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» LymeNet Flash » Questions and Discussion » Medical Questions » anyone have only neuro symptoms

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Author Topic: anyone have only neuro symptoms
overlyme
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Member # 43455

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any one have neuro symptoms, no flu like feelings

and no achyness..feel like my head is swimming

throat feels funny in the front at the base of

the throat, getting angry and feeling like Im

off balance, had lyme and company 30 years ago

and treated from 2003 on too now..I am on

rochephin and rifampin for a year now..this

is my monthly cycle this coming week..i just

dont feel like i am getting better or this is a

neuro herx? feel like so off its not funny..

what do you guys think?

--------------------
been there done that!

Posts: 90 | From ny | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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Have you tried going without the meds? Maybe it's the meds.

Rifampin really did a number on me.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94694 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Very sorry overlyme
You have had a long journey.

We will ever be recognized in the medical field and be able to stop sufferering in silence? We are the BEST patients, we will try anything to get well. We show up on time, follow doctor's orders, pay out of pocket, travel long distances, take notes, become educated about our prognosis(s) and know we are in this for the long haul.

And we continue to have hope.💚

My neuro symptoms diminished by 75% after 4 months of aggressive multiple antibiotic protocol. But after numerous relapses (after stopping antibiotics), the standard go-to meds don't work as well anymore.

I have been on professional grade herbals for almost a year.
Noticable improvement at first but overtime they too don't work as well. I have been rotating new herbs and am staying stable except for Neuro brain issues, which are getting worse.

I really think we need spect/pet and thermography scans of our brains. Football players get these routinely. They aren't covered by insurances except for certain conditions. What these tests will show is that there might be frontal lobe inflammation/damage. New tools, fresh set of eyes, new strategies.

What is autoimmune encephalitis?
https://www.instagram.com/p/CHG_gpFD44x/

Because of Covid, everything is on hold now.
Stay in the battle.

Posts: 2122 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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