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» LymeNet Flash » Questions and Discussion » Medical Questions » numbness, breathlessness, incredible lower right back and hip pain

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Author Topic: numbness, breathlessness, incredible lower right back and hip pain
DanP
LymeNet Contributor
Member # 7501

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i haven't posted in a while and recently all sorts of things have been popping up

1) incredible lower right back and right hip pain, entire lower back feels like the bones are scraping against bone, that would explain the pain but I think the muscles are involved too

2) arms and legs feel numb, then they don't

3) GI acid reflux, sinuses full, discharge clear, but feels like something caught in my throat

4) cough

5) breathlessness, trouble going up stairs and running a few feet to catch a train can wipe me out

6) have been told via ekg that my heart muscle is thickening

7) have had to have some basal cell carcinomas removed

8) had a fibroid removed from the sole of my foot last year, another one has appeared

some of this may be lyme related,some not, but I think it's all part of the same package...

I've gone off all stuff, only taking fiber supplement, I want to slowly reintroduce the aloe vera, the chlorella, the bvitamin the turmeric and curcumin, for some reason I think the problems are related to the b complex or the multivitamin...

but this is bad, it's handicapping me at work...

any ideas...

oh, I forgot I also recently had a video eeg to see if there has been something in the brain that the LYME doc here in nyc can point to when he puts me on a drug so that the insurance company will pay...if there is abnormal activity he says the ins co can't refuse...

I haven't received those results yet

danP

Posts: 274 | From NY | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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B complex ... How much B6?

http://women.emedtv.com/vitamin-b6/vitamin-b6-toxicity.html

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94522 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
minimonkey
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good to know -- thanks Tutu!

--------------------
"Looks like freedom but it feels like death..
It's something in between, I guess"

Leonard Cohen, from the song "Closing Time"

Posts: 822 | From California | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
minimonkey
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I was thinking kidneys/liver/gallbladder with the low back pain. I had a kidney infection at one point that caused incredible low back pain, like a pulled muscle. Just something else to consider.

--------------------
"Looks like freedom but it feels like death..
It's something in between, I guess"

Leonard Cohen, from the song "Closing Time"

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ohioperson22
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quote:
Originally posted by DanP:

1) incredible lower right back and right hip pain, entire lower back feels like the bones are scraping against bone , that would explain the pain but I think the muscles are involved too

2) arms and legs feel numb, then they don't


6) have been told via ekg that my heart muscle is thickening

If you spinal issues (arthritis, spinal stenosis, disc issues), those could cause #2.


#6. Have you had an echocardiogram?

Posts: 200 | From Ohio | Registered: Apr 2016  |  IP: Logged | Report this post to a Moderator
Bam
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I felt a lot like you describe when my thyroid replacement dosage was too high. I'm hypothyroid, but became hyperthyroid. The breathing issues were the most bothersome.

It's a far cry, but I thought I'd put it out there for you. Perhaps you should have your thyroid levels checked.

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DanP
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Hi, thank u for the comments but as the symptoms are getting even worse, I've been doing a lot of research using the terms of my symptoms in Google search

I think this lower back buzzing and tightness and pain that wakes me up and keeps me awake along with all the gi acidity and reflux and gurgling and the mysterious rashes and the eye redness are evidence of autoimmune disease

My gmother had rheumatoid arthritis so maybe there's a genetic thing

My question is who do I see about auto immune disease testing and therapies?

A rheumatologist?

A nyc based dr with a Lyme practice put me through a battery of tests recently and is doubtful of chronic Lyme even tho 12 years ago I had testing from stony brook and igenex that wasn't that positive but did have bands 39 and 41 reactivity

Thank u
DanP

Posts: 274 | From NY | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
DanP
LymeNet Contributor
Member # 7501

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Hi, thank u for the comments but as the symptoms are getting even worse, I've been doing a lot of research using the terms of my symptoms in Google search

I think this lower back buzzing and tightness and pain that wakes me up and keeps me awake along with all the gi acidity and reflux and gurgling and the mysterious rashes and the eye redness are evidence of autoimmune disease

My gmother had rheumatoid arthritis so maybe there's a genetic thing

My question is who do I see about auto immune disease testing and therapies?

A rheumatologist?

A nyc based dr with a Lyme practice put me through a battery of tests recently and is doubtful of chronic Lyme even tho 12 years ago I had testing from stony brook and igenex that wasn't that positive but did have bands 39 and 41 reactivity

Thank u
DanP

Posts: 274 | From NY | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
   

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