LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Teenage daughter heart POUNDING

 - UBBFriend: Email this page to someone!    
Author Topic: Teenage daughter heart POUNDING
Jlynne
Junior Member
Member # 51955

Icon 1 posted      Profile for Jlynne     Send New Private Message       Edit/Delete Post   Reply With Quote 
My 15 year old is currently receiving 3x week IV Rocephin. Her heart/chest is pounding so hard that she says it hurts. She has had this for a while but now it’s worse; I think it’s part of a herx. Do I take her to the ER? She insists she doesn’t need to and that she’s “fine.” Or do I take her to a cardiologist? Any advice appreciated.
Posts: 9 | From New York | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm so sorry this is happening and sure this is frightening for the both of you. I don't have advice about this, because my son did not do IV abx and I don't recall this specifically happening to him.

Perhaps it is a herx or the medicine itself? Maybe the dosage/frequency needs to be tweaked? I'm not a doctor, just thinking of possibilities.

Have you contacted her LLMD to let him/her know what is going on and to ask what to do? I would do that.

Posts: 8743 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sorry to hear about your daughter Jlynne

I did a quick search on Lymenet and ALOT of Lyme sufferers have posted about this same exact symptom.
Hopefully you will find answers;

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/76768#000006

Posts: 2138 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Jlynne
Junior Member
Member # 51955

Icon 1 posted      Profile for Jlynne     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you both for replying. I believe it is a herx but I also want to make sure there isn't something worse going on. Is it appropriate to go to a cardiologist while seeing an LLMD? I would assume that I would share her current treatment with the cardiologist? I read way too many horror stories!!!
Posts: 9 | From New York | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Jlynne
Junior Member
Member # 51955

Icon 1 posted      Profile for Jlynne     Send New Private Message       Edit/Delete Post   Reply With Quote 
Also- do I need to find a Lyme Literate cardiologist? Is that even possible? Will a regular cardiologist question the IV treatment that my daughter is on? She does have a CDC positive Lyme test...I’m so worried about this whole thing!!!
Posts: 9 | From New York | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
MissVictoria
LymeNet Contributor
Member # 45232

Icon 1 posted      Profile for MissVictoria     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, go to a cardiologist ASAP
Posts: 233 | From New Jersey | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jlynne,

First I would call her LLMD and make sure the office knows the question is urgent.

If you PM me, I can give you the name of a very Lyme-friendly cardiologist in NY. The only problem is that he is often booked up for a while---unless he got a cancellation or squeezed her in.
Actually, I know of 2 Lyme-friendly, or better, cardiologists.

in the meantime, it is possible to go to the ER, although they often are less than helpful with Lyme patients. We tend to be more complicated.

Also, if you do go, I would be wary of giving them your LLMD's info. They are not known to be on our side, as it were, unfortunately. Although 3 weeks is not too long even in the view of Lyme skeptical people.

Do you have a blood-pressure/heart rate cuff? It might be helpful to get one to check her heart rate and BP when she has symptoms. (I'm not saying you should diagnose her yourself, of course)!

In my experience, I often feel like my heart is pounding, but when I check, it is not too fast, and my BP is not high. I don't know if it's arrhythmias or what. I do have PVC's and other arrhythmias.

Lyme can definitely infect and affect the heart (through the nervous system, too).

Posts: 3669 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Jlynne
Junior Member
Member # 51955

Icon 1 posted      Profile for Jlynne     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you for the replies. I have an appointment for her at a cardiologist on Wednesday. I was thinking of taking her to her primary doc today-she doesn't know she is in treatment with an LLMD though, so I am sure she'll ask if she's seeing any other doctors. How do I avoid telling someone her LLMDs name if they ask?

She actually stayed home from school today because of this symptom so I am extremely anxious and going to try to get her in to her primary today. I am also calling her LLMD shortly- she is wonderful at taking calls and getting right back to me.

Thanks again.

jlynne

Posts: 9 | From New York | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ideally, I would take her to a LL cardiologist who understands the disease and its effects on the body.

Why don't you ask your LLMD if she can recommend someone? Poster "Rumigirl" mentioned she has some names of "Lyme-friendly" cardiologists- send her a pm. I know of one LL cardiologist in CT, but she does not treat out-of-state patients.

Are you in NYC or elsewhere in New York state?

Link for NYC Lyme Support Group:

http://www.nyclymesupport.org/

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help. They would know better about NY.

Some more resources for you (including Support Groups info):
http://whatislyme.com/lyme-in-new-york/

www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Posts: 8743 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jlynne,

You many not know how to send a PM (private message). Just click on the the box that says "private message" above someone's post.

I hope that you get good help for your daughter soon. Your LLMD may also have a referral for a Lyme-friendly cardiologist.

Posts: 3669 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
How is your daughter doing? Were you able to get her to someone who understands Lyme and what it does to the human body?
Posts: 8743 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
If the doctor asks for the name of the LLMD, just say that you will not share that info in order to protect the LLMD.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94762 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.