Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Still seeking a LLMD around New Orleans or Baton Rouge Louisiana. Please respond.
Posts: 6250 | From Louisiana | Registered: Oct 2006
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
Check out this website for doctor referrals. You could also contact Support Groups in LA. There's a link on the upper left side of this page. Support Groups are listed by state.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks Marian.
I contacted the Louisiana Lyme Association and e-mailed the contact person. Have yet to hear back. My concern is that I am on doxy. 100 mg 2 x daily, but this is not enough from what I've read and seen. I spoke with my MD who said we'll wait till retest( in 30 days) then up the dosage if indicated. I asked why not do it now??? I only tested with one positive band on WB (band 23), but from what I understand will probably retest with more bands showing. I just want to be as aggressive with this disease as it has been with me.
Thanks so much!!! Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Hello I know the LLMD in Louisiana he treated me about 5 years ago and I am now Lyme disease free. You can contact me @ [email protected] and I will give you his name, number and other information you need. Staci PS please put "Lyme disease doc" in subject line so I don't delete your email.
Posts: 220 | From Louisiana | Registered: Jun 2004
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posted
I can say had it not been for the LLMD in Louisiana I would be dead by now! He and his staff are GREAT!When I went to see him I weighed 98 pounds and was almost dead! My family doctor (which I love and am still with she is great also) had run me through every test, procedure and medication in the world to find out what was wrong and after about a year of treatments and such she decided to test me for lyme by their test I was two points shy of being active lyme so she sent me to see the LLMD here. He did the IGENEX test and I was very much LYME positive. They fought with my insurance company tooth and nail to get me the PICC line treatment I needed which ended up being 16 weeks. At first my insurance said 2 weeks the doc said waste of time and fought for me. He said 3 to 4 months and fought for it. As I got stronger I went to see my State Representative with my picc line and all and told him and his staff my story and he wrote a letter to my insurance on my behalf. I had about a week and half left in treatment when my line started to get infected so we had it pulled and I was a LOT stronger and feeling better so I decided not to put the PICC back in for that short time. I started on 6 months of oral antibiotics 5 different ones I can't remember the names now. But when I was needing the PICC line my insurance was saying they wouldn't fight oral antibiotics ( I had letter from them) well when I started oral they tried to fight it and the doc and his staff went to fight again for me towards the end of my oral treatment I ended up having to get a lawyer friend to write a nice letter to the insurancce company and they where more than willing to help. ( I still have copies of all of these if anyone needs something to give to their State Rep or lawyer to go by) I will be more than willing to pass it along to help someone else just will have to block out the names of lawyers and such to protect them. But will give a sample for them to go by as to what to say and how to say it. Thanks to the Louisana Doctor and his staff I am now weigh 125 pounds and doing better. I have since been diagnosed with lupus which I knew was coming because I have family on both sides and an aunt who died with it. My family doctor even tried treating my for lupus because of history but it just made me sicker but within 3 weeks on PICC line I could see a difference! My insurance ended up paying just for the PICC line to the tune of about 24000 bucks plus all the high priced oral antibiotics I took and they paid it all at 100% I thank GOD for the doctor here in Louisiana being willing to go head to head with my insurance and not just accept what they said I needed but to fight and get what I needed or I would be dead today. I still have a few lingering effects of lyme but they kind of fall in with lupus so they don't bother me to bad. I deal with lupus on a day to day bases. But I can say lyme and lupus are to totally different diseases and on most days with lupus I will say lyme is WAY worse! Catch me on a bad day of lupus and I might say more even but never any easier than lupus that is for sure! Stacie
Posts: 220 | From Louisiana | Registered: Jun 2004
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