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» LymeNet Flash » Questions and Discussion » Medical Questions » insomnia, fatigue, & brain fog 2 years later

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Author Topic: insomnia, fatigue, & brain fog 2 years later
156287
Junior Member
Member # 52074

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Hi guys I have a question - didn't really know who else to ask.

2 years ago I was diagnosed with Lymes, I had the bull's eye rash but was not treated for over a month after it appeared. I was given 40 days of antibiotics, but as an immature college student, did not adhere to the regimen as strictly as I should have. Since then , I started experiencing insomnia and fatigue.
I am currently a medical student, and the brain fog and fatigue has gotten significantly worse. Even on breaks when I do get enough sleep, I wake up and my brain just doesn't seem to be functioning properly. I don't know if its just the stress/me being paranoid, or if this is in some way related to the Lymes I had. I asked my primary care doctor about it, and he assured me I just needed to get more sleep. Any thoughts or suggestions? Thank you!

Posts: 1 | From IL | Registered: Dec 2019  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for WI & IN.

I am not a doctor, but think you still have Lyme (not Lymes) disease. Borrelia burgdorferi, the bacteria which cause Lyme, cross the blood/brain barrier.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

I would highly recommend you read & familiarize yourself with all the valuable information found in them.

Here is an excellent link found on Lymenet about "Important Information About Lyme and Co-infections" for you to also read:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=088555;p=0

Unfortunately, LLMDs are far and few between. You need to go where they are. Fyi - the doctor base in Illinois is poor.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Some more resources for you (including Support Groups info):

http://whatislyme.com/lyme-in-illinois/

http://www.lymenet.org/SupportGroups/UnitedStates/Illinois/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy it online.

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper tab, make your changes, then click "Edit Post". Thanks.

Posts: 8751 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Alexa Brown
Junior Member
Member # 52203

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I'm sorry to hear this and I wish you a speedy recovery. By the way, I've heard that dietary supplements can help improve sleep.

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You become responsible, forever, for what you have tamed. Antoine de Saint-Exupery.

Posts: 4 | From Dallas | Registered: Sep 2020  |  IP: Logged | Report this post to a Moderator
JessicaCampbell74
Junior Member
Member # 52208

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I was diagnosed with this condition in August. The first long course of treatment with antibiotics did not bring success, the titer remained at the same level. Now I'm in my second year, but I don't feel any improvement. I fell into a depression and it seemed to me that nothing would help. My brain wanted to rest and shut down, but my body didn't want to fall asleep. All night I just lay in bed, trying to think as little as possible to give my brain a rest. When it happened, I almost had a panic attack, because I had never experienced or gone through this in my life. Even on the worst night, when I had a fever from the flu or diarrhea, I fell asleep closer to 6-7-8-9 in the morning, regardless of the hour. I believe that this is one of the most terrible side effects that a person can have. In general, in the last two years, the condition has deteriorated significantly, and I was able to cope with it only 6 months ago. I decided to try to buy a heavy blanket https://sommio.co.uk/ , according to reviews, it helped to fight insomnia and stress.

[ 03-30-2021, 06:28 AM: Message edited by: JessicaCampbell74 ]

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hrsrhdrtf

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daisys
LymeNet Contributor
Member # 11802

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I'm sorry you have gotten Lyme Disease. It's a very complicated illness.

I've had a sleep disorder for many years because of Lyme disease. I finally found a good sleep specialist and I'm now taking a medicine regimen that has helped.

There are many who become doctors because they want to help others. But, still, I wouldn't go to any but LLMDs for treatment for LD--many either have it themselves, or someone they love has it. They are experienced, motivated, and courageous.

I hope you get to watch Under Our Skin. It's very educational.

Posts: 449 | From New Mexico, USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

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156287–I sent you a private message about a good LLMD.

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Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 6519 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
   

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