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» LymeNet Flash » Questions and Discussion » Medical Questions » COVID Vaccine safe for Lyme Patients

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Author Topic: COVID Vaccine safe for Lyme Patients
Myco
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Who's taking the COVID vaccine when it's available.

Would love to know if any long term lyme patients out there have reliable info from their LLMD's. What are they recommending?

I had debilitating Neuro lyme and am largely symptom free after treatment. Don't want to rock the boat but am thinking of taking it when it's available. Have never taken a Flu Vaccine.

Are we considered "at risk or vulnerable" part of the population? ie..would we get it earlier than others?

I've done lots of Vaccine research so please no conspiracy related replies here, thanks.

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Mountainsky
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I might have to bite the bullet and do it. Just heavily detox and pray ill be ok. I just started a new job that I absolutely love, it's in Healthcare ( business/ administration side) and worst case scenario I don't want to lose my job if I decline or wait. I gave them my medical exemption form for the flu shot and they were fine with it (thankgod)

A vaccine for Covid gives me so much relief and hope. However for someone with Lyme and Cos and who was injured by vaccines last year I am worried. If I become more sick and the vaccine triggers something ugly then what? Still lose my job? ☹

It's a gamble.

[ 12-04-2020, 05:51 PM: Message edited by: Mountainsky ]

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Bartenderbonnie
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Many Lyme patients have severe Immune disfunction.
We simply don't make antibodies. Putting any vaccine in my body would be fruitless.

Did Lyme cause this Immune disorder or did this Immune disorder cause us to be unable to clear Lyme out of our bodies? Please get your IgG sub-classes tested.

A VACCINE MAY NOT BE THE ANSWER!

Dr H has conducted his own study on Lyme patients within his practice and to date, not one has ended up in the hospital. Hospital clinical trial is next.

Here he lists his exact protocol for preventative and active infection treatments;
https://m.facebook.com/story.php?story_fbid=3559511577470948&id=558833517538784&__tn__=%2As%2As-R

Good luck finding ivermectin. Many stores have pulled it off their shelves.

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Lymetoo
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No thanks. Not for me. I have MCS and MCAS and I know it would throw me for a loop .. and with possibly permanent complications.

--------------------
--Lymetutu--
Opinions, not medical advice!

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nucleotide
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"I've done lots of Vaccine research so please no conspiracy related replies here, thanks."

If you actually did any substantial amount of vaccine research you wouldn't be taking it.

(editing out a couple remarks - people can make comments here but keep them courteous please)

[ 12-06-2020, 12:28 AM: Message edited by: Robin123 ]

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Robin123
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My Lyme doc is able to treat any patient who gets covid- says symptoms are down in 48 hours. Not true that people need a vaccine to treat covid.

I have taken lots of Vit C, Vit D, turmeric and a mushroom extract and I have had 3 negative tests. Pretty good for someone with an immune-compromised illness, yeah?

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bcb1200
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C'mon team. Have you seen the symptoms of long haul COVID and how they are identical to long-haul (Chronic) Lyme?

Why would any of us what to risk getting that?

I know vaccines can and do cause issues, but for me I'd much rather roll the dice with the most heavily scrutinized vaccine in history rather than get COVID and face another decade of long haul symptoms. It just isn't worth it.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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Lymetoo
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I already have the long-hauler symptoms. It's called MCAS.

--------------------
--Lymetutu--
Opinions, not medical advice!

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TerryK
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Hi Lymetoo!
I have MCAS too but I am seriously considering the vaccine. Some think Covid-19 causes significant vascular damage and can affect any part of the body. Heart attacks, strokes, eye issues, permanent lung damage, permanent heart damage and the list goes on and on. When I read the facebook group posts of long haulers they sound very much like us and chronic fatigue syndrome patients. Lots is still unknown about post covid issues.

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Rivendell
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What is MCAS?

I was just going to post this same question about the vaccine. I really don't know what to do. It seems you could damned if you do, and possibly damned if you don't.

I never got totally well from lyme. Got reinfected too many times. Don't need Covid, and sure don't need to be a long hauler due to a reaction to the vaccine.

--------------------
Herbal Treatments for Lyme and Co-Infections:
http://buhnerhealinglyme.com
http://www.tiredoflyme.com/the-cowden-protocol-for-lyme-disease.html http://www.sinomedresearch.org http://www.lymenet.org/SupportGroups/

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keikko
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As a RN who had a vaccine injury which was really the downward spiral of my health I would say wait. Not never, just but wait and see.

Personally, I won't ever get another vaccine; however, I don't think they are all bad. I would just wait and see how it goes with the general population before you jump in. [Smile]

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Rivendell
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MCAS Mast Cell Activation Syndrome. I believe I have that, as I am allergic to everything. I take a lot of quercetin and sometimes benedryl. I can no longer tolerate antibiotics because of it. Trying to build up the gut flora, but not having much success. So much inflammation.

I may just wear a mask the rest of my life.

Thanks Keiko for the good advice. I have not had a vaccine for decades. Your story concerns me, and I will definitely wait and see. Just wear a mask the rest of my life, maybe.

--------------------
Herbal Treatments for Lyme and Co-Infections:
http://buhnerhealinglyme.com
http://www.tiredoflyme.com/the-cowden-protocol-for-lyme-disease.html http://www.sinomedresearch.org http://www.lymenet.org/SupportGroups/

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Myco
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quote:
Originally posted by bcb1200:
C'mon team. Have you seen the symptoms of long haul COVID and how they are identical to long-haul (Chronic) Lyme?

Why would any of us what to risk getting that?

I know vaccines can and do cause issues, but for me I'd much rather roll the dice with the most heavily scrutinized vaccine in history rather than get COVID and face another decade of long haul symptoms. It just isn't worth it.

Agreed, thank you!
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Bartenderbonnie
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You must educate yourself. Put in the time and work.

Emergency COVID-19 Vaccine May Cause Massive Side-Effects
https://tinyurl.com/yddpfkr7

Major safety questions still remain. None of the trials included immunocompromised volunteers, so the effects of these vaccines on people with suppressed immune function is wholly unknown.

Australia Ends COVID-19 Vaccine Due To HIV Antibody Positives
https://www.ndtv.com/world-news/australia-ends-covid-19-vaccine-trials-due-to-hiv-antibody-positives-2337285

Data showed some patients developed HIV antibodies towards fragments of a HIV protein, which was used in the vaccine to stabilize the vaccine. What????????????

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TX Lyme Mom
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I've already lost the link, but I read a warning somewhere which warned that persons with bad allergies might have trouble with the COVID vaccine, which made me think immediately of MCAS patients.

I had intended to post that article immediately, for fear of losing track of it, which is exactly what has happened. I promise to come back and post it here, if/when I'm lucky enough to find the link again.

Until then, here's what our daughter's old allergist from any years ago used to do to protect her whenever she needed any kind of flu vaccine or other immunization. He broke the dosage down into two (or more) smaller dosages and gave them a couple of weeks apart.

It's been too long ago for me to remember any of the specific details, especially about the timing of subsequent dosages.

What I do recall is that this method was very effective for her. She did not suffer any major setbacks this way.

I suspect that many allergists would be open to this idea because they are already familiar with super-sensitive patients -- in case you need to go doctor shopping in order to find someone open to this idea.

Obviously, this method would not be feasible for the vaccine (from Pfizer?) which requires super-cold storage because it decays very rapidly at room temperature, but most of the other COVID vaccines from other manufacturers do not require extremely cold storage conditions.

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daisys
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I tried to post a video from a LLMD about this subject, but the link doesn't activate.

This doctor feels positive about this vaccine because it doesn't introduce any virus into a person's system, but instructions for the immune system. When he says to weigh the risks, he's saying it's life threatening for people with LD to get covid-19.

Basic summary:

3 reasons for thinking twice about this type of vaccine:

1. If you have ever had a severe reaction to anything. Severe doesn't mean a few days of headache, or plugged up sinuses, etc. This means those who carry an epi pen with them all the time. This applies to all vaccines, not just the covid vaccine.

2. Some people have an autoimmune illness that can be proved with blood tests. Not all people with LD have autoimmune blood markers. If they do, there is a 1% chance they will have problems with a vaccine of any kind. So, they have to weigh their risks, the vaccine's possible negative outcome against risk of dying with covid-19.

3. If a person had a vaccine of any kind in the past, and it caused a serious relapse of lyme disease (not just a month or two of feeling worse).

This vaccine is so different from any before it, there is no information about people with LD taking it. There's no information about long term effects.

end of summary

My friend who works in the ER of a local hospital is going to hold off and see how it goes, but she is very healthy and protects herself well.

I'm inclined to wait and see. That is risky for a person who catches every little thing that comes along

[ 12-31-2020, 11:08 PM: Message edited by: daisys ]

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daisys
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quote:
Originally posted by Robin123:
My Lyme doc is able to treat any patient who gets covid- says symptoms are down in 48 hours. Not true that people need a vaccine to treat covid.

I have taken lots of Vit C, Vit D, turmeric and a mushroom extract and I have had 3 negative tests. Pretty good for someone with an immune-compromised illness, yeah?

What does your doctor do to beat Covid-19 in 2 days? What you just listed?
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TX Lyme Mom
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quote:
Originally posted by TX Lyme Mom:
I've already lost the link, but I read a warning somewhere which warned that persons with bad allergies might have trouble with the COVID vaccine, which made me think immediately of MCAS patients.

I had intended to post that article immediately, for fear of losing track of it, which is exactly what has happened. I promise to come back and post it here, if/when I'm lucky enough to find it again.

OK, here's the link to the article which I thought I'd lost. It was still open on my computer.

Funny thing though: I had first seen the link to that article posted right here at LymeNet, by Bonnie, in her message immediately above my previous message! Thanks, Bonnie!

https://articles.mercola.com/sites/articles/archive/2020/12/08/coronavirus-vaccine-side-effects.aspx

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spookydew
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I'm not going to get the vaccine. Too many allergies and history anaphylaxis reactions. However, I am now taking Vitamin D3 and zinc for protection. There have been small studies on Vit D3 with covid 19. Also, smart doctors are well aware the benefits of Vit D3 and respiratory illnesses because it was already in studies long ago.


https://www.youtube.com/watch?v=Qwaq4oRnpjY&feature=share&fbclid=IwAR1o2VFQfh1mSOmWn4mlOMieJVt1SHxSAKnax5MiSKRkn4IuG_4xrPkLHTA

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Lymetoo
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quote:
Originally posted by TX Lyme Mom:
I've already lost the link, but I read a warning somewhere which warned that persons with bad allergies might have trouble with the COVID vaccine, which made me think immediately of MCAS patients.


Exactly. It's recommended in the UK that anyone who has to carry an epi pen should not get the vaccine.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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More info:

https://acaai.org/news/american-college-allergy-asthma-and-immunology-releases-guidance-risk-allergic-reactions-pfizer?fbclid=IwAR0sUWYp19b1lzcSjOZUAY1AMg-KT78Yq_LN6gjYzqTJgnsGnsK6 OjPJAGc

"Data related to risk in individuals with a history of allergic reactions to previous vaccinations and/or mast cell activation syndrome/idiopathic anaphylaxis is very limited and evolving."

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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https://www.washingtonpost.com/health/covid-vaccine-allergic-reactions-study/2020/12/21/e01001d2-431a-11eb-b0e4-0f182923a025_story.html?utm_campaign=wp_main&utm_medium=social&utm_s ource=facebook&fbclid=IwAR06s38EzXTrpDeeExhegP21pquhRz0_DfY6X73yzR9rAaMHRFJhwRBDE8w

--------------------
--Lymetutu--
Opinions, not medical advice!

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Robin123
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quote:
Originally posted by daisys:
quote:
Originally posted by Robin123:
My Lyme doc is able to treat any patient who gets covid- says symptoms are down in 48 hours. Not true that people need a vaccine to treat covid.

I have taken lots of Vit C, Vit D, turmeric and a mushroom extract and I have had 3 negative tests. Pretty good for someone with an immune-compromised illness, yeah?


What does your doctor do to beat Covid-19 in 2 days? What you just listed?
Ok, here's his list:

1) ViraClear - a homeopathic remedy that helps to clear respiratory illness. Available on Amazon as a cherry-flavored syrup and tincture. Said if ill, to take 4x the normal dose 4x/day, and have at least 2 bottles on hand. Made a pretty strong statement that taking ViraClear early on has a good healing impact.

2) Safecell glutathione - said if already taking it, double it - ie if taking 2 pills in the am, add 2 at noon. Watch for sped-up feeling, insomnia. 60 capsules in a bottle, 300mg each.

3) upped Vitamin C - said to take 3x more than what normally taking (me - I really up it)

4) Noxylane - it's a shiitake mushroom enzyme extract. Said if on it, up it to 3 pills 2x/day.

Just giving instructions verbatim. Obviously for first-time users, see how any of it goes.

Most recently, he said 48-72 hours for clearance of COVID sx in his Lyme patients!

[ 01-13-2021, 04:32 AM: Message edited by: Robin123 ]

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daisys
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Thank you!
Might be good to have this stuff on hand...of course, I have the Vit. C.

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