LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » MCAS people, Zantac question

 - UBBFriend: Email this page to someone!    
Author Topic: MCAS people, Zantac question
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
For those that have MCAS, are you continuing Zantac despite the health damaging chemicals in it and if not, what are you taking in place of it?

I am really struggling off of Zantac with increased symptoms that I can't get to go down. Seeing my allergist and llmd in several weeks but not wanting to wait that long to get on something.

Would love to hear what others that have actual MCAS are doing or what your docs have recommended. Thank you!

--------------------
unsure445

Posts: 820 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (1K+ posts)
Member # 5960

Icon 6 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
My allergist put me on maximum strength Pepcid AC. I buy the generic brand which saves me a ton of money. I haven't had any issues with it and been on it for a couple of years.

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 4793 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I’ve always taken Pepcid because Zantac made my stomach hurt. My husband takes Zantac. I need to go buy the extra strength Pepcid tomorrow.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for your replies. I like my stomach acid/digestive fire intact if possible. Such a drag that these are the only options.

If I hear of any herbal or supplemental remedies I'll post back on here.

Thanks Lymetoo and aklnwlf!

--------------------
unsure445

Posts: 820 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
Do either of you do/take anything to replenish stomach acid? Do you get concerned about Sibo or GI imbalance on these PPI's?

--------------------
unsure445

Posts: 820 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm sure the lack of acid is a concern, but I have no evidence that I have a lack of it.

I don't tolerate adding any acid. I've tried.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you Lymetoo.

--------------------
unsure445

Posts: 820 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
rosiegeorge
LymeNet Contributor
Member # 27518

Icon 1 posted      Profile for rosiegeorge     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm trying not to dose every day but am still using. I have severe MCAS that it's even reached my bone marrow from my last bone marrow biopsy. Dr's are worried it will convert into mastocytosis.

None of the other GI meds worked for me so I'm quite torn. A huge game changer for me was starting on cromolyn oral solution & nasalcrom also. This has helped leaps and bounds. Enough to reduce my other mcas meds. If you haven't tried it yet definitely ask for a prescription!
As of now, I can't go more than 3-4 days without Zantac. I'm hoping only taking it 1-2 x week will lessen my risk vs. daily dosing.

Posts: 157 | From Colorado | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Rosiegeorge. I can't imagine where I'd be without Cromolyn, its a lifesaver. I succumbed to Pepcid for now to get things back under control.

Pepcid has its adverse affects too so hoping to find a healthier solution in the near future.

I'm so glad that just a few doses of Zantac per week is helping you.

--------------------
unsure445

Posts: 820 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
just wondering if anyone has any updates to this question- I mean answers.

[Smile]

-

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3354 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't think Zantac is available, so it's a moot question.

Most of us take Pepcid.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I LOVE my cromolyn sodium! Total lifesaver .. nasalcrom too.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
yes, raditadine (sp?) is still purchasable I think and I notice lots of people still use it, so they either stockpiled before removal, or they are getting it somewhere. [Eek!]

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3354 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
spookydew
LymeNet Contributor
Member # 8432

Icon 1 posted      Profile for spookydew     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is MCAS? And what does an antacid have to do with allergies? Sorry for the dumb questions but I have been gone many years. How would an antacid help allergies?
Posts: 283 | From ohio | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'll bring you a link, spooky... Lots of us have it, either diagnosed or as yet undiagnosed.

Pepcid and Zantac are H2 receptors, which help block histamine responses.

There are about 60 links here, so just pick one and GO!! LOL

https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=036299;p=0

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
spookydew
LymeNet Contributor
Member # 8432

Icon 1 posted      Profile for spookydew     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh my I thought I just still had multiple chemical

sensitivities but I had anaphylactic reaction to

honey bee and have lesser reactions to most insect

bites. My arm swells a lot with a little tiny

sweat bee. I never thought that could be something

else. Also, one of the links talks about certain

probiotics Lactobacillus rhamnosus and

bifidobacter species reducing histamine. So I've

been eating sauerkraut for probiotic effect for

the atbs and just now read that these two species

are in sauerkraut. Anyway I just felt so good this

week eating it. Could this help and work that

quickly? Just reading all these links today have

made me feel like a hypochondriac all over again.

I wouldn't have figured this out on my own. I'm

much older than when I was here last and just not

really up to all that I used to be.

Thanks for all the good links

Posts: 283 | From ohio | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
My problem with sauerkraut is that some of the strains are not good for histamine. That was my trouble.

So just eat small portions. Don't overdo it.

Sounds like you could have MCAS. [Frown]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94389 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
spookydew
LymeNet Contributor
Member # 8432

Icon 1 posted      Profile for spookydew     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was surprised to see this about MCAS. I'm glad I found it. I only eat two forks full of sauerkraut each day 9am and 9pm same time I did probiotics. I have to be careful of the goiter I've had since early 90s. It feels so much better not taking all those capsules and not worrying about them getting stuck in my throat.
Posts: 283 | From ohio | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.