posted
Hello, I removed a tick from the back of my neck at the hairline around the 3rd or 4th week of March. Around 7-10 days later I started feeling "weird" with these symptoms that have only surfaced on my left side; first I noticed my knee was slightly numb and swollen, at the top of my leg under my buttock and my inner thigh (numbness and swelling), the back of my upper arm (numbness and swelling), and finally mostly numbness on the left side of my face. To go back a bit the first thing that happened was that my left eye started twitching for about 4 days straight, then the aforementioned symptoms started, along with extreme fatigue, fever, chills and achiness (I was having my period when these symptoms first started and attributed it to that), but 5 weeks later I continue to exhibit these symptoms. I just started my 3rd week of doxycycline and my Western Blot came back "non-reactive" whatever that means? Any thoughts concerning this on-going saga would be appreciated, especially about the left side only thing. I also had a ECG and wore a Heart Holter for 24 hours, still waiting for results. Forgot to say I started getting palpitations or skipping beats in 4th week. Thanks for listening
Posts: 2 | From KY, usa | Registered: Apr 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I've heard a lot of Lyme folks talk about one-sided symptoms. I'm a left-sided gal, myself. Only occasionally do things show up on my right side.
Western blots usually do not show reactivity till at least 6 weeks after infection, so it's not surprising that yours is coming up non-reactive. Being on antibiotics could also keep it from showing positive.
At this point, it's more important for you to be treated than it is to have a positive test. You are showing a lot of symptoms. Is your doctor familiar with treasting Lyme and the co-infections that can come along with it?
You want somebody very experienced to treat you. If you are not sure about your doctor, you could post in the Seeking a Doctor section, and ask about the one you have, or ask for names of recommended ones.
posted
Most of my symptoms are on the left, numbness and twitches. Not all but that's where they usually crop up.
Posts: 635 | From Texas | Registered: Mar 2004
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
From an old MS word file, so I don't know if the link still works...
"Trace mineral symptoms of excess or deficiency are generally one-sided, depending on their ratios to other chemical members, and depending which group they are neurologically assigned to.
In the event of calcification, it is not a high calcium level that results in the formation of a stone or spur, but calcium being high in ratio to associated or interactive elements.
For instance, phosphorus and zinc have both left-sided cell receptors, so if either level is low in ratio to calcium, calcification would only take place on the left side of the body, whereas the cell receptors of manganese or magnesium are right-sided, as a result, any calcification would develop on the right side of the body only.
The same rules apply to most nutrition-related inflammatory or degenerative conditions, so successful,non-symptomatic treatments require the application of those same principles. Since intracellular and serum levels of nutrients represent different physiological and pathological processes, abnormal levels seen in one medium are not necessarily reflected in the other, so they need to be interpreted differently." http://www.acu-cell. com/sni.html
Posts: 9426 | From Sunshine State | Registered: Mar 2001
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Hello and welcome.
I'm a right-sided only gal myself, and my symptoms pretty much progressed as yours did. Except add to it dizziness that knocked me flat for weeks. Still have it and that was 9 mos. ago.
I hope your WB was run by a reputable lab.
I too wore the heart monitor, stress test, echo, ekg. All normal.
Marnie's post was really interesting. I've been taking Magnesium Aspartate for about 2 months now. Let's hope it helps.
Do a search using the search button at the top and put in 'Links for New Members'. It's quite an education. I wish you well.
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I have left-side weakness, "rubbery" leg and arm feeling. Also problems on and off wtith Bell's Palsy on my left side, along with left side of throat feeling numb when I swallow.
The weird thing is, my right side always feels super "tight", and most of my pain is on the right side of my body.
When I'm having my bad days, it feels kinda weird when walking. Loose on the left, tight on the right....
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Well, I have some good news and I have some bad news
The Good news is that you are EARLY in this disease! Yay, good for you. You realize you have a shot at curing this for the rest of your life and never having to worry again, right?
The other good news is that it's not fully disseminated, it doesn't sound like because of the ONE sided problems. I could be wrong, but I bet ya a doxycycline Im not.
The bad news? You are never going to beat this if you don't see a LLMD. Are you seeing a LLMD? I don't mean to shoot rockets at your stars, but the chances are if you do not see a LLMD this will come back
OR one of those coinfections it sounds like you are hoarding is gonna blast you. Im only shedding the light and reality of what you asked, bare with me.
A LLMD means lyme Literate doctor. So, since the doctor that gave you doxy knows about lyme, and tested you for lyme, then that makes him literate, right? Wrong. And please, kick me if you ARE seeing a LLMD.
Alot of posters come here thinking or saying they ARE seeing a LLMD only to find out they arent.
A LLMD's patient list is pretty much full of lyme patients, they know the ins and outs of this disease, they research,t hey attend conferences, etc. You can post in seeking a doctor and someone will nab you and email you ( leave your email) a name of a doctor near you that is KNOWN to treat lyme.
Even if you start feeling better, please know you could have coinfections that DOXY IS NOT going to touch, etc.
Only a LLMD can help you with all of this. A LLMD also knows not to take you off of your medication until ALL of your symptoms are gone from for two to six months after they leave. Uh, I think they said that right.
So do yourself a favor for the rest of your life. Find a LLMD. They can be pretty pricey, but at this point, what have you got to loose? Your health?
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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Lishs mom
Frequent Contributor (1K+ posts)
Member # 2344
posted
I would highly suggest that you go to the ILADS website and order a copy of the latest treatment guidelines.
Then download a copy of the earlier version. Study them and understand that if you take the bull by the horns now, you could well avoid long term problems such as what many of us experience.
The doctors are likely to balk at treating you adequately. Some ways that I have heard around this are: "find several doctors who will each prescribe". "loose your prescription", or find a LLMD who will treat you adequately and know what to look for in regards to early CNS dissemination.
I would only suggest the latter of the three options. Actually legally I do not even suggest the first two, but have heard of others who have used those methods.
Regardless, make sure to advocate for yourself...you have to live with you 30 years down the road...the doctor will probably not even be in your life then, and you will have another insurance company by then. They often dont have a long term interest in you, only long enough to make a few bucks.
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