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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » TX LLMD

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Author Topic: TX LLMD
chas5427
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Member # 48126

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have had symptoms for 3+ years. diagnosed in another state, but need a practitioner closer than 1,200 miles away! appreciate your help.

adult patient.

Posts: 1 | From Austin, TX | Registered: Jun 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Welcome to Lymenet! PM sent for TX.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Please read the following about LLMDs and Texas which was recently posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.

Because of the sorry state of affairs in Texas, many folks from Texas are coming to the East Coast for testing and treatment for Lyme disease and it's co-infections. At least half of all Lyme patients travel out of state for their care. The doctor is the key to the diagnosis and for getting rid of this horrendous disease."

Read what other Texans wrote in this thread about trying to get proper care in Texas:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/132642?#000018

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Posts: 8932 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
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chas, the doctor is the key to getting rid of lyme disease, especially if you have had it for more than a year. I can't emphasize that enough. The doc is the key!

So, while you may want to have a doctor close to you, the expertise of the doctor (not his distance from your home) needs to be your top priority if you want to ever get rid of this disease.

At least half of all lyme patients go out of state for their care, and many fly. Lyme docs do monthly telephone appointments with their out-of-state patients so that you only have to travel to see the doctor once every 3 months. And, problems between appointments are handled by phone and email.

So, now that you know that, I suggest you read a past post about a person who wanted a lyme doctor in Texas. Here it is:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/26392#000001

There are plenty more just like it here on Lymenet.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
me
Frequent Contributor (1K+ posts)
Member # 45475

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Chas, I also advise going out of Texas. I searched and searched for a good LLMD near me, but to no avail. Although funds are limited, I now fly quite a ways to see a LLMD that is good. TF is correct in saying you have to have a good LLMD to beat this. It has only been since flying to see this LLMD that I've made progress.

TF or I can send you a PM with a recommendation of a good LLMD who is out of state.

Posts: 1431 | From USA | Registered: Mar 2015  |  IP: Logged | Report this post to a Moderator
   

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