Very sorry overlyme You have had a long journey.
We will ever be recognized in the medical field and be able to stop sufferering in silence? We are the BEST patients, we will try anything to get well. We show up on time, follow doctor's orders, pay out of pocket, travel long distances, take notes, become educated about our prognosis(s) and know we are in this for the long haul.
And we continue to have hope.ðŸ’š
My neuro symptoms diminished by 75% after 4 months of aggressive multiple antibiotic protocol. But after numerous relapses (after stopping antibiotics), the standard go-to meds don't work as well anymore.
I have been on professional grade herbals for almost a year. Noticable improvement at first but overtime they too don't work as well. I have been rotating new herbs and am staying stable except for Neuro brain issues, which are getting worse.
I really think we need spect/pet and thermography scans of our brains. Football players get these routinely. They aren't covered by insurances except for certain conditions. What these tests will show is that there might be frontal lobe inflammation/damage. New tools, fresh set of eyes, new strategies.