posted
I'm not sure I've had any benefit. I take 4 mg day, and have for several months. My CD57 has only gone up 3 or 4 points on it after months of tx.... Perhaps others see a benefit.
Posts: 143 | From Louisville KY | Registered: May 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It is fantastic. I had trouble when I first started with frequent urination which was probably stirring up FL1953. My thyroid went very hyper about 3 months ago so I decided I should give it another try. I started treating the FL bug about the same time.
My thyroid returned to normal and I am not taking any medication for it at all. I have a normal body temperature for the first time in my life. I have more energy and motivation. My mind is clear. I can think.
As I said I am also treating protomyxzoa with stromectol and the low fat vegan diet. I got the complete methy cycle panel done and am treating that which also requires a vegan diet low in sulphur.
That is all I am doing. I am afraid to say this and jinx myself, but I feel close to well. I want to stay on the ivermectin 4 months before I quit it. I hope I will be able to control it with diet and the supplements.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
LDN seems to aggravate my situation quite a bit. Seems to increase my inflammation instead of decreasing it. Not sure why.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I tried LDN for several months but I did not notice any benefit from it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I have reduced pain resulting in needing fewer pain meds. Just be sure you don't run out. Due to a miscommunication between my compounding pharmacy and my LLMD I ran out for a few days and could really tell the difference, not in a good way.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
If you do a search for LDN under Medical Questions, you'll find several discussions which could also be helpful.
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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