LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash
Topic Closed  Topic Closed
Post New Topic  New Poll  
Topic Closed  Topic Closed
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Bart/Lyme treatment.

 - UBBFriend: Email this page to someone!    
Author Topic: Bart/Lyme treatment.
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
Hi guys!

I have a bart and lyme infection. It give me miocarditis and polyneuropathy.... I've been treating with a llmd and he wanted me to pulse abx and i become my bart resistant to macrolides and rifampin clases... I don't have hope... Hierbs don't work and i only have one hope... Fluoroquinolones.

My new llmd says that it would be safe take 300 mg minocycline (it's resistant to bart, but i have lyme), 400 avelox and 500 x 2 pyrazinamide.

I'm afraid because i've read horrible histories about flúor o quinolones... Some people told me that i will die after three doses and they are 100x100 sure that i'll have permanent nerve damage....

I'm so desesperated and i want to commite suicide... I don't have hope.

Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
I would be SOOOO hesitant to take any fluoroquinolones. How bad are the bart symptoms?

I would guess it's BAD?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94770 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
As bad as that I'll die of myocarditis and a chronic encephalopathy in a few weeks ...
Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
Surely there are other meds?? I would try anything...except....

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94770 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
There is no more effective abx... I've pulsed tetras, macrolides and rifampin/rifabutin at past alone and now it's not working.... My llmd saya that he has treated over 300 patients with flq and only one patients had tendinitis but stoped it at time and recovered
Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
Well, you may have to try it.

My husband has taken it at least twice with no bad reactions. It scares me to death each time he has to take it.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94770 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
Yes, lymetoo.

I would like to hear good experiences about avelox. I'm so desperate..

Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
lymehope
Member
Member # 48581

Icon 1 posted      Profile for lymehope     Send New Private Message       Edit/Delete Post 
Have you tried or looked into (sulfa meds)
Sulfamethoxit? I am on it and I find it very effective.

Posts: 68 | From new york | Registered: Aug 2016  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post 
Why do you think herbs don't work? There are numerous success stories of herbal therapies being effective. Buhner, Beyond Balance, Byron White, etc, etc, etc.

Quinolonese are a concern but they can be helpful. People can and do get "floxed." But this is rare and most people take them without issue. Levaquin is bad, but Cipro is less of an issue as are newer versions like Factive.

This is not medical advice. I"m not a doctor. But I would seriously explore other herbs as optoins as they can and do work.

I've been doing well the past 1-2 years and crawled out of the pit this last time using only herbs.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3105 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
I'll try fluroquinolone. In terms of safety, what's the safer quinolone? Cipro, avelox, levaquin por factive.
Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
MissVictoria
LymeNet Contributor
Member # 45232

Icon 1 posted      Profile for MissVictoria     Send New Private Message       Edit/Delete Post 
I'm so sorry that you're suffering. I very strongly recommend seeking counseling if you are suicidal. There is hope. I grew up having Chronic Lyme Disease and Bartonella and I'm better now. You will get better, it just takes time. Life is so precious, and so good.

Here is the phone number to the National Suicide Prevention Lifeline. They are open 24-7 and provide free help. 1 800 273 8255

Love and best wishes to you

Posts: 234 | From New Jersey | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
quote:
Originally posted by LymeBart24:
Yes, lymetoo.

I would like to hear good experiences about avelox. I'm so desperate..

That one adversely affected my heart.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94770 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
quote:
Originally posted by LymeBart24:
I'll try fluroquinolone. In terms of safety, what's the safer quinolone? Cipro, avelox, levaquin por factive.

None of the above .. but Cipro would be my last resort if I HAD to.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94770 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
bullmastiffluvr
Member
Member # 50250

Icon 1 posted      Profile for bullmastiffluvr     Send New Private Message       Edit/Delete Post 
I have taken Levoquin with no side effects. I got tendonitis from flagyl which took 6 months to resolve. I think you have to try whatever you think will help you get better. Hopefully you have a doc you have confidence in. I am sorry you are so ill from this disease. The information people give from their personal experiences on this website have been so helpful to me. I hope you will find the answers you need.
Posts: 41 | From CA | Registered: May 2017  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
When did you have tendinitis bull? Before or after take levaquin?
Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
LymeBart24
Junior Member
Member # 51549

Icon 1 posted      Profile for LymeBart24   Author's Homepage     Send New Private Message       Edit/Delete Post 
I have eldher dandlos, but the most bening type... I think it's hypermobility. Does it mean that i'll be floxed?
Posts: 8 | From Cataluña | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
tickbite666
LymeNet Contributor
Member # 43399

Icon 1 posted      Profile for tickbite666     Send New Private Message       Edit/Delete Post 
I got tendonitis in my right Achilles 19 days after starting Levoquin and stopped immediately. 6 months later I tried Cipro with no adverse sx and took it long term almost a year.

But still relapsed a year later and now back on Rif, Biaxin, Alinia combo. Also treat with Hout and JK plus. May replace Hout with IHA blend. CSA blend did little for me in the past.

Posts: 118 | From ground zero | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
WakeUp
LymeNet Contributor
Member # 9977

Icon 1 posted      Profile for WakeUp     Send New Private Message       Edit/Delete Post 
I have both Bart and Lyme ---- plus Morgellons which has ruined my ability to wear any clothing I like. I am always hot now, because I must wear pants and long sleeves due to the ugly lesions on my forearms ..

People treat me like a leper if they ever see a lesion-- which is OK since I don't much like people anyway--LOL!!!!!

Please Please Please don't lose hope-- a cure will be ours!!!

Please have faith!! Where there is life there is hope. God will turn it around soon!!! There will be a dramatic reversal soon!

Why not consider Buhner's protocol for both bart and Lyme --for just a month or two--- and see how it goes?

Its just a teaspoon of japanese knotweed powder (cheap-- on amazon), 2-3 times per day-- it tastes horrible, so my husband made it into capsules for me at 5 caps per teaspoon-- very cheap this way. I also take one cats claw capsule with one andrographis 2-3 times per day.

Soon, I am going to add Sida acuta /houttuynia drops also for the Bart.

I gave up on standard medicine a long time ago. So far the japanese knotweed with cats claw and andrographis is helping me -- my skin lesions are drying up..and the scratching is gone, but the biofilms holding the lesions together are still there. I have found a lot of natural compounds that prevent biofilm formation--- but none so far that actually truly degrade biofilm once it is formed, though apparently cat's claw does do this, according to Sapi's research.

All my love to you. Please have faith, dear one-- and hold on to your precious life.

God will help us. Evil will be punished.. Trust in Him.

Posts: 696 | From New York | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
sebreg
Member
Member # 44928

Icon 1 posted      Profile for sebreg     Send New Private Message       Edit/Delete Post 
This is what I was told by a leading llmd in how he has his patients start levaquin. Initially they start with 1/8th of a pill the first day, they gauge reaction. If ok, then they proceed to 1/4 of a pill, then 1/2 then up to full dose. He told me this has helped him catch flox reactions before they've gotten out of control.

The reason I asked him about this drug is because my doc had prescribed it and I was very scared about taking it. I started with his recommended 1/8th of a mini-dose, I didn't get a flox reaction but I had the strongest mind-altering herx I've ever gotten. I just took one dose, but that herx lasted a week, I couldn't tolerate the drug given that level of herxing. Plus I was worried that with that level of herxing I wouldn't be able to tell what was herx and what was a risky side effect (I tend to get a lot of neuropathy with bad herxes).I do wonder if I tried it now how I'd tolerate it, I am much closer to remission.

Posts: 30 | From Phoenix, AZ | Registered: Nov 2014  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
I discovered a biofilm breaker. Dragon's blood sap. From South American tree. Some of them are diluted up to 30% with alcohol. Thank you for your post. I did not know about biofilm big so hard to destroy, and had lost faith in my methods. I feel very relieved.


quote:
Originally posted by WakeUp:
I have both Bart and Lyme ---- plus Morgellons which has ruined my ability to wear any clothing I like. I am always hot now, because I must wear pants and long sleeves due to the ugly lesions on my forearms ..

People treat me like a leper if they ever see a lesion-- which is OK since I don't much like people anyway--LOL!!!!!

Please Please Please don't lose hope-- a cure will be ours!!!

Please have faith!! Where there is life there is hope. God will turn it around soon!!! There will be a dramatic reversal soon!

Why not consider Buhner's protocol for both bart and Lyme --for just a month or two--- and see how it goes?

Its just a teaspoon of japanese knotweed powder (cheap-- on amazon), 2-3 times per day-- it tastes horrible, so my husband made it into capsules for me at 5 caps per teaspoon-- very cheap this way. I also take one cats claw capsule with one andrographis 2-3 times per day.

Soon, I am going to add Sida acuta /houttuynia drops also for the Bart.

I gave up on standard medicine a long time ago. So far the japanese knotweed with cats claw and andrographis is helping me -- my skin lesions are drying up..and the scratching is gone, but the biofilms holding the lesions together are still there. I have found a lot of natural compounds that prevent biofilm formation--- but none so far that actually truly degrade biofilm once it is formed, though apparently cat's claw does do this, according to Sapi's research.

All my love to you. Please have faith, dear one-- and hold on to your precious life.

God will help us. Evil will be punished.. Trust in Him.


Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Willy
Member
Member # 52247

Icon 1 posted      Profile for Willy     Send New Private Message       Edit/Delete Post 
The Lyme complex starts out as a collection of infections but then turns into a genetic disease.

That's why conventional treatments only take you so far.

There is a way to treat the genetic defects that are introduced and it's called epigenetics.

**edited**

[ 02-10-2021, 11:22 PM: Message edited by: Lymetoo ]

Posts: 30 | From wyoming | Registered: Dec 2020  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
Thanks. I will look into lauric acid AKA Lauracidin.
Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Willy
Member
Member # 52247

Icon 1 posted      Profile for Willy     Send New Private Message       Edit/Delete Post 
Hi Tryal;

What the lauricidin does is cancel the genetic issues that keep your immune system from working.

Adding in some immune boosters will give it quite a kick.

There are a million different things you can buy , over time I've found there are a few really good ones.

Echinacea;

www.vitacost.com/simple-truth-organic-immune-booster-herbal-tea-supplement

Usnea;

https://www.iherb.com/pr/Herb-Pharm-Usnea-1-fl-oz-30-ml/12344

Astragalus;

https://www.iherb.com/pr/Herb-Pharm-Astragalus-1-fl-oz-30-ml/9594

Dragons blood;

https://www.iherb.com/pr/Herb-Pharm-Dragon-s-Blood-1-fl-oz-30-ml/42585

Taking those all and the Lauricidin will turn your immune system into a rocket. But you also need to know how to manage the result.

Posts: 30 | From wyoming | Registered: Dec 2020  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
Hi Willie, I've already been using all of these for approx a month now except for the usenea. Also astrologus which I have been using for years. I actually wrote an article about how echanasia 20 years ago which was published in a magazine. I tried coconut oil several times but didn't work, in fact it backfired. I just tried it again today, and it caused a new Nest to double in size. A medical doctor says that biofilms require at least 1000 times the normal dosage of an antibiotic. Dragon's blood is only effective for about 5 hours topically. I have been drinking 5 to 15 drops dragon's blood about twice a week with no appreciable effect. My condition now is only one percent of its worst , which was two months ago. However the new nests that come up are getting more and more resistant. I have a diathermy device which is almost as effective as dragon's blood. Been using it only for a day though. I'm also wearing about 5 lb of magnets. I also have several electrocution devices 4 spot treating new biters. There's a lot more as well, including how I stopped this parasite from blinding me and taking away my teeth, more than once. Just brought home some shredded coconut to eat. Topically, I have lots of coconut oil, all of which failed topically. God bless
Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
Been taking Japanese knotweed extract Resveratrol for 2 weeks now. The real Japanese knotweed powder should be arriving in 10 days or so. I have tried all the other teas and herbs, even very obscure ones, which were only effective for a few days each. And the parasites develop resistance. I have read everything that the Institute reports published, and have instituted the recommendations as well.
Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
I guessed that doctor steininger in Los Angeles is using a diathermic device, or ditherm, or diathermy. The patients call it lion, and doctor Salinger call it a lioness. This is basically a radio transmitter. Hazardous to the operator.

I read a 10 year-old experimenters Forum post stating. Microwaves destroy the parasite. My own experiments confirm his statement. So I microwave oven all my linen and clothes, before putting on.

Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
By the way, I am one of the 6% how chronic lyme victims who got cured. Took less than 60 days. 2017. Almost no Pharma. My friend who got lime the same time I did is still not fully cured.
Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
Willy
Member
Member # 52247

Icon 1 posted      Profile for Willy     Send New Private Message       Edit/Delete Post 
There is no cure , the lyme complex genetically modifies you. You can be healthy though.

Coconut oil just seems to sit on your skin and doesn't do much. That is why this soap works better in a hot bath.

It has coconut oil mixed with sodium hydroxide and the sodium hydroxide and hot water cleans the skin and helps the lauric acid penetrate.

lather up and leave it on for ten minutes.

https://www.iherb.com/pr/Kirk-s-100-Premium-Coconut-Oil-Gentle-Castile-Soap-Original-Fresh-Scent-3-Bars-4-oz-113-g-Each/21083

That was very helpful in getting the infection and abnormal cells out of my head and neck.

Posts: 30 | From wyoming | Registered: Dec 2020  |  IP: Logged | Report this post to a Moderator
Tryal - one of the 6% cured of LD
Member
Member # 52275

Icon 1 posted      Profile for Tryal - one of the 6% cured of LD     Send New Private Message       Edit/Delete Post 
Hello Willie. Thank you for your suggestions. With all due respect oh, I have my own methods. And I was cured of Lyme. One of the 6% described by the big lime organization survey as having escaped chronic Lyme, and 100% of that 6% used natural methods in addition to Big Pharma. Have the best day ever.
Posts: 46 | From Canada | Registered: Feb 2021  |  IP: Logged | Report this post to a Moderator
   

Post New Topic  New Poll  
Topic Closed  Topic Closed
Open Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.