posted
I've had CFS for 5 years. I'm seeing Dr V. in MN in May. My Igenix Lyme had some pos bands.
My question is can you sill have CFS after you irradicated Lyme? I started feeling ill in Feb, which is not a Lyme month in WI. I've never been an outdoorsy girl.
Can you get CFS, then have it activate the lyme, treat the Lyme, then still Have CFS.
I can't live the rest of my life if I have CFS and I read that you can still have CFS after Lyme is treated, which scares the crap out of me.
Thanks!
Posts: 111 | From madison wi | Registered: Nov 2008
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posted
I personally believe that CFS and Lyme are different illnesses, though I think there is overlap. There is a great deal of evidence to suggest that CFS is triggered by a virus such as an enterovirus or a herpesvirus (i.e. HHV-6).
This does not mean you won't recover from both, however, but you might need a more complicated treatment strategy.
A lot of LLMDs don't recognized the complexities of CFS, and a lot of CFS doctors don't recognize the complexities of Lyme, so be sure to get both opinions and use them to your advantage.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Lyme seldom is the only problem. You can get rid of the borrelia and still have other issues. I believe you can eventually get to the bottom of what's causing the CFS, but I think more often than not it's more than Lyme alone - coinfections, metals, parasites, viruses, nutritional deficiencies, fungus, etc.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
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It sounds like you have not even started treatment for the lyme. Will you be going to an ILADS-educated LLMD for that?
It matters little if February is not thought of as a "lyme month" in your state. Every month is a "lyme month" - anywhere birds fly or mice scurry.
Ourdoorsy or not, if you ever spend time in a garden, with any pets, etc. there is a chance of exposure. Did you ever spend time outdoors in your youth ? You may have been exposed years ago.
Rather than be scared of CFS, learn more. First get to an ILADS LLMD. Get assessed. Go from there.
Even if there is more to this than lyme, a good ILADS LLMD knows how to assess for other tick infections. Some of the best doctors also consider some other chronic stealth infections.
Attention to adrenal, liver and cardiac support is vital during your treatment and that should also help.
I've mentioned it before but please be absolutely certain that the doctor you will see in May has read all the ILADS research, been to some of the ILADS seminars or is also a member of ILADS. Reasons for this are below.
It's also good to ask if that doctor is also familiar with the other chronic stealth infections beyond those from ticks. Some of these are HHV-6, Cpn (Chlamydia Pneumonia) or mycoplasma pneunmonia , etc. - See Timaca's link far down in the next post.
Good luck with your treatment path. I suggest reading the Burrascano guidelines and the SIngleton book in preparation for your treatment. There is a lot you can do now so that when you do see the doctor you are higher up on the steep learning curve for this very complex situation.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -(author's details at link)
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
Meet the players
The opponents in the battle over the diagnosis and treatment of Lyme disease are the Infectious Diseases Society of America (IDSA), the largest national organization of general infectious disease specialists, (and)
and the International Lyme and Associated Diseases Society (ILADS), an organization made up of physicians from many specialties. ( www.ilads.org )
ILADS, by contrast, asserts that the illness is much more common than reported, underdiagnosed, easier to contract than previously believed, difficult to diagnose through commercial blood tests, and difficult to treat, (especially)
especially when treatment is delayed because of commonly encountered diagnostic difficulties ( http://www.ilads.org/guidelines.html - Accessed April 6, 2007).
. . .
****�" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ." ****
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- Full article at link above, containing MUCH more detailed information.
-===
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
May 2008 Volume 39 Number 5 LABMEDICINE www.labmedicine.com - American Society for Clinical Pathology
CHRONIC BACTERIAL AND VIRAL INFECTIONS IN NEURODEGENERATIVE AND NEUROBEHAVIORAL DISEASES
- by Garth Nicolson, Ph.D.
===========================
AFTER reading the articles above this will make more sense and, sadly, shows the state of treatment (and - with the new committee gathered, it is still a horrible situation for there are no real experts on the new panel):
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
There are a couple other good labs for certain tests: Fry; Clognen; Focus. Your LLMD will know. Some say MDL does good work (but I don't know if they test all the bands).
========================
VERY important to read - check this according to your test results:
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- In the menu to the left of their home page, you can order DVDs of past ILADS seminars. You might also be able to borrow some from your local lyme support group.
This are invaluable to understanding how these infections work. And, none of this is taught in medical schools. None.
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
"The differential diagnosis of Lyme disease requires consideration of both infectious and noninfectious etiologies. Among noninfectious causes are thyroid disease, degenerative arthritis, metabolic disorders (vitamin B12 deficiency, diabetes), heavy metal toxicity, vasculitis, and primary psychiatric disorders."
"Infectious causes can mimic certain aspects of the typical multisystem illness seen in chronic Lyme disease. These include viral syndromes, such as parvovirus B19 or West Nile virus infection, and bacterial mimics, such as relapsing fever, syphilis, leptospirosis, and mycoplasma."
=======
Now, after all that. You said you had some positive bands on your lyme test. So, if after your LLMD does a clinical evaluation he confirms a lyme diagnose, lyme MUST be addressed first.
From there, depending upon your progress, if your LLMD is excellent, he will explore further if necessary. You may do very well with treatment (and all the self-care measures), to find that the CFS will melt away during the process. I hope so.
While there is a ton here to read, it's meant to be printed out so that you can use it as a study guide. Be sure to take excellent care of yourself. Knowledge is power but be sure to not to let all this envelop you. Find some chuckles somehow, somewhere.
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
What six and keebler said. AND wow, keebler's got some good links there for you to study. They will help you understand the many issues that are involved.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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SForsgren
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posted
I was diagnosed with CFS before Lyme. I personally believe that if you have Lyme, Lyme was a cause of your CFS.
CFS to me is a label with no known cause - it is by definition an diagnosis of exclusion.
I think Lyme is infections + toxins + metals + emotional conflicts, etc. If you address all of these, the CFS likely improves.
If you just focus on the Lyme infection, it may not. Lyme is much more than just a simple infection.
I don't see these as different illnesses. They are both infections + toxins.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Keebler
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posted
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Yes, I was dx with CFS - and Fibromyalgia - a dozen years before finally getting positive Western Blots for lyme, babesia and human monoytic ehrlichia.
Too bad that no doctor in my state would accept my tests from the specialty lab. My GP at that time said "there is no lyme in Oregon." That was pretty much what all the doctors in my state said then - and still.
Yes, other infections can be part of CFS but, often, lyme is the single most determining factor. Sure, ask more questions but it's pretty clear that lyme is involved and needs to be tackled.
This is no walk in the part and you will still need many of the self-care techniques you learned with CFS care but, rather than be scared that lyme treatment won't be enough, rejoice that you at least have what is likely to be at least one big part of the puzzle - and perhaps the main key to proper treatment.
Abxnomore
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Member # 18936
posted
I agree with Scott's perspective. I have always handled my illness in this manner and have always used alternative M.D.s who looked at the big picture and I have made slow steady progress.
Even if you could totally eliminate the spirochete, you would still have issues. There is lots of healing and repair that needs to take
place, especially in the GI tract. 80- 90% of your immune system in in your GI tract and the
ABX and other meds create an environment of totally dysbiosis. Adrenal function needs to be addressed, cortisol levels, thyroid function,
heavy metal toxicity, candida, trauma, past emotional issues and so much more. CFS is a syndrome, as is FMS. They come along with the
territory of lyme. It's about bodily systems that have been totally thrown out of whack due to
the invasion of various pathogens. How one gets that body back into homeostasis is not an easy task but ABX alone will never achieve it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
No one really knows the answer to this. We don't know if you can wipe out the Lyme. We don't even know if, in the Lyme infection, borrelia plays the main role, or if it's one or more of the co's doing the nasty work, or some combination. And we don't know what bug/s is at the root of CFS. And we don't know what role environmental factors play. There just hasn't been enough study for anyone to answer this question with any kind of certainty.
That said ...
Some people get better treating the Lyme and co's. So, in my opinion, that would be the place to start.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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SForsgren
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posted
I am still working on continued improvement, but I don't have CFS symptoms. I work 50 hours a week, exercise daily, and most people tell me to slow down. So fatigue was definitely left behind as I improved.
All that is left is some debris in the eyes (possible damage), some twitching, and an occasional symptom here or there. I'm 90% or more most days.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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I was hoping Lyme would be my only issue. Kiling off the lyme if that is my issue and still being ill is terrifying.
Plus I tried antibiotics for a month, no die-off, no herxing, no change in feeling, so I don't always feel like it will be lyme.
However, I do have an apt in May with a good Lyme Dr. I've never been tested for coinfections, so can't wait for that.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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Leelee
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posted
I agree with Keebler. One can show symptoms of Lyme at any time, even if Lyme isn't "in season" so to speak.
My LLMD says that CFS is a symptom of some other disease, not a disease in and of itself.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
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Brian,
Yes. this can be frightening. I would like to suggest that first, addressing that fear might be helpful.
You first said that the thought of having CFS long-term "scares the crap out of" you. Then you add that the thought of "still being ill is terrifying."
Education and Action will replace fear. Still, you might want to find a good LL therapist to discuss issues you have around illness. We all deal with inner demons and fears and have been just trampled by illness and by others who don't understand it.
How you think from here on can have huge effect on your progress. The words you choose, too, can have an effect (especially on that "fight or flight" response from tired adrenals).
As horrifying as lyme can be, the more you learn about the spirochete, the more empowered you will be. From there, you learn more about how your body works: the liver; the endocrine system, etc.
You will learn to work WITH your body (and your thoughts) through all this.
I try to replace the fear with a health respect for the task at hand and all the requirements and responsibilities that go with that. THAT gives me power.
It's still a winding road, however, you will have have some control over the steering wheel and the pedals.
posted
I even question that I have lyme, while I had positives on my IGenex, I was on two antibiotics for 3 weeks. I had an incurrable yeast infection even though I was on antifungals and a candida diet. I tried OTC products for the spot, nothing.
I didn't have a herx, never felt worse or better, which made me think i didn't have Lyme.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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Abxnomore
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posted
Not every one experiences a herx and one should not expect one after only being on ABX for three weeks.
That is hardly considered treatment nor should you expect to experience any improvement during such a short period of time.
There could be a million other reasons why you have yeast. It's just as complicated as lyme disease.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Thanks, I know the antibiotics caused the yeast infection. Everytime I go on antibiotics I get a yeast infection w/in 3 days.
P.S.. I'm a girl, not a guy.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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lymeinhell
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posted
quote:Thanks, I know the antibiotics caused the yeast infection. Everytime I go on antibiotics I get a yeast infection w/in 3 days.
You need to be taking large doses of QUALITY Probiotics (acidophillus) 3 times a day, on an empty stomach, at least an hour away from your antibiotics. This will help replenish the good flora in your gi tract that the abx kill off.
You also need to stay off the carbohydrates and sugars while on antibiotics, and for many many manys months afterwards. This includes dairy, as dairy has sugar, which feeds the yeast.
You should also be concerned with your body's PH. If you are very acidic, it is a breeding ground for things that aren't good for you (like Lyme, yeast and cancer). It is addressable with diet changes. You can buy test strips and easily check yourself. You want your spit to test at a 7 PH. Most chronically ill people are in the 5-6 range, which is very acidic.
CFS is a description of symptoms. It is possible you may end up with some of the symptoms lingering if you have not addressed all of the issues. I was given that bogus label in 1995 because our wonderful duck doctors couldn't figure out the cause of my misery. I did get well, but it took another tick bite, antibiotics, detox, massive amounts of supplements, major lifestyle change and an amazing LLMD to fix me.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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CherylSue
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Member # 13077
posted
I was also initially diagnosed with CFS. There's not much they can do for that.
When I was diagnosed with Lyme after 7 1/2 years there was a lot my LLMD suggested.
After 18 months I went from functioning around 15% to almost 90%. When you start knocking down infections your immune system comes back slowly. It takes months, sometimes a couple of years. You eventually get better, albeit slowly.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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Thank you for your suggestions, but I follow all of yours to a T and still have yeast issues. Plus I take antifungals beside the probiotics and staying on an alkaline diet, testing, and staying away from carbs and sugar.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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kelmo
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posted
Yes, My LLMD says he can clear up Lyme in about a year; it's the other organisms that cause the chronic issues (although I did hear him refer to a chronic Lyme patient the other day, and I've never heard him use that term).
I have CFS, but I only show up on band 41. LLMD thinks it's a protozoa. He's releasing more info on that this week.
lymeinhell
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Member # 4622
posted
Sorry to hear it's been so rough. The only thing I can suggest is try a different brand of probiotics and up the doseage. I went through several before I got one that helped me achieve a happy balance. (I also had to take Diflucan for 2 months straight to get ahead of it) And perhaps try a different antifungal?
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Keebler
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posted
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What has your dose of allcin capsules been? Of Olive Leaf extract?
"I am still working on continued improvement, but I don't have CFS symptoms. I work 50 hours a week, exercise daily, and most people tell me to slow down. So fatigue was definitely left behind as I improved."
Did you have low adrenals. And did you find anything useful to fill them back up- the sponges they are.? Adrenals for me has been huge. The only thing that ever took away my unrelenting fatigue was Hydrocortisone and then that made me very ill, then I stressed and lost the good adrenal function again. thanks, JL
Posts: 268 | From new york city | Registered: May 2008
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sparkle7
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posted
I had CFS when I was in my 20's. I was able to get over it in about 3 years with a good diet, rest, & herbs.
About 8 years later, I started having fibromyalgia like symptoms & had a fibro diagnosis. 9 years later I got a clinical diagnosis for Lyme.
The symptoms I had when I had CFS were different than the ones I had later which were diagnosed as fibro. I don't think they are the same thing.
I didn't have body pain when I had CFS - I was just extremely fatigued. I could easily sleep for 20 hours at a time. I was tested for EBV back then & I didn't have that. It may have been something else but I don't know. It started after having a bad cold/flu that never went away.
When I had fibro or Lyme or whatever it may be - my main symptom was pain. I'm sure these things have an overlap but I think they are different.
There are many pathogens that can cause this overlap of symptoms. It's just very difficult to really know what to treat since the tests are not very accurate.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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ukcarry
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posted
Different people's experience of CFS/ME vary because it is an umbrella term used to describe a series of symptoms once some other things have been excluded.
Many people like Scott are given a CFS diagnosis and only discover later that they have Lyme and co. I have read that three quarters of people who are now being given Lyme diagnoses had previous diagnoses of CFS/ME.
I had the CFS/ME diagnosis for 16 years before discovering the Lyme in 2007 and I do not believe that the borrelia, babesia, bartonella and ehrlichia are only recent: I believe that, along with the genetic influence and the toxic load, the infections caused the CFS symptoms.
That is not to say that it is simple and that all symptoms will resolve with successful Lyme treatment.
Some people, however, do seem to have Lyme without a big fatigue component: when I read posts describing gym workouts and other huge muscular feats or long walks, I am struck by how different people's experience can be, as those things would be impossible for me, at least at present:
There do seem to be so many variables that I don't think the original question is truly answerable...healing Lyme may resolve CFS for some, but not for others.
By the way, Scott, I was really delighted to read that you are now able to be so productive and feel 90% most days: that's excellent news!
posted
Severe fatigue/exhaustion is still my worse symptom after 4+ years. It wasn't my first symptom though.
I was diagnosed with CFS back then and continued to work pt time and still able to run.
I finally got diagnosed with a clinical diagnosis since I only had 41+++ and a few IND. I have been on countless abx and nothing has ever been able to relieve the fatigue.
I am on cortef and also cytomel and synthroid. I still suffer from almost constant fatigue and low energy.
I am going to make a decision this week if I should continue treating or stop and go to herbals. Maybe my body needs time to heal. I just don't know.
My doctor is now doing some metabolic testing and some others. He says I still shouldn't be having the unrelenting fatigue and he believes something other than Lyme is the cause. I guess I will find out.
I don't feel better on abx so I think it is time to stop and see what happens. I still also am not sure that was even my problem..I know that there is a reason for CFS but I think sometimes the doctors can't find that answer.
I am fairly certain I will either heal from this gradually or maybe I have permanent damage to my adrenals. I will be having some more tests in a few weeksl.
I can't imagine living with this for always either. I never would imagine that "fatigue" could alter your life so completely. When I say fatigue it doesn't even come close to what I experience daily.
I have been tested for every virus you can imagine so I am not sure if this could have been viral instead of Lyme. I was never tested for any virus when I was first sick so I am not sure they disappear from your bloodstream.
I have no other symptoms except some sore muscles but they have all been gone for over a year.
I worked the other day a 4 hour shift and it landed me in bed for 15 hours. Something is definately wrong but what???
Posts: 343 | From North Carolina | Registered: Oct 2008
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timaca
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Member # 6911
posted
You could consider getting tested for HHV-6, enterovirus and EBV. See:
posted
My issue is that I also have interstitial cystitis. So i can't take a lot of herbal products for yeast, like olive leaf extract. It causes severe pain.
My HHV-6 and EBV are fine. I haven't been tested for enterovirus. I tried oxymatrine and didn't react, so I don't think I have it.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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nenet
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Member # 13174
posted
I was diagnosed with CFS with no cause stated. Also Fibromyalgia. Also Rheumatoid Arthritis (sero-negative). Then I was clinically diagnosed with late-stage Lyme Disease, and also had several species-specific bands on the WB.
In MY case I would say, those diagnoses I had before the Lyme diagnosis were ALL misdiagnoses, and I would submit that as long as I have these symptoms, I am having Lyme symptoms.
One thing to consider well - Lyme can be latent or unnoticed for months to many many years before symptoms appear. So you might have been bitten/infected in your youth, and only recently began to have symptoms (CFS, etc.).
Also, Lyme (as well as other coinfections) can run down your immune system to the point where latent viruses (Like Eppstein Barr which causes Mono, or other infections) become reactivated.
Once the Lyme is treated properly, the reactivated infections are able to be fought back into submission by the body's own immune system again, as in a normal otherwise healthy person.
sparkle7
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Member # 10397
posted
I guess one could go crazy to try to figure it all out.
When I was in my 20's, I became ill with a flu & it turned into CFS. I lived in an urban area where I don't think there were many ticks. It is possible I could have been bitten anywhere at some time before but I have no recollection of it.
After 3 years of fatigue, I was completely well - I went to the gym before going to commute to my job. I walked 20 blocks to & from work & I did stuff in the evening after work. I was completely well for 8 years.
Then, it was the fibro diagnosis with different symptoms... then, a clinical Lyme diagnosis 9 years later. It's hard to say which is what. I had lots of tests & nothing really conclusive came of it. So, I'm still not completely sure what I'm dealing with.
I think a big problem is that the standard tests are not accurate. We don't really know what we are treating. We don't know if abx are going to kill whatever it is. It's all just trial & error.
We have to keep trying to rule things out but it's tricky when we don't have an accurate basis to go on. When I had CFS I didn't take any abx. That wasn't the mode of treatment back then in the 1980's...
Fatigue has been a component of my more recent illness but it's not the main thing. I know what CFS fatigue feels like. It's not what I'm going through now.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
The problem I am having is that chronic fatigue is my only symptom and has always been the worse for me. I have read descriptions of CFS fatigue and it sounds exactly like what I feel.
I will run out of energy really fast as though my body has been drained of life and I can't recover until the next day.
I don't think I have CFS the syndrome because I have none of those symptoms and every symptom I had in the past could have easily been from a virus.
I am not sure the doctor will ever really know what infected me 4 years ago if it was bacterial or viral. Many of my Lyme symptoms disappeared before treatment.
So since my fatigue is as crippling as it was 4 years ago I tend to think it was a virus that damaged my body. Hopefully it will heal on its own at some point.
Posts: 343 | From North Carolina | Registered: Oct 2008
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lymeparfait
Unregistered
posted
I agree with sixgoofykids.
I think some of those remaining symptoms can be addressed with nutrition. Remember that you can not absorb nutrients correctly...so try some liquid electrolytes with some amino acids and green drinks form good natural sources. See if you get some energy and relief from symptoms. I get relief from this.
posted
I can't take amino acids, or green drinks or electrolytes. I have interstitial cystitis, which mean my bladder has spots where the inner layer is missing. So I can't take supplements, or other things.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Lisa, concerning electrolytes, I wonder if you could take Himalayan salt diluted in water. Himalayan salt has a natural balance of minerals. Or perhaps use it on your food.
I'm thirsty all the time and water doesn't quench it, but the Himalayan salt does.
I can see why you're having such a tough time with treatment because of the interstitial cystitis.
Posts: 1297 | From USA | Registered: Dec 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Lisa,
Interstitial cystitis often goes along with lyme. Hopefully, your lyme protocol will help this. It has for others.
And, there may be some supplements or teas that can be soothing.
posted
Keebler - Thanks, I hope I have Lyme and the treatment does help the interstitial cystitis.
Right now the IC is so sensitive I can't take any supplements even those tested on people with IC or teas.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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Keebler
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Member # 12673
posted
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Lisa,
where are in you getting a LLMD ? Do you have an appointment?
After you have a full assessment by an ILADS LLMD, you might explore using a rife machine. But you need a full picture of what you are dealing with before starting that. But, as that is not anything you ingest or inject, it may be the way for you to go.
I have an apt by an Ilads LLMD on Weds. I will read up on Rife and see about it. I'm not too familiar with it.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I think mycoplasmas may be at the root of some of my illness (Lyme or CFS). I had 2 standard tests & they came up as negative. I had an energetic test & it came up...
I have been taking homeopathic remedies for it. I think I may have hit the nail on the head but it hasn't been long enough for me to say definitively.
I think alot of the pathogens these days may be difficult to find on standard tests. Some of the results may be sub-clinical or they can just go undetected.
I'm not a scientist so I can't say why, exactly. This has just been my experience. Many tests for Lyme and the co-infections aren't very accurate, either.
I spent alot of money on lab tests & they didn't tell me much.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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