark...

From K.K. Jain: Textbook of Hyperbaric Medicine

Pseudomembranous Colitis

Pseudomembranous colitis (induced by antimicrobial agents) is caused by a toxin-producing organism Clostridium difficile. The presence of the organisms and toxins upon assay is suggestive of the diagnosis that can be confirmed by proctoscopy and colonoscopy. Most of the cases of this disease are self-limiting. Vancomycin has produced symptomatic improvement in some cases. HBO therapy has been shown to be useful in the management of this disease, but further research is required.


Unfortunately, this reference doesn't indicate at what pressures HBO was found to be useful in managing the disease.

I would suspect, however, even if higher pressures were necessary to actually kill the pathogens, mHBOT would still be beneficial due to its immune enhancing effects.

I also know of someone who recovered from a particularly difficult case of c.diff with ozone treatments. I can connect you if you like...

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Phoiph
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In reference to Haley's post above...

The symptoms she described reportedly improved after drinking more water. She had been drinking less than usual, and may have become a little dehydrated.

It reminded me to emphasize the importance of being conscious of water intake and staying hydrated when doing mHBOT...

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CD57
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up
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Looking4hope
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Hey Guys & Gals! Well, I'm still trying to figure out a way to peel the last layer of this Onion. The last layer of this onion is predominatly Pain. Sometimes the pain aches, and other times it burns like crazy.

I'm eating really clean, and have even cut way back on caffeine. I continue to drink a gallon of water each and every day? It is extremely bothersome at times, however I guess I should be greatful with the progress I have made to date:-)

Its extremely weird....ever since my bout of both the Shingles, and Bacterial Pneomonia my pain worsened. I'm aware of post Shingles pain etc....its just really frusterating.

I will continue to keep you guys, and gals updated

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Haley
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Thanks for posting looking4hope. I hope the pain gets better.

Would you say that your brain stuff is still gone?

I've only done this about 20 dives, some symptoms are better. My brain is still a pile of mush.

I may need to take some medicine if I want to keep my job. Trying to trust that the brain will clear, just seems to be getting worse. ugh

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BBinme
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Hello,
i too decided to take " the plunge" so to speak.
However its still fairly early to assess at this point if its helping. There are some things that have improved for sure but some of these pesky symptoms continue to return at time. Maybe it herxing..i think that it is.

I've been taking it very slow as well b/c i am also very sensitive to everything. Maybe its a methylation block. Anyway i have just completed dive #50. I am currently diving 3 times a week at 1.3 ata for 45 minutes with o2 at 10 litres the whole time. I am slowly increasing the length of dive and when i get up to one hour i will increase days.

Some of my symptoms that have improved are headaches, head pressure and fog, however for some reason these have been acting up again recently for some reason which discourage me.
These have been one of my hardest symptoms to get rid of and i thought i had them licked [Frown]

Fatigue has improved but sometimes my insomnia will flare up from. diving which can cause fatigue. Dizziness is gone. Tingling hands and feet have improved but still flares up at times. Pain has improved but still get worse at times..when i started diving i was having nerve pain off and on and joint pain which i have not had in a long time.

Stiffness in neck and back is still a lingering and annoying symptom for me that just doesnt go away.
Im going to continue diving and hopefully get up to daily hourly dives someday soon...i just cannot rush it unfortunatly.

I also am curious about the detox effects of mhbot and taking of detox supplements as well...trying to make sense with my lymie brain. What about supplements to improve methylation? Is that too much detoxing combined? Does it interfere with the effects of mhbot? And what about other detox supps like glutathione, nac, alamax etc?
Thanks Deane

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Phoiph
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Hi BBinme...

You're having some very positive changes, and that is great, but in my experience, 50 dives (at 3x per week) is very early in the process, and way too soon to evaluate symptoms that are still present.

It is a 2 step forward, 1 step back process, with symptoms waxing and waning before they finally disappear over time, in my experience.

The questions you asked about methylation supplementation are good ones and not easy to answer, as there are so many variables from person to person with methylation and detox issues, and no specific studies that I know of involving methylation and mHBOT.

That said, we do know that mHBOT makes the detoxification/methylation process more efficient, so my thoughts are that you have to be careful with adding on a lot of other concurrent detox protocols, as to not overwhelm the system.

Also remember that free radical activity (which naturally occurs in the body, but is increased by mHBOT), while potentially damaging to our cells in quantity, is also an important part of the process of fighting/disabling microbes, so you don't want to try to eliminate it altogether with antioxidants.

Fortunately, it has been found in studies of children with Autism that natural antioxidants also increased in response to mHBOT, so oxidative stress was not of concern.

There is also the impact of supplements on the gut to consider, as well as "muddying the waters" with multiple treatment variables.

I personally couldn't take any supplements at the time I started mHBOT (due to severe sensitivities, reactions, and gut issues), and became well without them.

People may react differently; unfortunately there is no clear cut answer that I know of...so, in my opinion, "balance and moderation" would be the thing to keep in mind.

By the way, regarding the LPM setting you're using on your concentrator...I believe you're using a Sequal concentrator, is that right? If so, be sure to set it at 10LPM before you pressurize the chamber, and not touch the setting again after pressurizing (the LPM will drop a little due to the backpressure of the chamber during use...this is normal). If you try to crank it up again to 10 after pressurizing, it will not function efficiently. (There is a different procedure for the AirSep concentrator...that one must be set below 10LPM...at around 8.5LPM, then left at that setting at all times when used with the chamber).

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BBinme
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Hi Phioph,
I guess i was more curious about taking the vitamins( methylfolate, methylcobalimin and b6) used to help with methylation. Ive never been tested for methylation problems but i would not be surprised if it was positive b/c im so sensitive to everything.
I think i understand the detox supplement issue with mhbot. I have stopped glutathione awhile ago. Im still taking nac and alamax but have cut back. I plan to stop both soon when i run out.

Yes im using a sequal concentrator. I turn that on to 10 before starting the pressurizing and then dont touch it again until i get out of chamber and i always shut the pressure off before the concentrator. Thanks

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Phoiph
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Coincidentally, the methylation subject came up today with a naturopath who's opinion I really trust.

In her experience, before considering methylation supplementation, you have to be careful to have all hormones/endocrine levels in balance first, otherwise it can easily offset that balance and potentially cause lots of issues and reactions.

It is a complex process that, although many people take it on themselves, should probably be initiated and monitored by someone that understands it thoroughly and can look at the whole picture...as I have known people who have been really helped by it, and others who have had very negative reactions and setbacks.

Good about the concentrator...just checking...:)

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Haley
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Hi Phoiph,

I am doing 1 hour everyday, almost at 30 dives. I am considering doing 45 minutes 2 times a day. Do you think that is too much? I notice my symptoms come back before 24 hours. I just wonder if it might be more effective, although I'm not sure how I will work it into my schedule.

I also thought about this after seeing this 48 second microscope clip from the microscope thread. This is a 13 hour time lapse, you can see how long the bug will stay in cyst form.

http://www.youtube.com/watch?v=ObT6IHXHVFw&feature=youtu.be

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Phoiph
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Hi Haley...

I think it is important to do the full 1 hour session (at full pressure, not counting inflating/deflating time) daily to get the most therapeutic benefit.

People differ in their tolerances to oxygen "dosing", and each individual can differ day to day. Since people with chronic illness tend to be very toxic and sensitive, it is best to be conservative, in my opinion. Oxygen is considered a "drug", after all.

The effects of a 1 hour session stay in the body for over 24 hours, and are cumulative, from what I understand (but it takes a certain number of sessions before the results stick). My personal opinion/experience is that more than 1 session a day (or sessions longer than 1 hour) are more than what is necessary for our purposes, and may be too much for sensitive people.

I know for me, the few times I have accidentally fallen asleep in the chamber for more than 1 hour, I felt as if I had overdone it. Same thing when I had tried to do more than 1 session per day early on in my treatment.

There are many other indications that require higher pressures or more time in the chamber (such as wound or bone infections, for example), and I have known people who have these conditions in combination with chronic Lyme who, unfortunately couldn't tolerate these protocols.

I can see why you thought about this after watching the clip...but consider that much of the force behind mHBOT is not just through direct antimicrobial action, but via healing/empowering the innate immune system overall so it can deal with the "bugs" more effectively...

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BBinme
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Thank Phioph. I am taking Metanx which does have the same things that people take for methylation blockage...not sure if metanx helps or not with methylation( i would think it doez), but my llmd put me on it for nerve issues, numbness and tingling etc. Ive been on it for awhile now with no reactions so i think i will stsy on it for now. [Smile]
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Haley
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Thank you for the reply Phoiph. I will stick at one hour a day. I usually have the concentrator on 10. I have not missed a day, tomorrow will be 30 days for me.

I posted that one link as I think it is interesting that the effects of the oxygen "wear off" around 14 hours. I do, however, feel a cumulative effect. My main symptoms are weakness, fatigue and severe brain problems.

I have definitely improved my overall strength, for example I am doing Pilates 3 times a week, but only 10 minute each time. In the past I would be completey exhausted for a week if I did one short work out, in fact getting out of bed was a challenge for me. I now feel stronger with each workout and actually look forward to these workouts. It's a big deal.

My brain is still a mess, but I have faith that this will get better as time goes on and if I need to take medicine for it I will.

I feel that the oxygen is knocking out anaerobic bacteria while simultaneously empowering the immune system.

I believe the reason Lyme is so complicated is that we all have different pathogens due to the fact that we are bitten by a different tick in a different geographic area. Also, one person may have 2 pathogens and another 100. MCIDS (as Dr. H puts it). Its as if each one of us has an entirely different illness. Drs can't test for everything under the sun and they are often guessing when hitting these things with medicine.

That's why Oxygen makes sense to me. It boils down to 2 different types of bugs - anaerobic and aerobic; the Oxygen will take down a lot of stuff. This is easier to grasp than trying to treat 50 different pathogens.

Carry on mHBOTers.

[ 10-07-2014, 10:59 PM: Message edited by: Haley ]

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Looking4hope
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Haley,
So sorry for the late reply.....I have been through a great deal lately "Not Really LD Related"

I agree with everything Phoiph states above....I do believe in my heart eventually in TIME 'The Lights In Your Brain Will Come Back Online"(-:

Have you been following your diet, and a host of all the "Little Things".... with an emphasis placed strongly on the "Little Things"?

I like Phoiph believe that one should keep this "Process", as KISS or Keep It Simple Stupid as possible(-:

The only adjuncts I really ever added to Mhbot, were Earthing, Diet, Increasing Voltage in the body, and Exercise....and that has always pretty much been it.

Haley, the fact that your now able to exercise more frequently is a HUGE indication in my humble opinion that you are indeed headed in the right direction.

You have always intuitively felt like some form of Oxygen was going to get you to where you needed to be.....and the fact that your NOW training the way you are is nothing short of AMAZING at this stage of the game "Congratulations".

Mhbot, is a very slow process at times Haley. With that being said we are all as human beings living in one of the fastest paced civilizations in recorded history! That fact alone makes things that much more difficult!

I know it's hard as someone who has battled and is still battling right along side you Haley in the trenches each and every day.

In closing no one hear I believe is a doctor so we obviously can't give medical advice. What we can do is simply share "Our Personal Experiences", with this modality.

I'm greatly encouraged to hear about your success in regard to your exercise. Like you I have read a great deal about Mhbot, and other literature which interested me on the topic of TBD or Tick Born Diseases.

After "Adding Everything Up", I have my "Personal Opinions", as to why some heal, some don't, and other heal very slowly.

With that being said, I do believe Phoiph, who has unselfishly donated an abundance of her time and energy to helping others has illustrated "Personally", how powerful Mhbot can be for some.

I have always loved Phoiphs "Simple", straight forward approach as it coincides with much of the research I have done personally in regard to Mhbot.

Again sorry for the late reply Haley...I hope all is well(-:

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CD57
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I thought I would chime in here with a conversation I had recently with someone amazing that Phoiph hooked me up with. This gentleman has a lot of personal experience diving and is a researcher as well. Not Lyme, but other health challenges.

When we talked the other day, he mentioned to me that as regards aerobic pathogens potentially "growing" or spreading (this came in in course of discussing tick borne infections) he said that even aerobic pathogens create an acidic, low oxygen environment in which to grow. It was sort of a light bulb moment for me (that takes a LOT, right Phoiph?) and I am not really afraid of that anymore. I was afraid of "growing" bart.

If people have bad reactions to the chamber (I did, jumped in too much too soon) it's probably not because aerobic pathogens are "growing". The chamber is a methylator and a detoxer, so I would think that it's more likely that something is going on in that regard.

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Haley
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Thanks Lookingforhope. I'm sure that my brain is getting better, there are subtle improvements.

Glad to hear that you still have maintained the cognitive improvements.

CD57- I was trying to elude to the fact, that even if (hypothetically) the chamber caused other bugs to thrive (which I don't think it does), the oxygen kills A LOT of bugs while it's boosting the immune system. This puts the body in a position to take down what it once was not able to take down. That's just my opinion.

I am extremely excited about this therapy, but I'm trying to refrain from saying anything and make sure the results are lasting. It's just so difficult to not say anything when I have had days where I actually felt alive!!!! It's been 7 years since I felt that way. The "good days" are sporadic and few, but wow are they good!!!

I do have to add that I am taking Erythromycin, this was prescribed by my doc for some bug that I have. So currently, I believe it is a combination of the antibiotics and the oxygen. I also use a PEMF mat one hour a day.

I know that Phoiph is not big on abx, so I hope that this doesn't disappoint her. After all, she may have saved my life; I will be forever indebted to her.

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Phoiph
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Thanks to everyone for the kind words...

Haley...I am "not big" on antibiotics only when they don't work or cause harm for people (like me)...but if they are working for you for whatever reason, of course you have to go with what you and your doctor feel is best for you...

I am very happy to hear about your positive responses (and I know that you are aware that there will likely be ups and downs to come...it can be a rocky road...). The "good" days will eventually outnumber the "bad" ones...:)

Of course you are not indebted to me!!! I am grateful to be well enough to get the message out to others...and as I have said before, it makes my 8 years in hell seem like it had a purpose.

Remember, someone did it for me...and you will do it for the next person...

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BBinme
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Phioph, you said earlier that in studies with autistic children they found that mhbot increased natural antioxidant activity. Do you have the link to that study? Would like to read it thanks [Smile]
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Phoiph
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BBinme:

Here are links to a few articles indicating that mHBOT raises glutathione (the master antioxidant):

How Mild Hyperbaric Oxygen Therapy Works and Why it is Good for Our Children, by Julie A. Buckley, MD, FAAP :

http://www.google.com/url?sa=t&rct=j&q=&esrc=s&frm=1&source=web&cd=2&ved=0CCsQFjAB&url=http%3A%2F%2Fcommunityhyperbaric.com%2Fwp-content%2Fuploads%2FHow-mild-hyperbaric-oxygen-ther apy-works-and-why-it-is-good-for-our-children.pdf&ei=q79AVNDWOZHgoATr44CADQ&usg=AFQjCNF5DwDHvaKvO9g3IbFrcvMvhbl6TQ&sig2=O75ULzrRKrau_5bPWo7lFA&bvm=bv

Interview with Dr. Dan A. Rossignol: Hyperbaric oxygen therapy may improve symptoms in autistic children in Medical Hypothesis:

http://www.google.com/url?sa=t&rct=j&q=&esrc=s&frm=1&source=web&cd=1&sqi=2&ved=0CB4QFjAA&url=http%3A%2F%2Fwww.drneubrander.com%2FFiles%2FRossignol%2520Medical%2520Veritas.pdf&ei=VM JAVJmqOc_koAS12oLADQ&usg=AFQjCNFhj2W68J1Gxz_TDqfBAJ7oNPIqDw

Effect of Hyperbaric Oxygen Therapy on Autism:

http://autism-nutrition.com/hbot-autism

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Looking4hope
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I just got back from urgent care. I now have an "Ulcer of the Pharynox or Hypopharnx" and "Dysuria".

My immune system just can't catch a break. I feel like I'm back in this "Tunnel", with no connection whatsoever with my surroundings etc)-:

I have no energy, feel physically sick, and was told by someone I know that "I Just Need To Simply Use My Survival Skills"

I worked so hard to get to where I was...this is all just seems like a bad dream right now. My head feels so full, my legs feel week, I have bouts of intense nausea, hot cold, sweating, frequent urination, dehydrated.

I wish none of this was true....however unfortunately it is)-:

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BBinme
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Thank you [Smile]
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Phoiph
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Great article by an MD (with her own health challenges) who ran a hyperbaric practice and continues to use supplemental oxygen as a therapy with her patients:

The Most Overlooked, Effective, Prescription Drug, by Dr. Jamie Deckoff-Jones:

http://www.greenmedinfo.com/blog/most-overlooked-effective-prescription-drug-1

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CD57
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I think this doc also had Lyme!
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Phoiph
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Yes...there is a link in the article to her blog.
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mbdq
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Hello fellow HBOTers!

It's time for an update on my journey. I have reached 288 hours of mild HBOT. I still feel it is a very helpful modality to treat lyme, support the immune system, detox, etc.

In July and August, I felt I was stalled out with the HBOT, like my body was adapted to it and instead of getting little steps forward, I was just treading water. I went back to my LLMD and he suggested I go back on abx (I had been off them since Nov 2013) to move forward and really try to kick this.

I didn't feel completely comfortable going back on abx, so I went for a second opinion with an Integrative Medicine practice that a friend recommended. With that practice, I was able to get a lot of new blood work done, including tests with the BCA clinic in Germany. At that lab, they do a T-cell test that is better to determine active infection and has a very high sensitivity. It also tests for 5-6 strains of Borrelia versus typical western blot that tests for 1 or Igenex that tests for 2.

My results came back that I have not 1, not 2, but 3 strains of Borrelia plus Ehrlichia/Anaplasma and very high Epstein-Barr titers. My Epstein-Barr has always been high, but this is the first time I tested positive for Anaplasma. Now, this might seem like bad news (and having 3 strains of lyme certainly is!) but I also recognize that the test said that my t-cells (needed to fight lyme infection) were reactive to the lyme antigens. This to me is a good sign. It means my immune system recognizes Lyme and wants to take care of it.

So, this new practice convinced me that I really need to be treating more than just with HBOT (especially with 3 active strains)and suggested some simple treatment with doxy and malarone. I am also loaded up with multiple types of probiotics.

I've been doing the abx/hbot combo for 3 weeks now and I've really been herxing this past week (During week 2 I couldn't do HBOT due to travel). With this herxing, at least I feel I am not stuck and something is "happening" and I am hoping for an uplifting of the herxing stuff soon. The good thing is the herxing is not too bad. Certainly not as strong as when I started HBOT over a year ago. It also seems to be coming in waves that then the worst passes in a few hours, especially after I do the chamber. This is better than my old pattern which was just herxing forever with little noticeable improvement.

My husband also has Lyme, is on antibiotic therapy and has recently been using the chamber as well. It makes him herx pretty hard, and then he feels better in 2-3 days. He is using it as a supplement to his treatment to make the antibiotics more effective and detox. He thinks it's very helpful.

So that's the update for now! I will let you know how things progress for both of us.

Take care.

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CD57
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Wow, MBDQ thanks for the update. How interesting!
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CD57
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I am super interested in these tests. Do you know how I would get more info?
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Haley
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Thank you mbdq.

I'm also am interested in those tests.

Are you doing supplemental oxygen? I notice that this really helps a lot when I suck down the extra oxygen.

I agree that a low dose of medicine along with the oxygen seem to work well (for me anyway). I am concerned about yeast.

What do you take for probiotics? How many billion units? I have increased my probiotics to 200,000 billion and 5 billion sacromyces boulardi.

[ 10-21-2014, 10:07 PM: Message edited by: Haley ]

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Haley
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Does anyone here get clogged ears that don't unclog? What do you do to remedy that?

I have tried Afrin, Nettie pot, all sorts of things for sinus.

Any suggestions would be helpful.

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JCarlhelp
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Have you tried earplanes
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mbdq
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Haley- I have really sensitive ears that don't always clear very well. At times they have gotten clogged. The best thing that helped me was hot showers/steam.

Also the Neti Pot, but the hot shower was better, I think because I was standing up and they could drain.

Also, to help my ears clear in the chamber it is much easier for me if I pressurize while laying on my stomach in the chamber, with my upper body propped up on my elbows in a modified "cobra" position.

It seems to stretch my eustacian tubes and help them clear more easily. After reaching full pressure, I flop over very ungracefully.

For the inquiries about the probiotics, here is what I am taking:

1) VSL #3- 112.5 Billion CFU/cap. 2 per day

2) Enterogenic Intensive 100, Mfg by Integrative Therapeutics- 100 Billion CFU/cap. 1 per day

3) Saccharomyces boulardii, Mfg by OrthoMolecular Products- 5 Billion CFU/cap. 2 per day

4)OrthoBiotic, Mfg by OrthoMolecular Products- 20 Billion CFU/cap. 2 per day

Also, for those of you going through the first couple of months of HBOT and are having huge scary flares and other things going on, I remember what this was like. It's very scary.

I herxed so strongly I thought I had oxygen toxicity. I was feeling like I would pass out at any moment and I got some horrible colds/flus/sinus stuff that was very disconcerting.

I needed to back off and take the hbot slowly. A few times/week instead of every day. Try to listen to your body. Don't be too much of a warrior to your own detriment.

Oxygen and pressure are a strong modality. I do combine breathing oxygen with the chamber. I still herx in the chamber on a regular basis.

It increases my twitching and my head pain, shooting nerve pains in my head.

For inquiries about testing, my doctor sent the blood to a lab in Germany called Infectolab. The website is www.infectolab.de

It is part of the BCA clinic in Germany run by Armin Schwarzbach, MD, PhD. There is a youtube videos about his testing procedures if you search his name/lyme from a talk he gave in Florida.

Also, feel free to PM me.

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Haley
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JCarl - I have those I will try them.

Thank you so much mdbq. That is some great information. I probably will send you a PM at some point.

I tried the Cobra position, and I think that helped. My ears will stayed clogged for days, but I never take a day off of the chamber. My guess is they would unclog if I took a couple of days off.

Also interesting about the tests and the probiotics. I will take a look at those probiotics, I never know how much to take.

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mbdq
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Hey group- here's another update:

I am up to 306 hours of mild HBOT with O2. That's quite a committment! I am still diving every day I reasonably can. Basically, if I am in the same state, I am in the chamber.

I went to my LLMD last week after being back on ABX for 5-6 weeks. I was back to my usual pattern- initial herxing from abx, then a "stalemate" between the herbs/abx where I basically have low level flares/herxs with no real improvement. They wanted me on an additional antibiotic- I said no. Better yet, my being/body said NO!

I explained how I've been down this road before for YEARS. It apparently doesn't work for me. I asked- What else can we do to support my healing? And their answer was to try some herbs (I've been down that road too, but it fit better with my vision) So I have discontinued the abx and I am back on some herbal formulas. Also trying some Manuka honey.

I realized when I was driving home from the Doctor that I really feel it's pretty much up to me at this point to get well. I've been to the best. I've spent 10s of thousands of dollars. I've taken all the drugs.

It's not as scary a place as I thought it would be...at least it is something different.

I will continue with hyperbaric and work with some supportive therapies as I feel fit with my healing journey. I may get fully well. I might not.

I am working on being OK with that. I am not giving up, but I am accepting and surrendering to my situation, which I know will help on many levels.

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Phoiph
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mdbq...

Just so you know...I was NOT fully well at 306 hours (10 months for me) of mHBOT either!

At that point, I was much, much better than when I had started, but it still took several more months before I could go back to work part time, etc., and resume a semblance of a normal life.

I truly believe you are still healing and will get all the way there. There were many times where I felt that things were probably going to stay as they were, then I would take a step forward again. It wasn't predictable, and I never knew if I would become fully well...or just stop making progress at some point.

And, although I felt recovered after 1-1/2 years, I waited another 6 months to post my story to be confident I would hold on to gains. In retrospect, I have continued to improve in many ways since then (now 3+ years since beginning mHBOT).

So...it is a process...and I'm glad you aren't giving up on it!!!

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CD57
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MBDQ thats a huge achievement and you are to be commended! I hope that it is as Phoiph says and there is more healing to come.

You have come a looong way though.

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Beloved
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Greetings All,

I'm returning after a long absence. Knee and hip replacements done and recovered, and a couple meds dropped as well. I am recommitting to HBOT and my Respiro.

I have done 3 dives so far,= 8 hours so far. I figure that while I'm in there I may as well stay a while, and my die off hasn't been really noticeable until today.

This morning I started shivering. I wasn't cold. I began to be aware that the die off was in my brain, maybe via the Central Nervous System? So I just snuggled back into bed to ride the wave. It went on for 5+ hours!

So that's my first herx, after 3 dives equalling 8 hours. As a result my mind seems clearer, less processing thru cotton balls.

Beloved

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Beloved
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Greetings All,

I'm returning after a long absence. Knee and hip replacements done and recovered, and a couple meds dropped as well. I am recommitting to HBOT and my Respiro.

I have done 3 dives so far,= 8 hours so far. I figure that while I'm in there I may as well stay a while, and my die off hasn't been really noticeable until today.

This morning I started shivering. I wasn't cold. I began to be aware that the die off was in my brain, maybe via the Central Nervous System? So I just snuggled back into bed to ride the wave. It went on for 5+ hours!

So that's my first herx, after 3 dives equalling 8 hours. As a result my mind seems clearer, less processing thru cotton balls.

Beloved

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Phoiph
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Hi Beloved...

Welcome back to mHBOT [Smile]

I think we may have connected before you had your knee replacement(?)

I am very happy to hear you are using your Respiro again.

Are you using supplemental oxygen from an oxygen concentrator with your chamber? If so, I am concerned about how long your sessions are...1 hour sessions are recommended so you don't overdo and produce more free radicals or release more toxins than your body can handle...

Oxygen really is a drug, and can be "overdosed" on.

Hope you don't mind my unsolicited advice...but I know it wasn't good for me when I occasionally fell asleep in my chamber for a few hours...

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Beloved
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Yes, Phoiph, we did PM to touch base just before the surgeries. I don't know yr email any more; perhaps you can't find mine...

I did email with our friend L* about my # of dives vs hours in the chamber. I'm waiting to hear back from him again.

I Can say his friend that sells the compressors said that the dive loses it's efficacy after 1+1/2 hours in the Chamber. But my LLMD Dr says to try to stay as long as one can, to try to stay in overnight.

I couldn't get comfy enough for overnight; the best I can do is lay on my back, rest, maybe pray. I can't sleep on my back.

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Phoiph
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Some people stay in the chamber longer if they're not using supplemental oxygen...does your LLMD know you are using the chamber with 02 (if, in fact you are)?

Here's a good resource on the subject:

http://www.netnet.net/mums/Harch2.htm

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Beloved
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Yes, I am using both compressor And concentrator. I'm keeping track via journaling. After 3 dives this is my first herx. Also I had prayed that my brain might get some recovery in the beginning. It certainly gives me encouragement for this journey.

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Beloved
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Yes, Phoiph, my LLMDs clinic has 2 Chambers, and we both interact with the people at Genox.

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Beloved
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Greetings, fellow Lyme MHbot travelers.

I read, 'It's not the goal, but the direction you choose.' In our cases I think it's both. It is a direction that gives me hope.

I have had this demmed disease for 23 years, October in it's first week of 1991. I spent my 30s thru my 40s, now going into my 50s with this cruelty straight from the pit of hell. But on some level I have to hold onto my sanity by thinking that this circumstance protected me from something much worse, and/ or what have I learned through this.

I'm at 13 hours/ 5 Dives so far. I welched on my dives last week; the Chamber is in the unheated glassed in porch and we had a cold snap. A dear friend says "Then be sure to dress warm!" [kiss]

I concede that I can't do such long dives as I started. I was in the 'Pod' for 3 hours Saturday plus 1 hour for depressurizing. As a result: yesterday I was pretty immobile as well as slept longer than usual. Mostly from feeling crappy. I do feel better today.

So I am going to aim for 90 minutes, as per my MHbot selling friend of 20 years says the Hbot dive has 'a max rate of return, probably around 90 minutes.'

After 13 hours I think my mind is a bit clearer and I think less pain. Positives are Feeling more upbeat, and singing more throughout the day. (I have/ had a degree in music. But who wants to sing- using one's whole body- when one feels like crap?!!!) I hate the part about 1 step backwards after 2 steps forward. The progress is so subtle! But still I'm just starting. I must hold on to the cumulative steps forward.

I'll check in again when I notice another landmark.

All Good Things

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Beloved
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I almost forgot: I am noticing some relief in my left shoulder. Since my left hip & right knee replacements I have gone from 1 cane to 2 canes, using them more for support than balance. Getting old stinks! [Wink] . Using the canes more for support has really aggravated my left shoulder. I also seem to be walking a bit more strongly.

Also itching more. Agitating the buggers? I would like to think so.

--------------------
Lyme: 1991
DXed: 2008

'Do not go where the path may lead; go where there is no path and leave a trail.' Emerson

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Pam08
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Thank you for sharing your updates Beloved! Some of us are definitely still interested to hear how others are doing with this.

--------------------
Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting.

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Phoiph
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I wanted to share this testimonial video I just received featuring people with Traumatic Brain Injury (TBI) and Post Traumatic Stress Disorder (PTSD) who participated in hyperbaric oxygen treatment as part of a study in Pocatello, Idaho.

Note that many of the mental challenges and symptoms are similar to those experienced with Lyme Disease:

https://www.youtube.com/watch?v=QvsN1-np8hU

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joahsark
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Hi Phoiph,

Thanks so much for sharing this! It's been awhile, things are continually getting worse for me and I have every intention of getting a chamber in my home after the holiday.

Wondering, and I hope I'm writing this clearly, is there any info on brain injury that is continuing to take place? Meaning, these people that have been in accidents etc., the injury is severe but complete, with my case (as in most of us with Lyme, bart etc)the infection still lives and continues.

Wondering how that affects success. Hoping this finds you still doing amazingly well!! Wishing you a very Merry Christmas!!

Joahsark
(Penny)

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Haley
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Thanks for the video Phoiph.

I have been doing MHBOT since September 3rd and I am doing fairly well.

I still have some issues, also I believe I had some oxygen toxicity so I now will take off a day or 2 a week.

My brain problems have definitely gotten better, which was my biggest concern. I still have some problems with weakness and fatigue, but my doctor an I are always finding pieces to the puzzle.

I want to ask people here (if anyone is still following this) what type of diet so you follow? I know that Phoiph eats mostly Palio.

Also, does anyone think about the "free radical" effect of oxygen, do you take any supplementation to address this?

Any feedback is appreciated. In fact if anyone knows an article or book on the subject that would be great.

Overall, I am doing quite well, I have come a long way in many regards.

[ 12-13-2014, 08:21 PM: Message edited by: Haley ]

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Phoiph
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Hi Joashark...

I have helped several people who have traumatic brain injuries (without Lyme) get started with mHBOT, and find that in general, there are differences in their reaction/response to mHBOT compared to those who have had toxic exposures or infectious conditions (like Lyme & coinfections, mold exposure, etc.).

What I have observed, is that in general, people without infections or toxic conditions (i.e., traumatic brain injury only) don't seem to need to work up to the protocol as slowly, as they are not as toxic and don't have "herx"-like detox reactions.

Also, they may not require treatment over as extended of a period of time as those with Lyme, although each case is individual.

People with Lyme not only have multiple infections and toxicity to deal with, but often have been ill for a long time, and require healing of multiple body systems. There may be many "layers" of illness to address, and this takes time.

That said, it is possible that people with Lyme may have an advantage in the brain department over a traumatic brain injury, since their brain dysfunction, although ongoing, may be of a functional nature (i.e., cells are idling "offline", but not "damaged"), as opposed to an actual traumatic injury that may involve physical insult.

One of the great things about mHBOT, is that it not only increases the efficiency of the immune system (so it can better fight the infections), but releases stem cells and helps to grow new nerve cells...so it can be very effective in both situations.

I am a good example of how mHBOT heals brain dysfunction from Lyme and coinfections...at my worst, I couldn't figure on out which corner of an envelope to place a stamp, nor could I remember what I was doing long enough to complete a simple task. This went on for years, and I was certain my brain was permanently damaged...but full function eventually returned via mHBOT.

I'm currently working on gathering video documenting the progress of people with Lyme using mHBOT...but in the meantime, you may be interested in this mother's video testimonial of her 9 year old daughter's recovery from viral encephalitis with HBOT:

https://www.youtube.com/watch?v=2zNzZyqHtZc

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Phoiph
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Hi Haley...

So glad to hear you're doing so much better overall. That's great progress, especially considering the relatively short time you've been doing mHBOT!

To respond to your question about free radicals, I was at an office Christmas party last night given by my neurologist friend who runs an HBOT clinic. We were all standing around the 6-person chamber, and someone asked the very same question regarding oxygen and free radicals.

I wish I had recorded my neuro friend's explanation, but the upshot of it is that the free radicals created via oxygen under (hyperbaric) pressure react very differently in the body, and are actually a beneficial part of the healing process, and not harmful. She said this is a common myth/misperception, that unfortunately deters people (including doctors) from pursuing HBO.

I have asked her for a more in-depth explanation, and will post it when I receive it from her...

Although she doesn't recommend antioxidant supplements (which are best obtained through diet), she does recommend 2 supplements to her neuro patients:

Ambrotose (a glyconutrient for cellular communication and immune function): http://mannatechscience.org/home/products/advanced-ambrotose

Stemgevity: (assists stem cell mobilization)
http://www.stemcellmd.org/stemgevity-products/

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Haley
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Thank you Phoiph. Very helpful.

Am I the only one on Lymenet that is still doing this protocol?

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Phoiph
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Haley...

Here is the response to your question regarding concerns about mHBOT and free radicals from my neurologist/HBOT friend:

"...Free radicals are a necessary part of the healing activation that takes place with HBOT. Oxygen radicals interact at a DNA level to modify gene expression: upregulating healing processes and downregulating inflammatory and destructive processes. In a hyperoxic condition, the physiology is different. Oxygen radicals are broken down by enzymes after they have been effective. In hypoxic circumstances oxygen radicals linger and are destructive. There is a research article that I can give you as a reference. [Oxidative stress is fundamental to hyperbaric oxygen therapy. Stephen R. Thom. Journal of Applied Physi9ology 106:988-995, 2009.]..."

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2660252/

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spinning122
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Wow Phoiph, thanks for that great explanation!

Haley, you're not the only left on Lymenet doing this protocol ;-) I'm guessing most are rather quiet in this thread since results with this treatment don't happen overnight, and sometimes there isn't much to report.

I am 295 dives in now (1 hr daily). I stopped all antibiotic treatment on July 13th, not because I was symptom-free, but because I felt that the drugs had taken me as far as they could. So I've been doing just mHBOT for 5 months now and have not experience any rapid decline after stopping the drugs.

As far as symptoms go, I believe mHBOT has kept my muscle, bone, and most nerve pain in check. I only experience intermittent burning spinal pain at the base of my neck where it meets the upper back. I believe my brain is clearer now and I experience windows where I feel like "the real me" is peeking out (if that makes any sense?) In fact, I've starting contemplating going back to finish school sometime in the near-ish (not too near!) future, whereas half a year ago I couldn't even think about doing such a thing. And lately, I've starting feeling the desire to take up my oil painting again...a passion I had lost many years ago when the illness completely took over my mind/body. And I'm grateful to even be able to feel that desire again. Also, severe fatigue comes and goes, but overall, I am able to stay out of that darn bed most of the day now :-)

The past couple of months, though, I have been experiencing many upper respiratory symptoms? My lungs feel kind of full, like I need to hack up something, a kind of wheezing feeling. And I have a constant sore throat, tender lymph nodes behind the ear, congested head and running nose that gets stuffed especially when I am lying down. And burning tired eyes, puffy swollen face, which I generally have all the time.

I have a question for Phoiph or anyone else using the oxygen generator... How do you clean the filter in the back and how often? I wash mine out with hot water every month or so and let it completely dry before putting it back in, but I wonder how well I am cleaning it, and how well it is at filtering the air I am breathing through the mask... I do have a dog in the house, and I assume, the general amount of dust and mold in the air... I guess what I am saying is, I hope breathing that air through the mask is not contributing to my allergy/lung issues? I was so concerned that I even bought a super expensive air purifier with 6 different filters to run in my room all day.

Anyway, HAPPY HOLIDAYS to everyone :-)

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CD57
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Wow Spinning that is amaaaaazing. You have come a long way from when you first started, remember!?

Haley, I don't post because I can't consider myself as doing the protocol as of yet. I'm not in it for an hour.

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spinning122
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Lol CD57, now that you mention it.. yes, in my earlier emails to you I was in pretty awful shape, huh? It's hard to realize when you're making progress with this because it's so gradual. I really hope that you can eventually work up to the protocol and make some solid improvements as well CD57! Sending you my best!!
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Phoiph
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Hi Spinning...

Thanks for the update...I especially like the part about your renewed interest in oil painting (you must post one of your pieces for us)!

You are doing fine with cleaning the filter...you can do it more frequently if you like. You can use mild dish soap and warm water, rinse well, and let dry thoroughly before putting it back on the concentrator.

It is very dry and dusty where I live, and sometimes in between washings I take it outside and clap it between my hands.

There are also filters on the compressor...they are the 2 black metal spherical things on the side. You can unscrew them from the compressor, then twist them open (but they are sometimes difficult to open). There's a paper filter inside that you can dust off. The compressor also has a long glass filter, which you don't need to maintain.

The air you're breathing in the chamber, which is filtered via both units, is cleaner than what you're normally breathing in your home, so no worries there...

I am wondering if some of your discomfort has come from the dryness, either with heat in the house, or from the drying effects of the oxygen on your airways(?). There is a humidifier attachment for the concentrator, but I hesitate to suggest it, because it requires meticulous maintenance for health reasons, and there is no real evidence I have seen that it is of great help...but something to consider if you think this may be the problem. We could contact the vendor for more thorough information if you're interested, and should also run it by your doctor if you decide to try it...

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Phoiph
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CD57...Yes...you are always so supportive of others...we are sending you lots of encouragement and know you will get there!
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spinning122
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Hehe, I said that I've recently been feeling the desire to paint again..didn't say I actually started or that I'm any good at it [Razz]

Thanks for the info Phoiph. The discomfort is definitely not from dryness in the house (I kinda wish that were the case!) so I don't think I would need the humidifier attachment. Where I live, it's almost always moist and foggy (side note: the possibility that mold might be hindering my recovery process terrifies me [Frown] )

Haley, I just realized that you asked earlier about our diets. Yes, I am also following a Paleo-like diet as much as I can. Anything to nourish the body and keep inflammation down to a minimum.
http://perfecthealthdiet.com/the-diet/

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joahsark
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Thank you so much for explaining Phoiph, that makes perfect sense. I will watch the link and be encouraged.

Best,
Penny

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Haley
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Thank you beloved and spinning. I know that it takes time and effort to come by the thread an update, but it really helps me.

Even if it's just to know that I am not alone in this journey. I find that we can learn about this therapy as we continue to get feedback from everyone.

Phoiph - Thank you so much for the article. I've printed it out an will sit down and read it. My simplistic way of looking at it is, yes the free radicals help in this therapy as they can destroy bacteria, but maybe in some small way it is like antibiotics as it can also affect the good cells. With antibiotics we make sure we take probiotics and eat well. With Oxygen maybe we need to supplement antioxidants. I'll read the article first before trying to comment on such a technical subject.

That is so funny about the stamp. I had the same experience. I remember thinking to myself, "wow, this is an all time low, I can't figure out where to put this stamp".

I am finding that the oxygen exasperates issues with my skin (an infection on my skin) and it also exasperates issues in my gums and teeth. I'm also having some heart issues, which is most likely unrelated to my illness or to the oxygen.

In my humble opinion this makes sense, certain pathogens that manifest on the skin "like" oxygen. So, I will treat the bugs that are not being "helped" by the oxygen (after I identify them, that's the tricky part). It' like a Rubik's cube, but thanks to the oxygen and to Phoiph that puzzle is slowly being solved.

Please, all mHBOT users, continue to come back every few months and post.

Also thanks for the diet tips, I am eating a good percentage of raw foods, but I do eat meat too.

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CD57
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Haley did you find a way to get around your ear problems in the chamber? I experience pain on one side of ear but have had this always. I get stabbing ear pain sometimes but think that may be unrelated to chamber as it's been there along.all
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Phoiph
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I wanted to share an encounter I had a couple of days ago.

I was listening to some musician friends perform in a very small, out of the way town 25 miles from where I live. It was crowded, and someone I had never met sat next to me. He happened to mention that he used to be a sports medicine doctor years ago, so I asked him if he had ever heard of or used hyperbaric.

Turns out, he not only had used hyperbaric for himself and his patients, but in the 80's was the researcher and co-developer of the original Gamow Bag...the first soft chamber (developed originally for altitude sickness), and predecessor of the home chamber, the company which was eventually bought by DuPont, then Oxyhealth. He still owns a few of the original bags.

The conversation was very interesting...I learned a lot from him, and he reiterated what I already knew...the amazing powers of oxygen under pressure.

What are the chances? Probably pretty good in my world...things like this seem to happen to me all the time these days. It was a gift to have had the chance to let him know that his knowledge and research had given me my life back, and was helping a lot of other people...there are no coincidences!

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Haley
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Wow, Phoiph, what a great story... and yes I need to remember more often that there are no coincidences... I would love to talk to that guy.

CD57 I still have problems with my right ear, but I am now able to go in the oxygen chamber. The first time in the chamber it was so painful, I thought my eardrum had ruptured.

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mbdq
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That is a fantastic story Phoiph- thank you for sharing! We are all connected.

For those with ear issues, my ears remain a bit "sticky" at times but overall I am tolerating the pressure changes very well by pressurizing while on my stomach in the cobra position. Don't forget this position if you haven't tried it!

My husband is now using the chamber every day for an hour. We have to plan our schedules so we can both get in. He is no longer on antibiotics (not that there aren't plenty of docs who would prescribe them, but we felt they weren't really helping him progress and he needed a break). He feels the HBOT is helping, but he is also very frustrated that he is not 100% better yet- he isn't a very patient man and we worry that he will end up like I did- sick and in pain for years on end. We are grateful that we have this modality to treat.

I still use the chamber every day and I am seeing some nice time periods where I am PAIN FREE! It's a few hours here and there, but wow it's like being on some type of high! Energy is also good. I am at 338 hours.

As for diet, we are basically doing a combination of the Wahl's protocol and the GAPS diet. I am really focusing on helping both of us heal our guts. All the antibiotics have taken a toll. I am sure I have had gut dysbiosis since I was a child. It's time to address that piece of the puzzle. Lots of broth soups, cooked veggies, etc. I am gearing up to do the full intro diet for GAPS after Christmas. I will let you know how it goes.

Happy Holidays to all! Keep diving!

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CD57
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Spectacular MB ! I've admired your dedication to the plan. You make time for it and its paying off.

Phoiph amazing story! Just in time for Xmas.

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